Re: Truly tantrums or seizures...

[Guest guest]

YES i definately would.. my son had one done and it was about a year and a half after he was diagnosed.. no one ever suggested it.. well wouldnt you know, they found that he has cerebral dysrythmia.. it is like electrical seizures in the brain.. after we discovered that they did a psych eval and put him on keppra which does work.. yes i would insist on getting the eeg before giving him any meds.. sometimes meds makes things worse... and he may have something that he does need medicine for.. you just dont know until that test is done.. my son also has aspergers but talks well, he just cant communicate feelings or wants and has a hard time comprehending... the staring is a sign of seizure activity.. many many doctors have asked me if he stares off into nothin and if so how long does it last.. so definately get that checked.. best of luck to youBecky <becky.williammee@...> wrote: My son will be 4 in July. He has always had some delays. He had beenattending Montessori school until he became so disruptive that I hadto pull him out. He couldn't even get through a 3 hour day. Some ofthe things that are concerning are his speech delay, academics, andaggression. He will go into these "meltdowns" that can last up to 30minutes and come out of them in a coma state. By coma state I mean hewill stop crying, just sit and stare, not talk, and that usually lasts15-30 minutes. He appears exhausted.He went to see a developmental

pediatrician and they wanted him to seea neurologist to rule out seizures. We were told they would likelyrecommend an MRI and EEG. He had that appointment yesterday and theNeurologist says he has Aspergers. (I've been expecting a spectrumdiagnosis, just didn't expect Aspergers since he has so manycommunication problems) She didn't entertain the idea of seizures oreven make a suggestion of MRI/EEG. She prescribed Clonidine. I thinkher logic is that since he has been better/more manageable since wehave pulled him out of school that his meltdowns are likely causedfrom anxiety. Our meltdowns went from everyday (sometimes two or threea day) to once or twice a week. Now, my question is what would you do if it were your child? I'mreally reluctant to start the medicine. Should I insist on getting theMRI and/or EEG. What is the path some of you have chosen and how hasit worked out. I just need more information/been

there done that facts. Thanks a bunch! ~Swtnsxy Photo~ www.myspace.com/supportasoldier

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[Guest guest]

Clonidine helped my a lot, but when we got to a high enough

dose, it enlarged her heart, putting her life in danger. If you

choose to start him on the meds, make sure you are starting at the

minimum possible dosage, and make sure you get regular EKGs.

Meds have saved our lives. You just have to be very aware of side

effects.

Meira

>

> My son will be 4 in July. He has always had some delays. He had been

> attending Montessori school until he became so disruptive that I had

> to pull him out. He couldn't even get through a 3 hour day. Some of

> the things that are concerning are his speech delay, academics, and

> aggression. He will go into these " meltdowns " that can last up to 30

> minutes and come out of them in a coma state. By coma state I mean

he

> will stop crying, just sit and stare, not talk, and that usually

lasts

> 15-30 minutes. He appears exhausted.

>

> He went to see a developmental pediatrician and they wanted him to

see

> a neurologist to rule out seizures. We were told they would likely

> recommend an MRI and EEG. He had that appointment yesterday and the

> Neurologist says he has Aspergers. (I've been expecting a spectrum

> diagnosis, just didn't expect Aspergers since he has so many

> communication problems) She didn't entertain the idea of seizures or

> even make a suggestion of MRI/EEG. She prescribed Clonidine. I think

> her logic is that since he has been better/more manageable since we

> have pulled him out of school that his meltdowns are likely caused

> from anxiety. Our meltdowns went from everyday (sometimes two or

three

> a day) to once or twice a week.

>

> Now, my question is what would you do if it were your child? I'm

> really reluctant to start the medicine. Should I insist on getting

the

> MRI and/or EEG. What is the path some of you have chosen and how has

> it worked out. I just need more information/been there done that

facts.

>

> Thanks a bunch!

>

[Guest guest]

This sounds like what my daughter used to do. Stress made these

episodes worse. So did certain foods, like yellow and red dyes. Or

not getting her way. Or I have no idea what sometimes. She would do

this many times a day when she was little. I got it on videotape

once. The neurologist told me it didn't look like seizures, but the

EEG would only measure it as a seizure if she did it while hooked

up. She was put on meds and that helped a lot, as did massive

amounts of therapies for her and me to learn how to work with her.

If you want to see a neurologist then make a stink and get that

referral.

Meira

>

> My son will be 4 in July. He has always had some delays. He had been

> attending Montessori school until he became so disruptive that I had

> to pull him out. He couldn't even get through a 3 hour day. Some of

> the things that are concerning are his speech delay, academics, and

> aggression. He will go into these " meltdowns " that can last up to 30

> minutes and come out of them in a coma state. By coma state I mean

he

> will stop crying, just sit and stare, not talk, and that usually

lasts

> 15-30 minutes. He appears exhausted.

