Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Just a quick question. Where do you think is the best place to live in the US with PID? -Valarie you already voiced your opinion for MI! :-) Michigan does sound like a great place with easy to obtain waivers and mileage reimburesement. What state offers the most assistance (Medicaid Waivers, Beckett, etc) for this disorder? But also great medical care? As we continue to do immune workups on all of our kids my husband and I are considering that if we have more than one child with PID we will probably need to move to a different state. Conner does not qualify for Medicaid in Indiana (he either has to be very disabled or medically fragile), even with all of his other health issues. Medical stuff is getting out of hand, we've used all of the equity in our home and have been on the verge of losing everything! We don't qualify for any assistance and the hospitals have not been very willing to work with us. Anyone have any ideas or suggestions? Take care, Mom to Conner (11, Asperger's, mild CP, partial seizures, asthma, GERD, Hashimoto's disease, hypogammaglobulinemia, complement deficiency, antibody deficiency, NK cell defect, and resolved adrenal insufficiency), Hayden (11, PDD-NOS, IBS and moderate hearing loss/aided), Evan (11, asthma and mild hearing loss/unaided), and Kelsey - (9 going on 19!) Please visit us at www.caringbridge.org/in/connersmith Quote Link to comment Share on other sites More sharing options...
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