Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Oh Jules, I have wondered how you are. Not so good apparently and I'm sorry to hear that. We don't have much in the form of money and I am spending the little extra's I have lately on mailing for the gift give away but I do have a suggestion for you. I have for many years shopped at Thrift Stores where there are wonderful savings. Ours here even in our tiny town there are two. One church and one community help center. They sell cute , very nice clothes for 50cents and 1.00 per item. My house is furnished also with Thrift items. I got my two couches last year for 16.00. I give these suggestions with lots of love and if I were smaller in size I would send some clothes. If you tell me what size I would be happy to look out for you some. I'm sorry I can't send cash this month but maybe in a better one where I can scrounge that extra 20. Much love dear, till soon, Melt ----- Original Message ----- From: " JC Rose " <lilac_rose@...> Two months ago I was put on Social Security's " protective payee program. " In other words, my SSDI check goes to a " financial payee " who then pays out my bills and then sends me " an allowance. " > > I just got my second allowance and just want to cry...I have only $138/month to live on! I'm continuing (still) to lose weight (probably due to muscle atrophy) and now, my clothes are barely fitting me. Feel free to call me @ 608-239-9078 if you have questions. Otherwise, if you can find it in your heart to help me out monetarily, here is my address: > > Rose > 300 Silverado Drive #215 > Stoughton, WI 53589-5472 > > I am also being forced to move on the first of April. My address then will be: > > Rose > 321 Dvorak Court #116 > Stoughton, WI 53589 > > All I need is " a little help from my friends. " > > God bless you all, > Jul > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 You're so sweet, Melt! Yes, I'm feeling awful lately. My weight is dropping 4-5 pounds a week, and the docs are tapering me down on the methylpred (which will make my weight loss go faster). Actually, I'm losing muscle mass. The atrophy of my muscles is from my steriod usage and nutritional deficiencies. I'm also going blind with cataracts in both eyes. That, also, is from steroid use. Eye doc told me that I'll probably only make it until May or June and then will have to undergo lens replacements in both eyes. Oh joy! I do go to the thrift-type stores, and have been looking. I can't afford their prices! Once spring is here, I'll head out for garage sales, but now is the problem. I mean, $138/month to live on is darn near impossible! I don't need more stress. That's why they sent me to a protective payee; so I wouldn't be so stressed out about money. We all know what stress does for our health... Appreciate the thoughts! Big hug, Jul lilac_rose@... Stoughton, Wisconsin Re: OT HELP!!!!! Oh Jules, I have wondered how you are. Not so good apparently and I'm sorry to hear that. We don't have much in the form of money and I am spending the little extra's I have lately on mailing for the gift give away but I do have a suggestion for you. I have for many years shopped at Thrift Stores where there are wonderful savings. Ours here even in our tiny town there are two. One church and one community help center. They sell cute , very nice clothes for 50cents and 1.00 per item. My house is furnished also with Thrift items. I got my two couches last year for 16.00. I give these suggestions with lots of love and if I were smaller in size I would send some clothes. If you tell me what size I would be happy to look out for you some. I'm sorry I can't send cash this month but maybe in a better one where I can scrounge that extra 20. Much love dear, till soon, Melt ----- Original Message ----- From: " JC Rose " <lilac_rose@...> Two months ago I was put on Social Security's " protective payee program. " In other words, my SSDI check goes to a " financial payee " who then pays out my bills and then sends me " an allowance. " > > I just got my second allowance and just want to cry...I have only $138/month to live on! I'm continuing (still) to lose weight (probably due to muscle atrophy) and now, my clothes are barely fitting me. Feel free to call me @ 608-239-9078 if you have questions. Otherwise, if you can find it in your heart to help me out monetarily, here is my address: > > Rose > 300 Silverado Drive #215 > Stoughton, WI 53589-5472 > > I am also being forced to move on the first of April. My address then will be: > > Rose > 321 Dvorak Court #116 > Stoughton, WI 53589 > > All I need is " a little help from my friends. " > > God bless you all, > Jul > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Jules, you didn't say what size you are? I once sent Cat some clothes that were too small for me. Let us know ok? Melt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Thanks Jules, I always find the cutest things. Will see what I can do. Love you much and hoping some times for you to feel better. Melt Re: OT HELP!!!!! > > > Jules, you didn't say what size you are? I once sent Cat some clothes that > were too small for me. Let us know ok? Melt > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Hi jul, So sorry to read of all your problems. I never heard of that " protective payee " program. Why did you get put on that?? Also..