Re: Re: New to this Site - Teens & Therapy

October 16, 2006

Hi ,

Although I cannot offer much advice at this point, except to bring your child

to the p-doc.

I truly can relate to your story.

I myself have ocd and panic disorder, so I figured that one of my kids would

probably have something similar. Little did I know what I'd be dealing with. I

love my kids to death, but OMG, if I knew what was going to happen!!!!

My daughter, now (9), was difficult since birth. I thought it was just

colic,than turned to massive 4-6 hour long tantrums at age 2. To make a very

long story short, she has been diagnosed with ocd, bp, adhd, odd, pdd-nos. The

list is endless. After seeing many top notch specialists and getting all sorts

of neuro psychiatric evaluations, she has been diagnosed with ocd, bipolar, and

multiple other anxiety disorders.

Next my son, who just turned 5,who always seemed to have minimal ocd symptoms

like, echolalia, and lining things up since he was 2.A few months back, he had a

very severe onset of bad thoughts. He was just diagnosed at age 4 with ocd and

mood disorder nos

Now, to top it all off, I have an 11 yr old daughter, who I always thought was

nt, but just showed minimal signs of ocd, has now, on Friday been officially

diagnosed with anxiety disorder and ocd.

I am still in shock, because I didn't realize it was quite as bad as she says.

She has been telling me all weekend all of the rituals she has.

I don't think I can handle any more!

Just wanted to let you know that you are not alone. I read the posts here

everyday, and the people here really are my lifeline. I don't think I could deal

with all this without this support group.

(((((((((((Hugs to you)))))))))

Judy

October 16, 2006

this is not helpful but VERY ironic - I saw a boy with CP coming out of

a van today at the same time as a song was giving me hope (which I

needed after a bad OCD night) anyway - I thought to myself be thankful

she doesn't have cancer etc or have to struggle with physical

disbailites (I have triplet nephews with CP) but again I read somewhere

that at least they can be seen and I really had an awakening -would I

get upset and scream stop sometimes etc if she had a physical challenge

rather than OCD???? and then I remember thinking it weird when my

brother punished one nephew who really couldn't even move BUT they had

to teach him limits and patience too - so as I'm trying to find this

balance of what is OCD and what's her and what should be punished or

corrected so I'm confused guilty etc but I feel the knowledge always

helps us do better I HOPE!!! sorry for babbling and I'm sorry you have

another Cross to bear - my prayers are with you

Eileen

Quoting brendarudan <brendarudan@...>:

> Wow, I can't believe a whole month has gone by before I got a chance

> to write and thank all of you who provided such warm support to my

> message. This site is truly a Godsend and you all are wonderful in

> sharing your experiences, advice and kind words.

>

> LT, with respect to your fear that you share below, I have the same

> panic when I think of my daughter going off to college and either

> forgetting to take her meds or just deciding she doesn't need them.

> As she matures, I think she is gaining a better realization of what

> the meds do for her so I just pray that by the time she goes off on

> her own she will not make any drastic changes.

>

> Speaking of fears, here's one for you. I can't think of anyone

> better to share this with than all of you who can relate better than

> anyone I know (I haven't even shared this with my husband, but

> that's another story). With an acute awareness of what compulsions

> look like, I've noticed some habits in one of my twin 9 year old

> sons recently so I asked him about them last night. What he

> described to me for the next 30 minutes is OCD (several forms I

> believe). What makes this most difficult is that he also has

> cerebral palsy so his life is very difficult in so many other ways

> (physically, cognitively, emotionally...and now add on all that OCD

> has to offer). I am still in disbelief and have not thought through

> how to deal. I think a call to my daughter's psychologist is next...

>

> Any thoughts from those of you with multiple kids with OCD?

>

>>

>> -

>>

>> I also think of down the road a few years when my

>> daughter wants to go to college somewhere. What then? What if

> she decides to

>> just stop meds then? I don't even want to think about it......

>> LT

>>

October 16, 2006

amen to that!!!!!!! i need this place!!!!!!!!!!

eileen

Quoting jchabot <jchabot@...>:

> Hi ,

> Although I cannot offer much advice at this point, except to bring

> your child to the p-doc.

> I truly can relate to your story.

