chronic fever following meningitis

[Guest guest]

hi everyone,

I am new to . My daughter, 15, has been sick much of her life

but was not diagnosed with CVID until last October. She began IVIG in

January. Before her dose in Feb, she came down with meningitis. She

seemed to be getting better but after a partial day back at school,

began with chronic daily migraines, leg pain, and temps between 99.5

and 101. Blood work shows normal sed rate and CRT. Hpspitalization for

four days DHE IV treatment greatly helped the migraines but temp and

leg pain persist. Have any of you experienced anything like this with

your children, especially the temp? A rheumatology nurse told me

today that 99.5 to 101 is not a fever (even though most mornings she

runs 97.8...) and WITHOUT SEEING HER that she probably has

fibromyalgia. I have fibromyalgia and I do not run temps unless I am

ill. Her leg pain is enough that it hurts her all the time,

frequently to even walk around the house. She has always been very

athletic, in spite of illness, but not dreads even standing in the

shower and opts for baths.

Could she be fighting viruses since she is still so new to IVIG?? I

really don't know....we are waiting to be seen at UCLA in 2 weeks.

Thanks to anyone with any ideas!

mom of amanda