Re: Your pediatrician's response

[Guest guest]

My regular pediatrician thinks I'm nuts and his exact words

were " Parents do these things to make themselves feel better " My

developmental pediatrician who we think is great explained it all to

us and recommended it.

The truth is many pediatricians and/or doctors are hesitant to advise

on this type of thing. Sadly these same doctors think a child turns 3

and bingo starts talking!

denise

> For those of you who talked to the dr before starting the ProEFA,

> what was your dr's response? Just curious to how a conventional dr.

> would respond to an " alternative " method.

[Guest guest]

My doctor told me to try it. He said that he doesn't think that it will

hurt anything and if it works then that is WONDERFUL!!

>From: " Paige " <paigek321@...>

>Reply-

>

>Subject: [ ] Your pediatrician's response

>Date: Sat, 17 Nov 2001 01:59:46 -0000

>

>For those of you who talked to the dr before starting the ProEFA,

>what was your dr's response? Just curious to how a conventional dr.

>would respond to an " alternative " method.

>

>

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[Guest guest]

Hey Paige -

My dr.'s (pediatrician, Dev. Pediatrician, neurologist and SLP) all said the

same thing - it is a natural supplement and won't hurt him - although we don't

think it will help it at all either. Try it if you wish, but don't get your

hopes up.

Well, now that they see where is - they are AMAZED!!

Carnell

North CArolina

www.verbaldyspraxia.com

[ ] Your pediatrician's response

For those of you who talked to the dr before starting the ProEFA,

what was your dr's response? Just curious to how a conventional dr.

would respond to an " alternative " method.

[Guest guest]

Did most of you talk to your pediatrician first or did you just buy the

supplements and try them without talking to anyone in the medical field?

[Guest guest]

I bought them, then I told him. My dr's response was that I was not

going to get his " blessing " for it. He has some areas of concern,

like no long term side effect testing (blah blah). He did say that

he knew the EFA's were good for you, but not sure in what dose. I

just told him I was asking just to make sure he had no reason why

should not try it. He didn't, but I would have done it

anyways. I gave him the first one today! I poked a hole in it, put it

in a little cup, and drew it into an syringe. I just squirted it in

him like any other meds, and he didn't seem to mind. I'm believing

for good results!

> Did most of you talk to your pediatrician first or did you just buy

the

> supplements and try them without talking to anyone in the medical

field?

>

>

>

[Guest guest]

I just bought it..and started on it. Its just a vitamin and I seen no

reason to check with my dr

Diane.........Mommy, Taxi, cheerleader,friend

peacemaker, banker, cook, too 16 (aka ny)

15, 13, 11 (aka Jake),

and 9 (aka Josh) and a special Auntie nanny to Kayleigh 7 months

GOD BLESS AMERICA (fixed it linda lol)

Re: [ ] Your pediatrician's response

> Did most of you talk to your pediatrician first or did you just buy the

> supplements and try them without talking to anyone in the medical field?

>

[Guest guest]

I tried the supplement without talking to my sons Dr. and before he was even

diagnosed with apraxia. When I went to the web site and read what apraxia

was it was my son dead on. I now regret not talking to the Dr. and getting

a fatty acid level done. The Dr. now just thinks he is learning to talk on

his own and said that she has never had a patient with apraxia that they all

eventually talk.( He did not display any of the signs of a delayed speech

problem.) I think this discouraged me from including her in this. I really

wish I would have been in the study but found out about it after I had

started the supplement.

I was with one speech therapist when he just started on it and she felt he

may have apraxia but did not have PROMPT therapy so I switched to another.

Since his new therapist started working with him,his speech has improved so

much. (Certainly in coralation to the EFA's)She said that kids with apraxia

would not improve so fast. I feel this is all so new and from the sounds of

it others have had such great improvement too.

