Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Hi, everyone! I saw my original rheumatologist today and told him everything! He was great about the fact that I went for another opinion . He said he still has 2 concerns about it being diagnosed as parvovirus: 1) I apparently carry antibiotics that people with Rheumatoid and/or Sjogren's Syndrome carry; and 2) he feels that after 18 months and not seeing any improvement, Parvovirus is usually not the cause. He said I am in a " fuzzy " area since I carry some antibodies that are usually indicative of certain diseases, but don't carry other ones. (you know, like the rest of us!) However, he further feels the main concern is getting me out of pain (I told him the comments the NY guy said about my being tired was due to my kids, etc. and he agreed with me that that is not the problem here). So, he upped the Methotrexate and adjusted my prednisone schedule. He said if this change in meds does not help, he is going to switch me to Enbril next month. Does anyone know -- is Enbril always an injection or is it also oral? (Just curious.) He was really responsive and the more we talked, the more I think he really knows what he is doing. I just have to be really honest with him about what is on my mind -- i.e., is he treating me aggressively enough, if I don't understand why he is doing something. So I'm going to stick with this guy. I like having someone who takes my concerns seriously unlike the " god " in NY. Thanks again for being there guys! Love, PS -- I hope everyone is hanging in there too!! Quote Link to comment Share on other sites More sharing options...
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