$138 a month...you don't also have to buy food out of that do you?? Have you checked with your local social services, sometimes they have programs for disabled people with little money. How about like food stamps, would you qualify for those?? a suggestion: Put an ad in your local newspaper briefly explaining about your severe wieght loss due to illness, and that you need clothing..you will have many people donating, because this is getting to be the time of year that they clean their closets, and they'd rather give them to someone they know is in need before they cart them all off to Goodwill. The same for furniture. Sending furniture and/or clothing through UPS or post office would cost too much for most of us who live in other towns or states. Wondering how your liver tests are dong at this time?? Are they still bad?? Hugs, from Central Wisconsin tricia ***************************************************************************** ****************** -- OT HELP!!!!! Hi gang! Sorry I haven't been on much lately. I've been really sick and down I've been reading all the " fun stuff " you guys are " commited to " doing. Or, maybe you all should just be " commited. " LOL!!!! Even that would be a blast. Anyway, this is a hard question to ask (especially of some of my most personal best friends), but I have no where else to turn. Two months ago I was put on Social Security's " protective payee program. " In other words, my SSDI check goes to a " financial payee " who then pays out my bills and then sends me " an allowance. " I just got my second allowance and just want to cry...I have only $138/month to live on! I'm continuing (still) to lose weight (probably due to muscle atrophy) and now, my clothes are barely fitting me. What used to fit looks like a drape on me know. People in my hometown have been remarking a lot lately about how much weight I've lost, especially recently. Well, my problem that I bring to you is that I need to buy clothes. I need to buy furniture (my stuff is VERY OLD and broken or torn - I do patch jobs the best I can). I seriously need some financial help right now. I know we are all not millionaires, but a little bit from a number of you would help me get to a stable and liveable status. Feel free to call me @ 608-239-9078 if you have questions. Otherwise, if you can find it in your heart to help me out monetarily, here is my address: Rose 300 Silverado Drive #215 Stoughton, WI 53589-5472 I am also being forced to move on the first of April. My address then will be: Rose 321 Dvorak Court #116 Stoughton, WI 53589 All I need is " a little help from my friends. " God bless you all, Jul lilac_rose@... Stoughton, Wisconsin [ .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Hey Tricia, " Protective Payee " is through both federal Social Security and county government. I know here in Wisconsin we can get it anywhere. The " payee " at the county level gets your disability checks, makes out a budget, pays your bills and then sends you your " allowance " to live on. I'm still a bit in shock over how I'm going to make it. My " allowance " is for food, gas, clothing, everyday things, cleaning supplies, etc. I don't qualify for foodstamps. Oh, I do have ads up all over (especially my church), but no responses yet (it's only been a couple of weeks). Regarding my high liver function studies, no doc is putting me on anything more. In fact, I'm on a tapering dose of 4mg/month. Have to do the 4mg, because that's the size of the itty bitty tablet. My legs have swollen so much in reaction to the taper, that they ordered me 2 pair of total leg thigh-high TED stockings. Ish...are those a pain, or and so fashionable too. Darned if I'm going to wear them in summer!!!! No actually I'm hoping some miracle will happen and I will get enough to get me by. Still here, Jul lilac_rose@... Stoughton, Wisconsin OT HELP!!!!! Hi gang! Sorry I haven't been on much lately. I've been really sick and down I've been reading all the " fun stuff " you guys are " commited to " doing. Or, maybe you all should just be " commited. " LOL!!!! Even that would be a blast. Anyway, this is a hard question to ask (especially of some of my most personal best friends), but