Re: progress?

[Guest guest]

Hi Kim,

You can do a search on the search engines for Heritage Health Products. It

should pull up several websites to purchase from. I'm actually a

distributor of the products myself, but I would not want anyone to think

that I am just trying to make a profit. My husband and I have actually been

distributors of Heritage products for about 3 years now - long before we

knew anything about the Omega 3 being used for apraxia. Even still, we

started Corey on the ProEFA instead of our own products because of the great

progress notes we were hearing from others. But, when we felt Corey had

reached a plateau we were ready to try something else and decided to try the

Heritage brand of Omega 3. I hope this helps and I wouldn't want to

discourage anyone from trying ProEFA. We saw Corey go from nonverbal to

saying hundreds of words and many 3-5 word phrases now. The articulation is

still a real problem but we have sound!!

Pam

hi pam

i am at the point also thinking my son matthew's progress has come to

a halt on the proefa. he is 3.9 months and has severe verbal apraxia.

proefa took him from being totally non verbal to making all kinds of sounds,

still no words yet though. he has been on proefa since march. i am

thinking of trying something different. where can the heritage health

products omega 3 be purchased? thanks in advance of your response.

kim

mom to matthew..severe verbal apraxia

and 3 others

[Guest guest]

Hi Pam and Kim!

Kim-If your child has not progressed at all since the initial surge

then your child may be one of the minority that will maybe do better

on a different type of formula-maybe just Omega 3 for example. Or

you could always try Efalex-you can buy it at any GNC-or online.

I want to report another type of plateau with Tanner-it's a good one,

but it's still frustrating. Tanner was on Efalex for about a year

and half (from 2.10 till about 4.4) and ProEFA since then (Tanner is

now 5.6 years old) with various attempts to try others along the

way. Tanner had an initial huge surge on Efalex after a few weeks-

and then started improving at a rapid steady rate. The only thing

that would affect that rate was if I switched to another brand. Back

then, there was no ProEFA. I tried a few other brands -and because I

didn't then know the difference between Omega 3 or Omega 6 (they all

were fish oil to me back then) I didn't know why Efalex was the only

one back then that " worked " but I knew that when I put him on any

other formula (I know now they were all pure DHA and EPA Omega 3

formulas) that he didn't progress-and would start showing signs of

frustration. When I took Tanner off completely the one time it was a

nightmare-and I promised him I would never do that again. Tanner is

one of those children that regressed right away-within a week (

Zimet his EI SLP remembers that -it was horrible!) At some point I

started talking to the owner of Nordic Naturals about the

DHA Jr. product they have. I loved the fact DHA Jr. was so child

friendly with the small strawberry flavored capsules -but DHA Jr.

also didn't " work " for Tanner like Efalex. I remember saying to

that " there must be something in Efalex that DHA Jr. and

other fish oils I've tried don't have " . Around October of 2000 was

when told me that they had " their " version of Efalex-except

that they used Borage Oil instead of Primrose Oil. (Not that I knew

what that meant then-but now I know it's 2 different GLA Omega 6

oils) I tired ProEFA, even though I didn't think it would work (I

was stocked up on Efalex-which I then called our " gold supply " )

Well, I was wrong-Tanner had his second huge surge on ProEFA within a

week when he started to consistently say the " k " sound on command

which we were working on for over a year-and within a month he was

telling stories for the first time!

OK-so he continues to progress at this fast steady pace-but

no " surges " -and of course I'm spoiled and also want another " surge "

again. We just reached this point where Tanner is " clicking " in

talking with or without speech therapy-he just gets it. One of his

problems is that he still talks like a baby and says things like " Me

want to do it " Instead of " I " This morning he was talking to me and

I didn't notice he said " I " instead of " me " and Tanner smiles at me

and says, " Mommy, I said I instead of me " Tanner's therapist at

school and his private therapist both agree he's doing amazing-and a

break from private therapy -a speech vacation-is a good idea for a

few weeks or so. There has been no speech homework for me to do with

him at home for the past 6 months - believe me, I keep asking and

both private and school therapists agree he's doing amazing and just

let him be a kid at home.

