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Re: (Schatz?)- 's mom

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,

's CD 40 ligand was initially abnormal, but the repeat was

negative.....His neutropenia still persists, but is better now. We started

SCIG in December...and he is much better...his IGG trough is now in the 900's

but IGA is 50 and IGM is 49...we are planning a trial off next summer....when

he is 5 and see how the numbers play out.

he is eating, drinking and has gained 3 1/2 pounds since starting scig......no

more mouth sores and a happy little boy.

I'm now working full time..

Quoting <mptatem@...>:

> ,

>

> I was doing a search for Hyper IgM and ran across your post last fall.

> I wasn't yet a part of this group when you posted that message. How is

> ? Did you ever get a diagnosis for him? How is his neutropenia?

>

> Hoping things have improved,

> ~ Tatem

> Mom of Kaitlyn,13 (healthy donor for brothers' double BMT)

> ,10 (XHIM, 1 yr. post BMT @ Duke)

> , 6 (XHIM, 1 yr. post BMT @ Duke)

> www.caringbridge.org/va/tatem

>

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

> sole responsibility of the poster and should not be taken as professional

> advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to: /messages

>

>

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