I have no where else to turn. Two months ago I was put on Social Security's " protective payee program. " In other words, my SSDI check goes to a " financial payee " who then pays out my bills and then sends me " an allowance. " I just got my second allowance and just want to cry...I have only $138/month to live on! I'm continuing (still) to lose weight (probably due to muscle atrophy) and now, my clothes are barely fitting me. What used to fit looks like a drape on me know. People in my hometown have been remarking a lot lately about how much weight I've lost, especially recently. Well, my problem that I bring to you is that I need to buy clothes. I need to buy furniture (my stuff is VERY OLD and broken or torn - I do patch jobs the best I can). I seriously need some financial help right now. I know we are all not millionaires, but a little bit from a number of you would help me get to a stable and liveable status. Feel free to call me @ 608-239-9078 if you have questions. Otherwise, if you can find it in your heart to help me out monetarily, here is my address: Rose 300 Silverado Drive #215 Stoughton, WI 53589-5472 I am also being forced to move on the first of April. My address then will be: Rose 321 Dvorak Court #116 Stoughton, WI 53589 All I need is " a little help from my friends. " God bless you all, Jul lilac_rose@... Stoughton, Wisconsin [ . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Hey Jul, I get to wear those lovely stockings and did even when lived in Oklahoma with humidity at 120 degrees. Caroline suggested that I could dye them and even decorate them which I think is a great idea but haven't done yet. My problem with them is to make sure they fit your size correctly. I am so tall that they always fit them short and then they don't function as well. Just wanted to let you know you aren't alone in that department. Love, Melt My legs have swollen so much in reaction to the taper, that they ordered me 2 pair of total leg thigh-high TED stockings. Ish...are those a pain, or and so fashionable too. Darned if I'm going to wear them in summer!!!! > Jul > lilac_rose@... > Stoughton, Wisconsin > > OT HELP!!!!! > > Hi gang! Sorry I haven't been on much lately. I've been really sick and down > I've been reading all the " fun stuff " you guys are " commited to " doing. Or, > maybe you all should just be " commited. " LOL!!!! Even that would be a blast. > > Anyway, this is a hard question to ask (especially of some of my most > personal best friends), but I have no where else to turn. Two months ago I > was put on Social Security's " protective payee program. " In other words, my > SSDI check goes to a " financial payee " who then pays out my bills and then > sends me " an allowance. " > > I just got my second allowance and just want to cry...I have only $138/month > to live on! I'm continuing (still) to lose weight (probably due to muscle > atrophy) and now, my clothes are barely fitting me. What used to fit looks > like a drape on me know. People in my hometown have been remarking a lot > lately about how much weight I've lost, especially recently. Well, my > problem that I bring to you is that I need to buy clothes. I need to buy > furniture (my stuff is VERY OLD and broken or torn - I do patch jobs the > best I can). I seriously need some financial help right now. I know we are > all not millionaires, but a little bit from a number of you would help me > get to a stable and liveable status. Feel free to call me @ 608-239-9078 if > you have questions. Otherwise, if you can find it in your heart to help me > out monetarily, here is my address: > > Rose > 300 Silverado Drive #215 > Stoughton, WI 53589-5472 > > I am also being forced to move on the first of April. My address then will > be: > > Rose > 321 Dvorak Court #116 > Stoughton, WI 53589 > > All I need is " a little help from my friends. " > > God bless you all, > Jul > lilac_rose@... > Stoughton, Wisconsin > > > > [ > > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Hi Jul, There must be a food pantry in town, and that would help some. Hopefully you will get the help you need. So, you are saying you won't be able to be on *any* meds for the disease because of high liver function levels?? You are taking the Medrol?? That's what I'm still on (since 1979) 8mgs a day. I lnow they are difficult to decrease because they come in the 4 mg tablet size. I have broken them in half and even in 1/4 pieces when trying to wean off. (got down to 2 mg once!) The 1/4 mg can hardly be seen! What do you have to take for the pain?? Do you have to pay for your meds too?? Trying to think of what you could do...haven't found that sugar daddy yet I take it?? Seriously that's not a bad idea. Let's get Caroline in on this..she usually has a thousand