>

> He went to see a developmental pediatrician and they wanted him to

see

> a neurologist to rule out seizures. We were told they would likely

> recommend an MRI and EEG. He had that appointment yesterday and the

> Neurologist says he has Aspergers. (I've been expecting a spectrum

> diagnosis, just didn't expect Aspergers since he has so many

> communication problems) She didn't entertain the idea of seizures or

> even make a suggestion of MRI/EEG. She prescribed Clonidine. I think

> her logic is that since he has been better/more manageable since we

> have pulled him out of school that his meltdowns are likely caused

> from anxiety. Our meltdowns went from everyday (sometimes two or

three

> a day) to once or twice a week.

>

> Now, my question is what would you do if it were your child? I'm

> really reluctant to start the medicine. Should I insist on getting

the

> MRI and/or EEG. What is the path some of you have chosen and how has

> it worked out. I just need more information/been there done that

facts.

>

> Thanks a bunch!

>

[Guest guest]

This sounds like what my daughter used to do. Stress made these

episodes worse. So did certain foods, like yellow and red dyes. Or

not getting her way. Or I have no idea what sometimes. She would do

this many times a day when she was little. I got it on videotape

once. The neurologist told me it didn't look like seizures, but the

EEG would only measure it as a seizure if she did it while hooked

up. She was put on meds and that helped a lot, as did massive

amounts of therapies for her and me to learn how to work with her.

If you want to see a neurologist then make a stink and get that

referral.

Meira

>

> My son will be 4 in July. He has always had some delays. He had been

> attending Montessori school until he became so disruptive that I had

> to pull him out. He couldn't even get through a 3 hour day. Some of

> the things that are concerning are his speech delay, academics, and

> aggression. He will go into these " meltdowns " that can last up to 30

> minutes and come out of them in a coma state. By coma state I mean

he

> will stop crying, just sit and stare, not talk, and that usually

lasts

> 15-30 minutes. He appears exhausted.

>

> He went to see a developmental pediatrician and they wanted him to

see

> a neurologist to rule out seizures. We were told they would likely

> recommend an MRI and EEG. He had that appointment yesterday and the

> Neurologist says he has Aspergers. (I've been expecting a spectrum

> diagnosis, just didn't expect Aspergers since he has so many

> communication problems) She didn't entertain the idea of seizures or

> even make a suggestion of MRI/EEG. She prescribed Clonidine. I think

> her logic is that since he has been better/more manageable since we

> have pulled him out of school that his meltdowns are likely caused

> from anxiety. Our meltdowns went from everyday (sometimes two or

three

> a day) to once or twice a week.

>

> Now, my question is what would you do if it were your child? I'm

> really reluctant to start the medicine. Should I insist on getting

the

> MRI and/or EEG. What is the path some of you have chosen and how has

> it worked out. I just need more information/been there done that

facts.

>

> Thanks a bunch!

>

[Guest guest]

Hi,Becky

My son was about your son's age when he went through having a EEG.

If you feel your son should have it. Demand it. If that dr.

doesn't want to give it to your son then find a dr. that will. And

your son's meltdowns in school doesn't make him better. He's just

not in the setting that was causing them, what happens when he's got

to be in school or public? He'll have them again. My son was non-

verbal and had lots of meltdown when he was first starting school.

It's something new and he had to adjust to it. He's 10 now and in

mainstream classroom. He has moments but not like when he was

little. Good luck. Kim

>

> My son will be 4 in July. He has always had some delays. He had

been

> attending Montessori school until he became so disruptive that I

had

> to pull him out. He couldn't even get through a 3 hour day. Some of

> the things that are concerning are his speech delay, academics, and

> aggression. He will go into these " meltdowns " that can last up to

30

> minutes and come out of them in a coma state. By coma state I mean

he

> will stop crying, just sit and stare, not talk, and that usually

lasts

> 15-30 minutes. He appears exhausted.

>

> He went to see a developmental pediatrician and they wanted him to

see

> a neurologist to rule out seizures. We were told they would likely

> recommend an MRI and EEG. He had that appointment yesterday and the

> Neurologist says he has Aspergers. (I've been expecting a spectrum

> diagnosis, just didn't expect Aspergers since he has so many

> communication problems) She didn't entertain the idea of seizures

or

> even make a suggestion of MRI/EEG. She prescribed Clonidine. I

think

> her logic is that since he has been better/more manageable since we

> have pulled him out of school that his meltdowns are likely caused

> from anxiety. Our meltdowns went from everyday (sometimes two or

three

> a day) to once or twice a week.

>

> Now, my question is what would you do if it were your child? I'm

> really reluctant to start the medicine. Should I insist on getting

the

> MRI and/or EEG. What is the path some of you have chosen and how

has

> it worked out. I just need more information/been there done that

facts.

>

> Thanks a bunch!

>

[Guest guest]

It sure sounds like seizures. Our 8 yr old son (ASD, PDD, OCD, ADHD,

anxiety et al) also has simple and complex partial seizures. He can

have a lot of " auras " which are mini seizures. Seizures always

trigger bad behavior (being mean, more hyper, more anxious, bad

words). After a 30 sec to 2 min seizure he gets extremely tired and

typically takes a short nap.

Stop the seizures and we see good behavior. Nine different seizure

meds have not stopped the seizures. We are focusing on food

allergies and NAET as a possible solution. Carefully document what

is eaten in advance of seizure episodes.

