Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Dayna, I have in the past, but Caelan's EE isn't very bad right now. In fact the new people that we saw said that they don't think he even has it right now (based on nothing I might add, just speculation). He's doing well on just Prevacid for it. There is a group for EE that is pretty good though. You might direct her to them. I haven't had to deal with the more severe effects of EE so I'm not sure how good of a resource I would be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Thanks - Zach, my friend's son has it pretty bad - he's the same age as my daughter, Kate, and he actually was tested after Kate was diagnosed, and we wondered if he had a PIDD - because he had so many sickness. That led her to an immunologist who diagnosed the EE. Thanks for pointing me to the group, I'll tell her. Dayna Re: - Re: EE Dayna, I have in the past, but Caelan's EE isn't very bad right now. In fact the new people that we saw said that they don't think he even has it right now (based on nothing I might add, just speculation). He's doing well on just Prevacid for it. There is a group for EE that is pretty good though. You might direct her to them. I haven't had to deal with the more severe effects of EE so I'm not sure how good of a resource I would be. Quote Link to comment Share on other sites More sharing options...
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