ideas. " still thinking " ~~tricia~~ ***************************************************************************** ********** -- Re: OT HELP!!!!! Hey Tricia, " Protective Payee " is through both federal Social Security and county government. I know here in Wisconsin we can get it anywhere. The " payee " at the county level gets your disability checks, makes out a budget, pays your bills and then sends you your " allowance " to live on. I'm still a bit in shock over how I'm going to make it. My " allowance " is for food, gas, clothing, everyday things, cleaning supplies, etc. I don't qualify for foodstamps. Oh, I do have ads up all over (especially my church), but no responses yet (it's only been a couple of weeks). Regarding my high liver function studies, no doc is putting me on anything more. In fact, I'm on a tapering dose of 4mg/month. Have to do the 4mg, because that's the size of the itty bitty tablet. My legs have swollen so much in reaction to the taper, that they ordered me 2 pair of total leg thigh-high TED stockings. Ish...are those a pain, or and so fashionable too. Darned if I'm going to wear them in summer!!!! No actually I'm hoping some miracle will happen and I will get enough to get me by. Still here, Jul lilac_rose@... Stoughton, Wisconsin OT HELP!!!!! Hi gang! Sorry I haven't been on much lately. I've been really sick and down I've been reading all the " fun stuff " you guys are " commited to " doing. Or, maybe you all should just be " commited. " LOL!!!! Even that would be a blast. Anyway, this is a hard question to ask (especially of some of my most personal best friends), but I have no where else to turn. Two months ago I was put on Social Security's " protective payee program. " In other words, my SSDI check goes to a " financial payee " who then pays out my bills and then sends me " an allowance. " I just got my second allowance and just want to cry...I have only $138/month to live on! I'm continuing (still) to lose weight (probably due to muscle atrophy) and now, my clothes are barely fitting me. What used to fit looks like a drape on me know. People in my hometown have been remarking a lot lately about how much weight I've lost, especially recently. Well, my problem that I bring to you is that I need to buy clothes. I need to buy furniture (my stuff is VERY OLD and broken or torn - I do patch jobs the best I can). I seriously need some financial help right now. I know we are all not millionaires, but a little bit from a number of you would help me get to a stable and liveable status. Feel free to call me @ 608-239-9078 if you have questions. Otherwise, if you can find it in your heart to help me out monetarily, here is my address: Rose 300 Silverado Drive #215 Stoughton, WI 53589-5472 I am also being forced to move on the first of April. My address then will be: Rose 321 Dvorak Court #116 Stoughton, WI 53589 All I need is " a little help from my friends. " .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2003 Report Share Posted March 6, 2003 LOL, Tricia - a sugardaddy....nope, haven't found one yet (course really not looking). I do use the food pantries, but because of my GI problems (malabsorption syndrome), there is not a lot of foods I can eat. So, I end up taking things back out of the pantry bags and ask that they give it to someone else who can eat it. So far, my present rheumy will only let me be on methylprednisolone. Everything else is MORE toxic to your liver, ESPECIALLY MTX...which worked so well for me. I'm wearing thigh-high anti-embolism stockings now because of the severe swelling of my legs. I don't think they're tight enough, so I'm going back in for a check. I am on MS-Contin twice in a 24-hour period. That does help with the pain more than any other pain med I've been on. I'm pretty satisfied with it. I'm lucky (because of the pilot program I'm on here in Dane County), that I don't have any co-pays for my meds. I do, however, take 15 different medications because of my 16 different diseases. I hate taking all those meds! I did go to Saint Vinny's this morning and found a washer/dryer, living tables, and possibly a sofa; however, I don't have enough money to buy them (much less get them home!). Life sucks, even if you're looking the other direction! Jul lilac_rose@... Stoughton, Wisconsin OT HELP!!!!! Hi gang! Sorry I haven't been on much lately. I've been really sick and down I've been reading all the " fun stuff " you guys are " commited to " doing. Or, maybe you all should just be " commited. " LOL!!!! Even that would be a blast. Anyway, this is a hard question to ask (especially of some of my most personal best friends), but I have no where else to turn. Two months ago I was put on Social Security's " protective payee program. " In other words, my SSDI check