This whole thing can be very frustrating to me trying to figure out what is

best for my son. His speech therapist thinks he has an articulation

problem. Five months ago he wasnt even talking and she did not see him

before the EFA's. I wonder will his motor planning get better with out

intense therapy? Is there a limit as to how far the EFA's will take him? I

continue to still see improvements. Two weeks ago he could say Mom and ee

but together they came out Mayee. This week he can say Mommy. What is most

important to me now is that is talking at all and others are able to

understand some of what he says. I can still see him stuggle for words and

there are many words that he trys to say but are not understandable. The

longer the word the harder. But five months ago I was afraid he would never

talk. I thank God for

[Guest guest]

Hi ,

Thanks for the kind words. I completely agree with your message

about why you wish for proof for the pooh poohers. Martha Carruthers

(sorry Martha if I spelled that wrong) from Georgia, who is part of

this group and " used " to run the Georgia support group, started

her " apraxic " son on ProEFA and weeks later there was such a surge

that nobody knows if he was misdiagnosed and passed on the group to

others. Martha's son's therapist had 2 other apraxic children on her

caseload, and one autistic that also had such amazing results that

she contacted Dr. Katz to help the pre clinical research study.

Clinical research is vitally important-problem is that clinical

research will take years to complete. However, there is something

else we can do as a group within the next few months if enough of us

as a group try the following.

I sent the following message to Liz 's online group and think

it's cool to post it here too.

Liz is tracking her daughter Haley's progress on ProEFA online at

http://kidstalkback.tripod.com/kidstalkback/ What's so cool is that

Liz and my son Tanner's Early Intervention therapist Zimet

CCC/SLP (the one that is referred to in my son Tanner's story in The

LCP Solution book by Dr. Stordy and Malcolm Nicholl - " the lellow

breakthrough " http://www.drstordy.com/stories.html ) live near each

other in, OK- also in Georgia, and are outreaching to help other

parents in that area! Many of you know that has also been a

wonderful help to many of outside of the Georgia area thanks to the

Internet, and she is now officially one of the consultants for the

CHERAB Foundation too!

For any of you that have not EFA supplemented your speech delayed or

disabled child yet-please consider this. All of us that don't

have " proof " wish now that we did tape or record our children's

progress. Here is an idea you may want to consider.

Hi Liz!

You never cease to amaze me, congratulations on your new grouplist

here! Your website is so interesting to read too!

One thing you may not have thought of, but it would be very cool-have

you thought of sending tapes of Haley talking to the talking page?

http://www.debtsmart.com/talk Bilker has even taped Tanner

over the phone if you don't have a good way to tape any other way. I

just thought since you are documenting Haley on the ProEFA-you know,

the proof is in the pudding as they say-or is that the ProEFA is in

the pudding, well something like that.

It's hard for people to believe how quick the changes are. My only

regret is that I don't have tapes of Tanner speaking before I

supplemented him, but when your child only says " mmm " and " ma " you

really don't want tapes of that-you want to protect them. I mean,

who knew that EFAs would work-and as fast as they did. I would have

taped him if I knew -but again, who knew?! Tanner's first taping for

the talking page? He was already on EFAs for around 9 months-no

comparison to before-and his positive and dramatic changes were in

weeks. His story is in the LCP Solution book, which you can read

online at http://www.drstordy.com/stories.html ( " lellow "

breakthrough) Zimet MA CCC SLP -who you know!! -was his Early

Intervention therapist who witnessed it. But I wish I had it on tape-

you know?!

I know you didn't start Haley on ProEFA that long ago though-so it's

not to late to catch the progress in an early stage, and who knows,

maybe you do have some video or audio tape of her prior to ProEFA

that can use. If you do decide to do it, it would be a first,

and you can hyperlink to the talking page once a month or whatever

for updates.

Maybe on your site-and here- you can encourage other parents to do

the same-and to do a tape before ProEFA supplements-and then like a

month after. That would be awesome if we even got 10 or 20 parents

to do that so that people can hear the change for themselves. It

just gives me chills when I hear the " miracle talking " stories-no

matter how many I've heard, and all of us have heard hundreds now!

Keep up the great job of helping Haley, and everyone else too! "

It was great to see some of you at our kid's pre-school Thanksgiving

Feast! Happy Thanksgiving to everyone!