Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 I think this is what I am supposed to do. Hello my name is Kari I am 26 yrs old my husbands name is who is 32 years old and he is the one that has Stills. He was diagnosed when he was 17 years old. He has been seeing the same Rheumatologist since he was 21 years old-who on his last visit referred him to see somebody else for a second opinion to make sure he isn't missing anything? I didn't go in the room with him so I don't really understand what that is all about. Either way the appointment is for May 7th so we will see what he says. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 > welcome kari and michael. Please feel free to ask anything..we are here/ .MA > > > > I think this is what I am supposed to do. > Hello my name is Kari I am 26 yrs old my husbands name is who > is 32 years old and he is the one that has Stills. & nbsp; He was > diagnosed when he was 17 years old. > > He has been seeing the same Rheumatologist since he was 21 years > old-who on his last visit referred him to see somebody else for a > second opinion to make sure he isn't missing anything? & nbsp; I didn't > go in the room with him so I don't really understand what that is all > about. & nbsp; Either way the appointment is for May 7th so we will see > what he says. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Welcome Kari and . I am new myself and this is a great new home for you. Everyone is very supportive and understanding. They answer questions and offer different insights for everything. Welcome again. Kelley in Colorado Kelley Knight 1400 E Boulder St Colo Spgs, CO 80909 719-365-1154 719-365-6834 fax The mission of Memorial Hospital is to optimize the health and comfort of our patients, their families and the community we serve by providing the best and most sensitive professional care and service. www.memorialhospital.com The information contained in or attached to this electronic message is privileged and confidential, intended only for the use of the individual(s) named above. If the reader of this message is not the intended recipient, or the employee or agent responsible to deliver it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you have received this communication in error, please inform the sender immediately and remove any record of this message. a304@... a304@... 04/29/2003 11:25 AM Please respond to Stillsdisease stillsdisease cc: Subject: hello first email I think this is what I am supposed to do. Hello my name is Kari I am 26 yrs old my husbands name is who is 32 years old and he is the one that has Stills. He was diagnosed when he was 17 years old. He has been seeing the same Rheumatologist since he was 21 years old-who on his last visit referred him to see somebody else for a second opinion to make sure he isn't missing anything? I didn't go in the room with him so I don't really understand what that is all about. Either way the appointment is for May 7th so we will see what he says. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Yep Kari your doin it right jump right in waters warm lol.Your husband has had this illness long time,how is he doin?All kinda new to me just diagnosed oct 2002.Take care. d.Canada hello first email I think this is what I am supposed to do. Hello my name is Kari I am 26 yrs old my husbands name is who is 32 years old and he is the one that has Stills. He was diagnosed when he was 17 years old. He has been seeing the same Rheumatologist since he was 21 years old-who on his last visit referred him to see somebody else for a second opinion to make sure he isn't missing anything? I didn't go in the room with him so I don't really understand what that is all about. Either way the appointment is for May 7th so we will see what he says. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hello Kelley and thanks for the welcome! I used to live in Colorado Springs!! It is beautiful there! Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 He had been doing good. Started on Enbrel back in June 2001 and that seemed to make a difference. We just recently moved and a few days later the high temps and night sweats started. We think it was triggered from the stress of the move, but he still doesn't have his full strength back and it has been about 5 weeks. We will see. Thanks again for the welcome! Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Melt (as in Pattymelt), There seem to be so many nice people here! I keep seeing about a reunion in Vegas-does everyone here meet often? It must be easier to keep everyone straight after you have met them. I'm sorry you have had to deal with Stills for such a long time. I hope you have a good day also. Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hi there Kari; welcome to the group! Your husband has had Still's for a while now. I know that sometimes it's just as hard on our families that love us as it is having it. You and your husband are welcome here and we will try and be your extended family to help in any way we can. Feel free to ask questions and use us to visit anytime you need. My nickname is Melt as in Pattymelt and I have had Still's since 1977. Again welcome and we look forward to visiting more soon. Till then, good day, Melt in Southern Calif. hello first email > I think this is what I am supposed to do. > Hello my name is Kari I am 26 yrs old my husbands name is who is 32 > years old and he is the one that has Stills. He was diagnosed when he was 17 > years old. > > He has been seeing the same Rheumatologist since he was 21 years old-who on > his last visit referred him to see somebody else for a second opinion to make > sure he isn't missing anything? I didn't go in the room with him so I don't > really understand what that is all about. Either way the appointment is for > May 7th so we will see what he says. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hi Kari, where do you live at now? It is very beautiful here. Sometimes a little to much excitement, caught a mountain lion a block and a half away from my house and i live in security, a long ways from the mountains, lol. I'm glad you decided to join the group. Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 I know the high temps and sweats well lol just came out of a 3 week flare myself was down to 5 mgs of pred and it was the only med i was taking other than the didrocal the calcium kit.Now my rhumy has started me on the MTX took 10mgs on weds and my pred was increased back to 15mgs.It is frustrating but i didnt really care the fevers and sweats and the stiffness that comes along with it was more than any1 should deal with.My rhumy did say Enbrel is the caddilac of drugs for this disease,but supposdly for my bluecross to cover it i havta fail 3 other drugs suxx big oh well take care and i hope mike can get his streghth back. d.Canada Re: hello first email He had been doing good. Started on Enbrel back in June 2001 and that seemed to make a difference. We just recently moved and a few days later the high temps and night sweats started. We think it was triggered from the stress of the move, but he still doesn't have his full strength back and it has been about 5 weeks. We will see. Thanks again for the welcome! Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Hello Kari, Last year was our first conference and there have been a few others in regional areas as well. I think everyone is going to try another MI or WI one this summer, I can't remember. Vegas was wonderful and as many as can attend the better. But sometimes we find there may be others in an area and anyone is welcome to invite others to meet. It does create more of a bond than just the computer or telephone lines. Hope you can make one sometime, good day, Melt ----- Original Message ----- From: <a304@...> > Melt (as in Pattymelt), > There seem to be so many nice people here! I keep seeing about a reunion > in Vegas-does everyone here meet often? It must be easier to keep everyone > straight after you have met them. > Kari Quote Link to comment Share on other sites More sharing options...
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