Re: Fatigue after physical activity

[Guest guest]

Lynn..its Liz from NJ.....I have had this dragon since 1972..I have found

myself having a flare and kind of denying it..telling myself I'm out of

shape..or whatever....then I wonder why the little old man is running rings

around me at the gym...when I realize it is a real flare ( I don't get all

the symptoms in logical order...sometimes I get the arthritis a month later

?? ) anywho...yea.after activity of sorts I am wasted...at times like this I

try to rest..my body time and time again worked itself out of the flare (

after 6 months or more..grreat ) and when I started to exercise yes I would

take a nap..but I would not feel " sick " ...we have to listen carefully to our

body's...right now I am really trying to do some walking...but there are days

that 7 minutes is way too much..then I will wait..and can do 15 on another

day...patience is an understatement..that we have to practice more than

anything...I would rest up for a week or two..then try whatever you did but

in half...or more...hope this helps us all get strong!! Liz

[Guest guest]

Lynn..its Liz from NJ.....I have had this dragon since 1972..I have found

myself having a flare and kind of denying it..telling myself I'm out of

shape..or whatever....then I wonder why the little old man is running rings

around me at the gym...when I realize it is a real flare ( I don't get all

the symptoms in logical order...sometimes I get the arthritis a month later

?? ) anywho...yea.after activity of sorts I am wasted...at times like this I

try to rest..my body time and time again worked itself out of the flare (

after 6 months or more..grreat ) and when I started to exercise yes I would

take a nap..but I would not feel " sick " ...we have to listen carefully to our

body's...right now I am really trying to do some walking...but there are days

that 7 minutes is way too much..then I will wait..and can do 15 on another

day...patience is an understatement..that we have to practice more than

anything...I would rest up for a week or two..then try whatever you did but

in half...or more...hope this helps us all get strong!! Liz

[Guest guest]

Hi Lynn, I've had many years of therapy at different times with Still's and

usually it was first in a whirlpool and then therapy. Occasionally if they

were too aggressive with stretching I would have pain. Mostly with sciatica

during the waiting period for my hip replacements.

I was always told when flaring to do range of motion slowly as needed but

not to having as much pain as you say. Therapy is supposed to help not

hinder. I'm not saying it didn't hurt but usually didn't stay with me long

after. I hope this helps in any way, Melt

----- Original Message -----

From: " Lynn Dudenhoefer " <lynndude@...>

I have gone to physical therapy and

> then spent several days in bed because my pain really flares up. Is this

> typical for Still's also?

> Thanks

>

> Lynn Renae Dudenhoefer

[Guest guest]

Liz, your advice to Lynn is very good, you seem to have a very practical

attitude about exercise. Someone a while back had a red, green, yellow

light system they used to assess their vulnerability to the dragons

ravages. I hope that perhaps someone can relay that idea to us again.

It seems that most all of it hinges on how honest we are evaluating

where our bodies actually are with the disease, lol. Maybe I am not

making much sense, take care, Louise.

lizdaly101@... wrote:

> Lynn..its Liz from NJ.....I have had this dragon since 1972..I have found

> myself having a flare and kind of denying it..telling myself I'm out of

> shape..or whatever....then I wonder why the little old man is running

> rings

> around me at the gym...when I realize it is a real flare ( I don't get

> all

> the symptoms in logical order...sometimes I get the arthritis a month

> later

> ?? ) anywho...yea.after activity of sorts I am wasted...at times like

> this I

> try to rest..my body time and time again worked itself out of the flare (

> after 6 months or more..grreat ) and when I started to exercise yes I

> would

> take a nap..but I would not feel " sick " ...we have to listen carefully

> to our

> body's...right now I am really trying to do some walking...but there

> are days

> that 7 minutes is way too much..then I will wait..and can do 15 on

> another

> day...patience is an understatement..that we have to practice more than

> anything...I would rest up for a week or two..then try whatever you

> did but

> in half...or more...hope this helps us all get strong!! Liz

>

[Guest guest]

Liz, your advice to Lynn is very good, you seem to have a very practical

attitude about exercise. Someone a while back had a red, green, yellow

light system they used to assess their vulnerability to the dragons

ravages. I hope that perhaps someone can relay that idea to us again.

It seems that most all of it hinges on how honest we are evaluating

where our bodies actually are with the disease, lol. Maybe I am not

making much sense, take care, Louise.

lizdaly101@... wrote:

> Lynn..its Liz from NJ.....I have had this dragon since 1972..I have found

> myself having a flare and kind of denying it..telling myself I'm out of

> shape..or whatever....then I wonder why the little old man is running

> rings

> around me at the gym...when I realize it is a real flare ( I don't get

> all

> the symptoms in logical order...sometimes I get the arthritis a month

> later

> ?? ) anywho...yea.after activity of sorts I am wasted...at times like

> this I

> try to rest..my body time and time again worked itself out of the flare (

> after 6 months or more..grreat ) and when I started to exercise yes I

> would

> take a nap..but I would not feel " sick " ...we have to listen carefully

> to our

> body's...right now I am really trying to do some walking...but there

> are days

> that 7 minutes is way too much..then I will wait..and can do 15 on

> another

> day...patience is an understatement..that we have to practice more than

> anything...I would rest up for a week or two..then try whatever you

> did but

> in half...or more...hope this helps us all get strong!! Liz

>

[Guest guest]

Louise its LizNJ..I like that red yellow green red idea....you would not

believe how many people told me I should not rest...they don't get it...I

dispise when people think we are malindering!!

