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We were back at the doctor yesterday. She has been staying with my parents-so

as to aviod being around Maddie-but they are on their way to Florida-my dad was

in the Navy and a ship he was on is being sunk for a coral reef. anyway-I went

to get her yesterday-as she was too tired to deal with coming home on Wednesday

night.

When I got there-her fingers and toes were swollen and she could barley move

them. She also has loss of range of motion in her shoulder and knees. There is

no heat with the swelling-or redness-at this point. The pediatrician called the

infectious disease doctor-and he gave her a whole list of things to run. I

threw the whole immune question out-and she also thinks it is worth looking

into-but wants to make sure we are not missing something first-but it will be

the next step. We did find her old results-and she had great numbers and great

vaccine responses-but she agreed that is at the magic age.

Thanks for all of the prayers and good wishes. The amazing thing-she is all

caught up with what had been sent home so far-and she is determined to go to

school on Monday with her dad and get her biology done-I set my foot down that

they were not cutting open frogs, and other lovely items on my kitchen table!

I will let you all know if the tests find anything-but I am not expecting them

too-have learned that the hard way with Maddie.

Becky in IN-mom to the sick queen-and Maddie, IgA def, low IgG, nk cell

defect, asthma, gerd, mild cp.....

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