goes to a " financial payee " who then pays out my bills and then sends me " an allowance. " I just got my second allowance and just want to cry...I have only $138/month to live on! I'm continuing (still) to lose weight (probably due to muscle atrophy) and now, my clothes are barely fitting me. What used to fit looks like a drape on me know. People in my hometown have been remarking a lot lately about how much weight I've lost, especially recently. Well, my problem that I bring to you is that I need to buy clothes. I need to buy furniture (my stuff is VERY OLD and broken or torn - I do patch jobs the best I can). I seriously need some financial help right now. I know we are all not millionaires, but a little bit from a number of you would help me get to a stable and liveable status. Feel free to call me @ 608-239-9078 if you have questions. Otherwise, if you can find it in your heart to help me out monetarily, here is my address: Rose 300 Silverado Drive #215 Stoughton, WI 53589-5472 I am also being forced to move on the first of April. My address then will be: Rose 321 Dvorak Court #116 Stoughton, WI 53589 All I need is " a little help from my friends. " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2003 Report Share Posted March 6, 2003 I'm sorry Jules, but life really sucks, as you say, when the best man in the world dies and you have two boys to raise by yourself. Life .... when you almost loose your life and then maybe your hand and don't even have a phone. Life really really sucks when you have no insurance to get the medicines that may or may not give you some life back. I feel today is not the day to talk of furniture. That is how I feel today. Respectfully, Melt OT HELP!!!!! > > Hi gang! Sorry I haven't been on much lately. I've been really sick and down > I've been reading all the " fun stuff " you guys are " commited to " doing. Or, > maybe you all should just be " commited. " LOL!!!! Even that would be a blast. > > Anyway, this is a hard question to ask (especially of some of my most > personal best friends), but I have no where else to turn. Two months ago I > was put on Social Security's " protective payee program. " In other words, my > SSDI check goes to a " financial payee " who then pays out my bills and then > sends me " an allowance. " > > I just got my second allowance and just want to cry...I have only $138/month > to live on! I'm continuing (still) to lose weight (probably due to muscle > atrophy) and now, my clothes are barely fitting me. What used to fit looks > like a drape on me know. People in my hometown have been remarking a lot > lately about how much weight I've lost, especially recently. Well, my > problem that I bring to you is that I need to buy clothes. I need to buy > furniture (my stuff is VERY OLD and broken or torn - I do patch jobs the > best I can). I seriously need some financial help right now. I know we are > all not millionaires, but a little bit from a number of you would help me > get to a stable and liveable status. Feel free to call me @ 608-239-9078 if > you have questions. Otherwise, if you can find it in your heart to help me > out monetarily, here is my address: > > Rose > 300 Silverado Drive #215 > Stoughton, WI 53589-5472 > > I am also being forced to move on the first of April. My address then will > be: > > Rose > 321 Dvorak Court #116 > Stoughton, WI 53589 > > All I need is " a little help from my friends. " > > > > > > > > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2003 Report Share Posted March 7, 2003 This may not be popular or looked upon favorably, but as a family, we must always be honest with one another , so please, if you don't like what I am saying, please understand it is coming from the heart and well intentioned....that said... Hi Jul, First off, let me say I have been there, so you don't think I am just spouting off. I have been dirt poor, scared and with two babies. We have used food pantries in the past, we creatively recycled clothes...rubber bands help...we have used the same cushions as bed, couch and romper room...lol...I was in a bad place, it was very dark, so I understand. but the very first thing you need to do is to start looking outward and not in. The more you look in on what you don't have, and how much you hurt and how it is never going to change except for the worse, the more it will. I have found that when I was at my lowest and I started looking out , I found others lower than I that needed me. The more I turned out, the better things began to get. You have been given all that you have, your diseases your challenges your poverty. Now you must decide what to do with them. There are gifts in there, somewhere and it is up to you to decide if you will try to find them or just accept them for what they