Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 osdbmom wrote: > A week or so ago, Dale mentioned that the mother of this child is > going to be working with the IDF? Is that right? > Can I clarify..........several months ago, ( I will admit to being a > discovery channel addict) I saw one story about a child named Isaac > who eventually ended up being dx'd with CVID(I think). It reminded me > so much of savannah at that time, which was far before we knew of her > eventual dx. Especially the eating thing, vomiting, etc. > I just want to be sure I am thinking of the same thing , same > people/story that is being referred to here. > thanks, > Valarie Yup! Same lady. The story is called Isaac's Nightmare and was shown on Discovery Health on their Mystery Diagnosis. But I was told that it is also available on Comcast On Demand -- but we couldn't find it there. If anyone finds it -- I'd love to see it. In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 <<Discovery Health on their Mystery Diagnosis.>> This was on TLC last night. I was on the computer as DH was channel surfing. My ears perked right up when I heard the asthma dx (all 3 of my kids have asthma), then the reflux, etc., etc. I didn't know the outcome, but looked at my DH and said, he has a PID and it was CVID. I think he was dumbfounded that I called it! Anyway, I went on to explain that is what we had tested with Annie in January, and NOW he knows why I was so wigged out!! As I got more in depth with explaining it all to him, he drifted .... That is great that his mom will be working with the IDF! She seems like a wonderful person. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Yes, Isaac's story is about Kathy's son....Kathy is the new volunteer coordinator for the IDF and is very organized and a wonderful advocate. There is a MN family Conference Day this Sat... I will be going. Quoting osdbmom <osdbmom@...>: > A week or so ago, Dale mentioned that the mother of this child is > going to be working with the IDF? Is that right? > Can I clarify..........several months ago, ( I will admit to being a > discovery channel addict) I saw one story about a child named Isaac > who eventually ended up being dx'd with CVID(I think). It reminded me > so much of savannah at that time, which was far before we knew of her > eventual dx. Especially the eating thing, vomiting, etc. > I just want to be sure I am thinking of the same thing , same > people/story that is being referred to here. > thanks, > Valarie > mom to > Olivia, asthma, allergies > Savannah, asthma, allergies, CVID > Donovan, asthma, allergies, CVID, TBM > Brennan, asthma, allergies, CVID,TBLM > > > > > > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the > sole responsibility of the poster and should not be taken as professional > advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: /messages > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 IT was on TLC last night at 10... Quoting Dale Weatherford <dale@...>: > osdbmom wrote: > > A week or so ago, Dale mentioned that the mother of this child is > > going to be working with the IDF? Is that right? > > Can I clarify..........several months ago, ( I will admit to being a > > discovery channel addict) I saw one story about a child named Isaac > > who eventually ended up being dx'd with CVID(I think). It reminded me > > so much of savannah at that time, which was far before we knew of her > > eventual dx. Especially the eating thing, vomiting, etc. > > I just want to be sure I am thinking of the same thing , same > > people/story that is being referred to here. > > thanks, > > Valarie > > Yup! Same lady. The story is called Isaac's Nightmare and was shown on > Discovery Health on their Mystery Diagnosis. But I was told that it is > also available on Comcast On Demand -- but we couldn't find it there. > If anyone finds it -- I'd love to see it. > In His service, > dale > > > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the > sole responsibility of the poster and should not be taken as professional > advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: /messages > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 In a message dated 5/10/2006 9:53:37 PM Pacific Daylight Time, dale@... writes: The story is called Isaac's Nightmare and was shown on Discovery Health on their Mystery Diagnosis. But I was told that it is also available on Comcast On Demand -- ___________________________________________________________________________ happened to see this On Demand one day when he was sick and being a couch potato. He said that it made him feel so good (I think it was more like validated) to see that he is not alone. He also said that he knew the diagnosis before they mentioned it...LOL...my aspiring Doc!! On a teenage note: did he come and get me?? Nope!!! Sandi, Mom to --age 13--CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Hello - There is a conference in MN this Saturday? For IDF? We live in MN and just saw our immuno on Tuesday when Gwynn was in the hospital but I didn't hear anything.... ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Hello to everyone, I certainly would have liked to see it??? Does anyone know if it will be on again...Dawn cvid mother to cvid, asthma, acid reflux, develop. delay and mother to we are just begining with him. sassykay59@... wrote: In a message dated 5/10/2006 9:53:37 PM Pacific Daylight Time, dale@... writes: The story is called Isaac's Nightmare and was shown on Discovery Health on their Mystery Diagnosis. But I was told that it is also available on Comcast On Demand -- ___________________________________________________________________________ happened to see this On Demand one day when he was sick and being a couch potato. He said that it made him feel so good (I think it was more like validated) to see that he is not alone. He also said that he knew the diagnosis before they mentioned it...LOL...my aspiring Doc!! On a teenage note: did he come and get me?? Nope!!! Sandi, Mom to --age 13--CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 In a message dated 5/11/2006 9:51:15 PM Central Standard Time, nwd30@... writes: > He also said that he knew the diagnosis > before they mentioned it...LOL...my aspiring Doc!! Sandi -- Ha ha ha ha ha ha ha ha! That's too funny!!!! (mom to , age 7, dairy intolerant-related GERD -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs... and also to Kate, age 3!, more dairy intolerant but very healthy!) Quote Link to comment Share on other sites More sharing options...
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