God Bless

& Vicki

> >

> > My son will be 4 in July. He has always had some delays. He had

been

> > attending Montessori school until he became so disruptive that I

had

> > to pull him out. He couldn't even get through a 3 hour day. Some

of

> > the things that are concerning are his speech delay, academics,

and

> > aggression. He will go into these " meltdowns " that can last up to

30

> > minutes and come out of them in a coma state. By coma state I

mean

> he

> > will stop crying, just sit and stare, not talk, and that usually

> lasts

> > 15-30 minutes. He appears exhausted.

> >

> > He went to see a developmental pediatrician and they wanted him

to

> see

> > a neurologist to rule out seizures. We were told they would likely

> > recommend an MRI and EEG. He had that appointment yesterday and

the

> > Neurologist says he has Aspergers. (I've been expecting a spectrum

> > diagnosis, just didn't expect Aspergers since he has so many

> > communication problems) She didn't entertain the idea of seizures

or

> > even make a suggestion of MRI/EEG. She prescribed Clonidine. I

think

> > her logic is that since he has been better/more manageable since

we

> > have pulled him out of school that his meltdowns are likely caused

> > from anxiety. Our meltdowns went from everyday (sometimes two or

> three

> > a day) to once or twice a week.

> >

> > Now, my question is what would you do if it were your child? I'm

> > really reluctant to start the medicine. Should I insist on

getting

> the

> > MRI and/or EEG. What is the path some of you have chosen and how

has

> > it worked out. I just need more information/been there done that

> facts.

> >

> > Thanks a bunch!

> >

>

[Guest guest]

Yes tell the doctors you want a sleep EEG & an open MRI.

My son just had his and no seizures so I'm glad I did not start the

meds. I do behavior & food moderation. Plus I homeschool with k12

> >

> > My son will be 4 in July. He has always had some delays. He had

been

> > attending Montessori school until he became so disruptive that I

had

> > to pull him out. He couldn't even get through a 3 hour day. Some

of

> > the things that are concerning are his speech delay, academics,

and

> > aggression. He will go into these " meltdowns " that can last up to

30

> > minutes and come out of them in a coma state. By coma state I

mean

> he

> > will stop crying, just sit and stare, not talk, and that usually

> lasts

> > 15-30 minutes. He appears exhausted.

> >

> > He went to see a developmental pediatrician and they wanted him

to

> see

> > a neurologist to rule out seizures. We were told they would likely

> > recommend an MRI and EEG. He had that appointment yesterday and

the

> > Neurologist says he has Aspergers. (I've been expecting a spectrum

> > diagnosis, just didn't expect Aspergers since he has so many

> > communication problems) She didn't entertain the idea of seizures

or

> > even make a suggestion of MRI/EEG. She prescribed Clonidine. I

think

> > her logic is that since he has been better/more manageable since

we

> > have pulled him out of school that his meltdowns are likely caused

> > from anxiety. Our meltdowns went from everyday (sometimes two or

> three

> > a day) to once or twice a week.

> >

> > Now, my question is what would you do if it were your child? I'm

> > really reluctant to start the medicine. Should I insist on

getting

> the

> > MRI and/or EEG. What is the path some of you have chosen and how

has

> > it worked out. I just need more information/been there done that

> facts.

> >

> > Thanks a bunch!

> >

>

[Guest guest]

Dear Becky, I would goin ahead and get the MRI and the EEG. My son Zachary is 4 and we had both (MRI & EEG) this summer. The dr. ruled out any seizures. Zachary will be 5 on the 10th of April. He does have Aspergers. HE is on no meds but I think that he would beifit from them. We are on a waiting list to see a specialize on Aspergers, but it is a ways out. Hope

this helped. I would get both if possible. God Bless You and Keep You All , Edmond,Ok >> My son will be 4 in July. He has always had some delays. He had been> attending Montessori school until he became so disruptive that I had> to pull him out. He couldn't even get through a 3 hour day. Some of> the things that are concerning are his speech delay, academics, and> aggression. He will go into these "meltdowns" that can last up to 30> minutes and come out of them in a coma state. By coma state I mean he> will stop crying, just sit and stare, not talk, and that usually lasts> 15-30 minutes. He appears exhausted.> > He went to see a developmental pediatrician and they wanted him to

see> a neurologist to rule out seizures. We were told they would likely> recommend an MRI and EEG. He had that appointment yesterday and the> Neurologist says he has Aspergers. (I've been expecting a spectrum> diagnosis, just didn't expect Aspergers since he has so many> communication problems) She didn't entertain the idea of seizures or> even make a suggestion of MRI/EEG. She prescribed Clonidine. I think> her logic is that since he has been better/more manageable since we> have pulled him out of school that his meltdowns are likely caused> from anxiety. Our meltdowns went from everyday (sometimes two or three> a day) to once or twice a week. > > Now, my question is what would you do if it were your child? I'm> really reluctant to start the medicine. Should I insist on getting the> MRI and/or EEG. What is the path some of you have chosen and how

has> it worked out. I just need more information/been there done that facts. > > Thanks a bunch! > I love a child with Aspergers Please, read, learn, and love KELLY

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