> I myself have ocd and panic disorder, so I figured that one of my

> kids would probably have something similar. Little did I know what

> I'd be dealing with. I love my kids to death, but OMG, if I knew what

> was going to happen!!!!

> My daughter, now (9), was difficult since birth. I thought it was

> just colic,than turned to massive 4-6 hour long tantrums at age 2. To

> make a very long story short, she has been diagnosed with ocd, bp,

> adhd, odd, pdd-nos. The list is endless. After seeing many top notch

> specialists and getting all sorts of neuro psychiatric evaluations,

> she has been diagnosed with ocd, bipolar, and multiple other anxiety

> disorders.

>

> Next my son, who just turned 5,who always seemed to have minimal ocd

> symptoms like, echolalia, and lining things up since he was 2.A few

> months back, he had a very severe onset of bad thoughts. He was just

> diagnosed at age 4 with ocd and mood disorder nos

>

> Now, to top it all off, I have an 11 yr old daughter, who I always

> thought was nt, but just showed minimal signs of ocd, has now, on

> Friday been officially diagnosed with anxiety disorder and ocd.

> I am still in shock, because I didn't realize it was quite as bad as

> she says. She has been telling me all weekend all of the rituals she

> has.

>

> I don't think I can handle any more!

> Just wanted to let you know that you are not alone. I read the posts

> here everyday, and the people here really are my lifeline. I don't

> think I could deal with all this without this support group.

> (((((((((((Hugs to you)))))))))

> Judy

>

October 16, 2006

it is heriditary, so i think it is pretty common to have more than one family

member with it. i see some things in my 3 yo that make me worry, but then i

have to wonder, if that just MY ocd coming out? :0)

sharon

Re: New to this Site - Teens & Therapy

Wow, I can't believe a whole month has gone by before I got a chance

to write and thank all of you who provided such warm support to my

message. This site is truly a Godsend and you all are wonderful in

sharing your experiences, advice and kind words.

LT, with respect to your fear that you share below, I have the same

panic when I think of my daughter going off to college and either

forgetting to take her meds or just deciding she doesn't need them.

As she matures, I think she is gaining a better realization of what

the meds do for her so I just pray that by the time she goes off on

her own she will not make any drastic changes.

Speaking of fears, here's one for you. I can't think of anyone

better to share this with than all of you who can relate better than

anyone I know (I haven't even shared this with my husband, but

that's another story). With an acute awareness of what compulsions

look like, I've noticed some habits in one of my twin 9 year old

sons recently so I asked him about them last night. What he

described to me for the next 30 minutes is OCD (several forms I

believe). What makes this most difficult is that he also has

cerebral palsy so his life is very difficult in so many other ways

(physically, cognitively, emotionally...and now add on all that OCD

has to offer). I am still in disbelief and have not thought through

how to deal. I think a call to my daughter's psychologist is next...

Any thoughts from those of you with multiple kids with OCD?

>

> -

>

> I also think of down the road a few years when my

> daughter wants to go to college somewhere. What then? What if

she decides to

> just stop meds then? I don't even want to think about it......

> LT

>

October 16, 2006

Boy can I understand what you are saying about the line of discipline vs

OCD. I get frustrated with my husband because he just hasn't understood that

OCD is not something that you choose to have. My son does not want to do

many of the things he does. I asked my husband just this week-end that if

our son had cancer would he be so hard on him? However, my pediatrician

tried to explain that it seems cruel at times but that you do have to

discipline to teach them how to handle their anxiety. My therapist has tried

to teach us positive ways to discipline that actually work. I have learned

by his guidance that there is a different way to discipline these kids

because so much is about control. You can't just bark out orders or demand

things and have them respond. You can't do it loudly and anxiously or they

will become more anxious. Sometimes I think it might be easier for someone

with a physical disability because you can see it.

Starting to ramble, but I do understand what you said. It is interesting you

said your brother gets on his child also, I am sure with any struggles as

parents we all get frustrated and have bad days. Lets face it, parenting any

child is a very hard exhausting job and then you add a disability and it

really wears you out. We are perfect and can only do the best we know.

Adele

_____

From:

[mailto: ] On Behalf Of

autumn71A@...

Sent: Monday, October 16, 2006 3:00 PM

Subject: Re: Re: New to this Site - Teens & Therapy