are on the surface with all their pain and misery. How can you do anything in such pain and with nothing??? I have asked myself that as well. You need to decide every day to do one thing, that is all just one. " Today I will figure out exactly what I need for clothes " or " Today, I will see if I can help out at the soup kitchen for a few hours " or " Today I will see if I can trade these things that are no longer do me any good for what I need. " Maybe there is something you are good at that someone else needs. Maybe you could go and read to an elderly person in a nursing home for a few hours...then while there you may meet someone or learn something that wil help you. Does that make any sense?? I was low, believe me. Now I am working full time, my boys and I laugh all the time. I now have a disease, bad, it led me to all here...great. It has taught me to use my talents NOW and not wait until a better time. Stillls has given me the gift of understanding time and clarity....what has it given you? Hang in there. you are in my prayers. G.otF.M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 , Thank you for your thoughts. However, you don't know my situation. I do use food pantries, but because of one or two of my 16 separate conditions, I am not able to eat a lot of regular (good) food that most can. I have worked very hard all my life and especially when raising my son from the age of 6-1/2 weeks, by myself, no family left to help. This is not an " attitude " situation, this is what my life is right now. I am the most positive person you'd ever met, if you got the chance to meet me. I do help others. It's a no-brainer there. It's great to be on the " otherside " where you've come through and are energized by the journey. I've been there also. I don't feel it necessary to drone on and on about what conditions I have. But, I do know that this list is full of kind and giving people. All I can say is a quote from a Beatles' song - " I can get along with a little help from my friends. " This group is filled with friends. Don't judge or offer advice unless you know the situation. This list is usually a wonderful forum for POSITIVE reinforcement. AND, of course, we are not all the same or have taken the same paths in life. I look to God and my faith to be by my side. Jul lilac_rose@... Stoughton, Wisconsin Re: OT HELP!!!!! This may not be popular or looked upon favorably, but as a family, we must always be honest with one another , so please, if you don't like what I am saying, please understand it is coming from the heart and well intentioned....that said... Hi Jul, First off, let me say I have been there, so you don't think I am just spouting off. I have been dirt poor, scared and with two babies. We have used food pantries in the past, we creatively recycled clothes...rubber bands help...we have used the same cushions as bed, couch and romper room...lol...I was in a bad place, it was very dark, so I understand. but the very first thing you need to do is to start looking outward and not in. The more you look in on what you don't have, and how much you hurt and how it is never going to change except for the worse, the more it will. I have found that when I was at my lowest and I started looking out , I found others lower than I that needed me. The more I turned out, the better things began to get. You have been given all that you have, your diseases your challenges your poverty. Now you must decide what to do with them. There are gifts in there, somewhere and it is up to you to decide if you will try to find them or just accept them for what they are on the surface with all their pain and misery. How can you do anything in such pain and with nothing??? I have asked myself that as well. You need to decide every day to do one thing, that is all just one. " Today I will figure out exactly what I need for clothes " or " Today, I will see if I can help out at the soup kitchen for a few hours " or " Today I will see if I can trade these things that are no longer do me any good for what I need. " Maybe there is something you are good at that someone else needs. Maybe you could go and read to an elderly person in a nursing home for a few hours...then while there you may meet someone or learn something that wil help you. Does that make any sense?? I was low, believe me. Now I am working full time, my boys and I laugh all the time. I now have a disease, bad, it led me to all here...great. It has taught me to use my talents NOW and not wait until a better time. Stillls has given me the gift of understanding time and clarity....what has it given you? Hang in there. you are in my prayers. G.otF.M. Quote Link to comment Share on other sites More sharing options...
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