[Guest guest]

Thanks Liz,

I almost laughed when my pt said I could walk no more than 5 minutes a day.

I used to walk for an hour!!!

Lynn Renae Dudenhoefer

lynndude@...

-On any path that you may stroll,

-keep your angel in your soul!

-- Re: Fatigue after physical activity

Lynn..its Liz from NJ.....I have had this dragon since 1972..I have found

myself having a flare and kind of denying it..telling myself I'm out of

shape..or whatever....then I wonder why the little old man is running rings

around me at the gym...when I realize it is a real flare ( I don't get all

the symptoms in logical order...sometimes I get the arthritis a month later

?? ) anywho...yea.after activity of sorts I am wasted...at times like this I

try to rest..my body time and time again worked itself out of the flare (

after 6 months or more..grreat ) and when I started to exercise yes I would

take a nap..but I would not feel " sick " ...we have to listen carefully to our

body's...right now I am really trying to do some walking...but there are

days

that 7 minutes is way too much..then I will wait..and can do 15 on another

day...patience is an understatement..that we have to practice more than

anything...I would rest up for a week or two..then try whatever you did but

in half...or more...hope this helps us all get strong!! Liz

[Guest guest]

Well Lynn, I am not sure about anyone else, but after I do something really

physical for the most part, I am in dyre pain the following morning so I

think it is safe to say that it can affect stills patients. However, I don't

let it get me down, as long as I'm not working the following day I do what I

want despite the concequences.

Anyways have a good one

Patti~Canada

>From: " Lynn Dudenhoefer " <lynndude@...>

>Reply-Stillsdisease

><Stillsdisease >

>Subject: Fatigue after physical activity

>Date: Fri, 25 Apr 2003 19:57:52 -0500 (Central Daylight Time)

>

>Hello everyone,

>I was originally diagnosed with Chronic Fatigue Syndrome because I get so

>fatigued after any exercise or activity. I have gone to physical therapy

>and

>then spent several days in bed because my pain really flares up. Is this

>typical for Still's also?

>Thanks

>

>Lynn Renae Dudenhoefer

>lynndude@...

>-On any path that you may stroll,

>-keep your angel in your soul!

>

>

>

[Guest guest]

Thanks Patti!

Lynn Renae Dudenhoefer

lynndude@...

-On any path that you may stroll,

-keep your angel in your soul!

-- Fatigue after physical activity

>Date: Fri, 25 Apr 2003 19:57:52 -0500 (Central Daylight Time)

>

>Hello everyone,

>I was originally diagnosed with Chronic Fatigue Syndrome because I get so

>fatigued after any exercise or activity. I have gone to physical therapy

>and

>then spent several days in bed because my pain really flares up. Is this

>typical for Still's also?

>Thanks

>

>Lynn Renae Dudenhoefer

>lynndude@...

>-On any path that you may stroll,

>-keep your angel in your soul!

>

>

>

[Guest guest]

Well your welcome Lynn and have a wonderful day!!!!Hope the sun shines

wherever you are!

>From: " Lynn Dudenhoefer " <lynndude@...>

>Reply-Stillsdisease

><Stillsdisease >

>Subject: Re: Fatigue after physical activity

>Date: Sat, 26 Apr 2003 09:41:46 -0500 (Central Daylight Time)

>

>Thanks Patti!

>

>Lynn Renae Dudenhoefer

>lynndude@...

>-On any path that you may stroll,

>-keep your angel in your soul!

>

>-- Fatigue after physical activity

> >Date: Fri, 25 Apr 2003 19:57:52 -0500 (Central Daylight Time)

> >

> >Hello everyone,

> >I was originally diagnosed with Chronic Fatigue Syndrome because I get so

> >fatigued after any exercise or activity. I have gone to physical therapy

> >and

> >then spent several days in bed because my pain really flares up. Is this

> >typical for Still's also?

> >Thanks

> >

> >Lynn Renae Dudenhoefer

> >lynndude@...

> >-On any path that you may stroll,

> >-keep your angel in your soul!

> >

> >

> >

[Guest guest]

Rest is best when im in pain its hard up five or six times kinda hard to get any

in.Last night i had good sleep and today i feel great, maybe the meth is

starting to help ive only started on 10mgs wedsndays so could be then prednisone

increase.Who knows but no fevers,migrainesjust little joint discomfort and night

sweatsand they are gettin better too.Take care. d.Canada

Re: Fatigue after physical activity

Louise its LizNJ..I like that red yellow green red idea....you would not

believe how many people told me I should not rest...they don't get it...I

dispise when people think we are malindering!!

[Guest guest]

Rest is best when im in pain its hard up five or six times kinda hard to get any

in.Last night i had good sleep and today i feel great, maybe the meth is

starting to help ive only started on 10mgs wedsndays so could be then prednisone

increase.Who knows but no fevers,migrainesjust little joint discomfort and night

sweatsand they are gettin better too.Take care. d.Canada

Re: Fatigue after physical activity

Louise its LizNJ..I like that red yellow green red idea....you would not

believe how many people told me I should not rest...they don't get it...I

dispise when people think we are malindering!!