Re: Re: confused/pandas

[Guest guest]

My ds7, was diagnosed in April. I do remember last year him telling me about bad

thoughts. but they came and went before we even recognized it as a real problem.

Everything came back with a vengeance this year, and did not disappear. I know

he was exposed to strep before this came on, but has no strep antibodies at all.

So, PANDAS was ruled out for him. He did take a course of antibiotics and I

thought he was better. This also came after a traumatic babysitting experience

with a " friend " of ours, no longer a friend, btw. Not terribly bad in terms of

major trauma, he saw the dad slap his little friend across the face (at the

child's birthday party :-( and that seem to be the trigger for this round. He

stayed for two hours after everyone left as they were babysitting him too. So,

that scared him pretty bad. It was the only thing that seemed out of the

ordinary for him at the time. And he still talks about it frequently. It really

effected him deeply. We never spank or hit and he has never seen that before. I

just try to tell myself that something else would have brought it on, but I

don't know.

Back to PANDAS. he was given the antibiotic because the initial swipe showed a

slight positive. But his doc said if he had ever had any strep exposure or this

was strep induced, he would he the titers and has none. It came and went last

year, but looking back, we saw tendencies that pointed to OCD, little things.

The alarming red flag was the bad thoughts. They seem to be here to stay for a

while, though not like the initial onset.

J

mom to Ben 7

Re: confused????

Same thing happend to us... our daughter is 10 yrs old and was having

definite OCD symptoms before she was diagnosed in June of this year

(we didn't know what was happening). As soon as I said we were going

to go to a counselor to understand more about what's going wrong (her

rages were really bad). She magically got better. If a

ritual/compulsion is brought up/talked about, she virtually stops

doing it altogether, except for one or two.

I feel like I'm waiting for the other shoe to drop and am anxious

all the time. Sometimes I feel confused... like maybe she doesn't have

OCD? I know better, its just my way of wishful thinking I guess.

Anyhow, it is summertime now and the stressors are low. We'll have

to see what happens one day at a time. I have chest pain just thinking

about how stressful things might get but I'm trying to live in the

present (its hard).