Re: need to vent-maybe OT

April 28, 2003

Patti, one quick question first...are you taking prednisone or anything like

it? What meds are you taking? Did this just come out of the blue? Sounds

like it could be medicine related. I too have had problems with them and

having unexplained sadness, crabbiness, anxiety attacks and crying spells. I

think that it is also just an emotional release that we all have to let out

and when we get full, it comes out in different froms, even anger. I

recommend some soft music therapy, low lights and a nice cup of warm milk.

Maybe some inscense if you have some, lavendar scent has a calming effect.

Glad to hear that the pain has subsided. That is always a blessing.

Take care,

Lorie in Seattle

April 29, 2003

Hi Lorie, I am on Prednisone and have been since August. I am finally down

to 10mg per day. I am also on MTX, Hydroxyzine and Cetrizine. Then I'm on

B12, Ferrous Sulfate and Folic Acid. It didn't just come out of the blue, it

has been happening all along, just last nigt was the first night it affected

another person and I felt really bad about that, but he understand. I do

know that when I used to be on birth control I had the same problem so it

must be drug related. Anyways I am sooooo tired, and I am offt o work now.

Have a wonderful day to one and all oh yea I feel a little better this

morning:) Thanx

Patti

>From: tabbarose@...

>Reply-Stillsdisease

>Stillsdisease

>Subject: Re: need to vent-maybe OT

>Date: Tue, 29 Apr 2003 02:33:18 EDT

>

>Patti, one quick question first...are you taking prednisone or anything

>like

>it? What meds are you taking? Did this just come out of the blue? Sounds

>like it could be medicine related. I too have had problems with them and

>having unexplained sadness, crabbiness, anxiety attacks and crying spells.

>I

>think that it is also just an emotional release that we all have to let out

>and when we get full, it comes out in different froms, even anger. I

>recommend some soft music therapy, low lights and a nice cup of warm milk.

>Maybe some inscense if you have some, lavendar scent has a calming effect.

>Glad to hear that the pain has subsided. That is always a blessing.

>

>Take care,

>Lorie in Seattle

>

April 29, 2003

> Hi Patti,

I don't think this is off topic at all. I havedays and nights like this.

Sometimes I take a benadryl to help me sleep. I hate it whe nI can't shut

down. I try and do my deep breathing and that seems to help sometimes too.

I have had times when I cry for absolutely no reason, and I have never been

a crier. Mom or the boys will ask, " What's wrong? " I don't know!! I am

just sooo depressed.

It does seem to pass fortunately like it came for no reason...my youngest

son and I will laugh at the ridiculousness of it all!! Why are you crying,

cuase I am sad. Why are you sad? I don't know...Why don't you stop?

Ok...lol it doesnt work all the time but it is funny when it does.

Hang in there, it stinks. I hate it.

I have also found that if I wear long pants and socks that totally don't

match my outfit, it is like a little sillines for me all day. I have also

resorted to painting ugly or silly faces on my toe nails and imagine

showing them to people all day. Or building castles with my groceries in

the checkout line .

One must keep ones self amused.

>

Hang in there, again!!1

.

April 29, 2003

I am so sorry you are sad right now..maybe its your meds..are you coming off

prdnisone??Maybe its that time of the month..or maybe you just need to

cry...we are all here for you...hang in there..also...when the body is tired

at night all our fears and anxieties come out..try to wait till the

morning..things can seem so much worse at night...for me they do...before 2p

I feel like 35 after 4p I feel like 95 ??? I.m 47..go figure...hang in

there!!!It was good you wrote to us ! Liz

April 29, 2003

I am so sorry you are sad right now..maybe its your meds..are you coming off

prdnisone??Maybe its that time of the month..or maybe you just need to

cry...we are all here for you...hang in there..also...when the body is tired

at night all our fears and anxieties come out..try to wait till the

morning..things can seem so much worse at night...for me they do...before 2p

I feel like 35 after 4p I feel like 95 ??? I.m 47..go figure...hang in

there!!!It was good you wrote to us ! Liz

April 29, 2003

Hi Patti,

After 25 years off and on with prednisone I KNOW that the drug makes me

''squirlly'' as my kids say. I am not normally a moody person but that

drug sure can make me that way and it also has a tendency to make me

rather paranoid! There have been times my kids have called each other

to say ''Mom's on pred again, be careful!'' Those symptoms do go away

after I get a break from the drug, lol. Hang in there, Louise.

April 29, 2003

Dear Patti,

I can definitely feel the same emotions a lot Patti. There are some days,

that I am just right on edge. I have actually been this way for the past

week, I guess that's why I haven't been on line too much lately. I hate to

bring negative thoughts here sometimes when I am emotional. I know it has a

lot to do with the disease and the meds. I find that prednisone makes me

VERY moody at times. I really hate the stuff, but I can also be on edge

according on how I feel. Right now, there is so many things to take care of

here at home, and I see it, and I just don't have the time, so I get

irritated. I am not feeling good, I have work to do outside and work all

day at my business, come home, make dinner, sit up with the kids while

homework is being done and we are welcoming a new puppy into the house this

week, and I haven't had time to get a dog bed, food and etc., for him. All

the stress is driving my crazy. I just returned from vacation, so I cannot

take a day off. Please vent all you want here. We always want you to talk

about things if you want to. It's just such a wonderful place to come and

visit and talk, and know that others here are going through the same thing

as you. It's so comforting. I am sure that your friend will definitely

understand what you are going through. This disease is so unpredictable,

and I often remind my friends, that I can turn in a heart beat. I can be up

one minute and 15 minutes later, I can be a bear. I hope that today found

you with some warm sunshine and warm spring breezes. Take some special " you

time " tonight and take a nice warm bath, snuggle up with a cup of tea or

coffee and just concentrate on you. You are well worth it. With many hugs

Love, Sue #2

-- need to vent-maybe OT

Hello all and I apologize, if you are in a great mood maybe you should by

pass this email at the current moment. I am so sad tonight. I'm not really

angry I just feel like crying. I was tlaking to a friend of mine and he

never even said anything to me and I was just soooo....horrible to him. He

thought I was mad at him. I can't control this. I feel so sad like all night

and this is just coming out right now. Is this caused by my meds? Does

anyone else feel this way? I need to go to sleep, I have to work in the

morning, but I'm wide awake now and have a ton of thoughts running through

my little pea brain! On a more positive note I'm not in too much physical

pain, just emotionally is all and I can't figure out why. Patti is always so

pleasant! But not tonight, I guess at some point everyone has to fall right?

But anyways Logging off for this evening and hopefully to fall asleep

SAD IN TO

Patti

Please take the time to check out my homepage at

http://www.angelfire.com/hi2/peppermintp

and leave me a message there or just email me back.

Love you all

PattiPike<IMG height=12 src= " http://g

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April 29, 2003