Re: Update on and Mono

[Guest guest]

Good news that he tested her and is treating her. Sending get well wishes

and prayers your way.

~Pattie~

" What matters is not great deeds, but great love. " ~ St. Therese of Lisieux

Family website: www.shwachman.50megs.com

_____

From: [mailto: ] On Behalf Of

Becky McClure

Sent: Monday, May 15, 2006 8:18 PM

Subject: Update on and Mono

Well after our weekend in the er-the infectious disease doctor insisted on

seeing us today-even on a non-clinic day! He feels that has mono for

sure, but also more than likely a secondary strep infection and some type of

infection from a tick-not lyme or rocky mountain spotted fever. The test

for it takes lots of blood-and 3 weeks to get back-so we are treating

without the test. She is now on two different antibiotics. He also tested

her immune stuff-just because she is Maddie's sister! We left there feeling

very reassured. He also felt that we will probably need to get her into

some physical therapy to help regain some of the strength she has lost due

to the secondary infection.

So-I am feeling relieved-she feels relieved-and things are looking up!

Becky in IN-mom to Maddie, IgA def, low IgG, gerd, asthma, milk

allergy....and the mono wonder!

[Guest guest]

I am glad your dr is aggressively pursuing answers! I am glad that you are

feeling reassured and hope that will soon be feeling stronger.

, ('s age, had mono...) will have her PT assessment Thursday with a

great group that she worked with when she had tendonitis...I think it is good

to help them retain as much strength as they are able. Friday is the

rheumatologist at UCLA. Terri directed me to the IDF website today, where I

read about the prevalence of autoimmune diseases in those with Sel IgA and CVID

....they think this might fit amanda. Aside from a sinus retentions cyst, he now

is convinced there is yet another underlying cause to her leg pain and

headache...(he was able to get her headaches about 80% improved but he expected

more).

I don't know if sarah would ever want to chat on line - amanda is tends to be

quiet and doesn't like to talk about being sick, but maybe they could find

something so share...

my best to becky and sarah...

mom to amanda, 15, cvid, cdm

Becky McClure <beckymcclure825@...> wrote: Well after our weekend in the

er-the infectious disease doctor insisted on seeing us today-even on a

non-clinic day! He feels that has mono for sure, but also more than

likely a secondary strep infection and some type of infection from a tick-not

lyme or rocky mountain spotted fever. The test for it takes lots of blood-and 3

weeks to get back-so we are treating without the test. She is now on two

different antibiotics. He also tested her immune stuff-just because she is

Maddie's sister! We left there feeling very reassured. He also felt that we

will probably need to get her into some physical therapy to help regain some of

the strength she has lost due to the secondary infection.

So-I am feeling relieved-she feels relieved-and things are looking up!

Becky in IN-mom to Maddie, IgA def, low IgG, gerd, asthma, milk allergy....and

the mono wonder!