why so many tears?

[Guest guest]

I am thinking of you and praying for you and Ana today....that it would all go

better than expected.

Speaking for myself, I am not very strong and it IS very hard....which is why

I would give you a HUG if I could. It is difficult to deal with a life that is

not the way we expected and certainly far from any ideal----I will hope and pray

that you get more understanding today from the staff....and maybe even that you

won't have to be separated(as long) from Ana

Fisher

mom of Calvin, 5yo, XLA

jmfritze <jmfritze@...> wrote:

Sorry so negative. Just so sad about all of this tonight, how are

you all so strong????

Ana 14 mo, too young for all this crap.

---------------------------------

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[Guest guest]

-I would have told the woman to stay out of my business. Of course

Dieticians are not my favorite group of people (sorry if anyone on the list

is a dietician-I am sure there are MANY out there better than the idiots we

have run into) I would likely have said something snide and a tad bit

un-Christian to her. WHO does she think she is!? And what does Ana

sleeping with you have to do with the price of tea in China or in her case

Ana's diet.. OH um.let's see.. Ana gets EXTRA nutrition that she NEEDS

because she is in the bed with you! I would have told her to put that in

her pipe and smoke it. I could come along on your next visit with you-or

you could call me and I'd be happy to impart my opinion-just get her on the

phone! LOL <smile> Yeah-we had a dietician who was dumb as a stump.

When I had written in the food long that I put one tablespoon of MELTED (key

word here) butter on 's pancake she asked the dumbest question on earth

(yes, there really are dumb questions), " Was it from a stick or was it

whipped butter? " So I said, " Well, it was melted, so there's no difference

in the number of calories. " She said, " Oh, no, whipped butter has less

calories per tablespoon than regular butter because of the air in it. " So I

said, " Um, when it is melted, it is no longer whipped. " She insisted that

she was correct. _just added that story to make you laugh_ next time

you see your dietician, imagine a pool of melted butter-you can just choose

if it started as whipped or from a stick..

None of us is a rock and we've all cried. I always try to remember God's

promise to Noah-the rainbow. It takes water and light to make a rainbow.

So I always say that we've got to cry a lot of tears before we can see the

rainbow..

I hope the therapy goes better than expected. If Ana is scared, they need

to address that and you have the right to know what parameters they have in

place-if she is crying and scared, they need to come and get you-therapy is

over-get a parameter in place-one that you feel comfortable with-- say

after 5 minutes, if she still is upset, they come to get you.or 10 minutes..

Ease her into the therapy. They should be able to help Ana cope with

therapy and learn that this is different than the pokie doctors. When

ph went to the OT, developmental ped and the psychologist, they were all

good with making him understand that they were not " pokie doctors " ..

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

From: [mailto: ] On Behalf Of

jmfritze

Sent: Wednesday, April 05, 2006 10:05 PM

Subject: why so many tears?

Ana had an appointment with the feeding clinic today. They have a

lot of good ideas, but the visits are always overwhelming as we meet

with a CPN, dietician, OT and speech at the same time. They take

turns evaluating Ana as the other three fire questions at me.

So...overwhelming on a good day. It has not turned out to be a good

day. They said Ana qualified for both speech and OT now. I used to

do the therapy as a job, but for some reason, being on the other

side is hitting me a lot harder then I thought it would. Then the

dietician decided to take it upon herself to convince me that I am

not doing Ana any good when I end up sleeping with her. She

said " is this what you intended from her birth? " I wanted to

yell " Nothing about my child's life is how I intended it to be, I

did not intend for her to suffer two dozen blood draws, four zillion

IV's, and unknown pains for her entire first year " Who the heck

does she think she is, SHE IS A DIETICIAN, NOT A SLEEP THERAPIST.

So the whole thing has just been crap tomorrow. I don't want to

hand her over to these therapists and leave the room for an hour

while she screams, scared they are going to poke her. I hate all of

this.

Sorry so negative. Just so sad about all of this tonight, how are

you all so strong????

Ana 14 mo, too young for all this crap.

_____

[Guest guest]

In a message dated 4/7/2006 6:16:55 PM Central Standard Time,

jmfritze@... writes:

> As for the

> sling, I didn't know you could nurse that easily in it! It will be a

> must!

>

:

Make sure you get the MAYA. I tried other versions and my opinion is that any

sling is better than no sling, but I felt all but the MAYA too hot or bulky.

The MAYA version is a thin but strong and soft material, soooo nice. I've even

seen them in resale shops, but I bought mine new, it was only like $35.

(mom to , age 7, dairy intolerant-related GERD -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other

defs... and also to Kate, age 3!, more dairy intolerant but very healthy!)

[Guest guest]

, the obvious answer is......send your hubby to third shift.

Thats where mine is at LOL(but he has been there for 9 yrs).

When Brennan was born, instead of the crib, we bought and set up a

play pen with a baby bassinet that fit into the top of it, and it was

actually just about bed level. I put Brennan in that, and thru the day

rolled it into the living room and at night rolled it back by my bed.

That way, he was right next to me, but when he needed me or needed to

nurse, I could just roll him right in next to me.

But I will also honestly tell you that when was home at night,

and the kids all were little, there were nights I slid out and slept

on the couch, b/c there was no room for me in my own bed.

But, my motto has always been, if everyone is sleeping, mamma is happy.

and I would seriously doubt the opinions of a loser mom who

procrastinated and got behind and sent out my kids invitations late,

and now we have a cake and a new bike, and no kids coming to Donovans

first real birthday party(he turned 6 yesterday).

Valarie