I sometimes look at the Efalex bottle and look at the dose I used to

give Tanner from that compared to what he gets now. It's frustrating

that the recommended dose on Efalex bottle with the number of

capsules is so high in DHA and GLA, and that's OK-but the recommended

dose on ProEFA of DHA and GLA is so low in comparison -and that's

OK. I wonder why about stuff like that.

Well maybe you guys can let us know things like this too. What are

the doses on the bottles when you switch? I'd like to know

personally. I just wish we all knew the dosage thing better. If we

ask the scientists or the doctors, they can only advice what they

know-and all we can say for sure is what is now OK for baby formula-

which is about the amount of one capsule of ProEFA-which is what I'm

now giving my 5 year old...hmmm.

=====

[Guest guest]

My own personal experience may have some connection with your post and what

[Guest guest]

Dear Pam,

How long was he on the ProEFA before he plateau'd

and have you seen improvement with the Heritage Health

product??

>Deb Lea (mom to Tami 13 and Andy 11)

--- PJ Enterprises <pjent1@...> wrote:

> Hi Kim,

>

> But,

> when we felt Corey had

> reached a plateau we were ready to try something

> else and decided to try the

Heritage brand of Omega 3. I hope this helps and I

> wouldn't want to

> discourage anyone from trying ProEFA. We saw Corey

> go from nonverbal to

> saying hundreds of words and many 3-5 word phrases

> now. The articulation is

> still a real problem but we have sound!!

>

> Pam

[Guest guest]

Hi Deb,

Corey started ProEFA at the beginning of March 2001 and we just switched him

last week to the Omega 3 supplement. We actually saw his progress taper

over the past 2-3 months and really became concerned over the past month.

We have seen improvement with the Heritage product. He seems much more

alert and is trying to talk in sentences but articulation is still a real

problem. We know the Omega products are not an instant cure for Corey but

we do believe they have helped.

Pam

[Guest guest]

Pam, Wow! So you are saying Corey went from nonverbal to talking in

3 to 5 word sentences and 100s of words in just 5 months on

ProEFA?!! (I'm not that good at math-but if he reached a plateau 2

to 3 months ago and you started him in March -and it's only

November/December)

For real, after a month on this other product Heritage -just try

switching him back to ProEFA and see if you see another surge. I

know someone else who switched after blood analysis (Suzanne

Smolyar's daughter ) and she did well-but just recently Suzanne

put back on ProEFA again in spite of what the blood analysis

said she needed and had another surge.

Boy, I thought I was spoiled wanting more-Pam, Corey's is an AWESOME

success story!!!

Just to know-what do Corey's private and school SLPs think of this

almost instant change? I remember the one moved-boy she would have

flipped out-right?!!

When you hear Tanner on the " Talking Page " for the first time that

was after NINE months of Efalex supplementation and I thought he was

doing good! (ProEFA wasn't around then)

I thought when all you guys were talking about plateaus it was

something different. I guess we all want it to happen as fast as it

does in the beginning all the time-I don't know if that is always

possible. (but we can dream can't we?!)

=====

[Guest guest]

,

Corey has had remarkable success! He is such a bright little boy that it is

becoming extremely hard on him to " not " be understood. We do attribute much

of Corey's success to ProEFA and I tell everyone about it. However, he has

also been in therapy since the age of 2 1/2. We worked for 2-3 months just

to get some animal sounds out of him. I remember sitting in the sound proof

booth watching through the two way mirror and crying. It was so hard to see

him struggle so hard just to say " moo " . When I stop and think how far he

has come - it simply amazes me!! We had an absolutely wonderful private

therapist that worked with him 2-3 days per week and I owe much of his early

success to her. She had such a way with Corey and wonderful ideas on how to

help him to learn. She really seemed like part of our family. However, she

moved out of state from us this past May. Since then we have been working

with our school district to get more therapy for Corey provided through

them. He currently gets 2 hours per week but all of it is on 2 days of the

week. We have our next IEP meeting this month and are going to ask for 1/2

hour sessions per day for the four days he attends the pre-k program. We

aren't expecting them to give into this easily but we are going prepared

this time. We have went outside of the school system for independent

testing to obtain diagnosis, prescribed therapy, prognosis, etc. etc..

We've also gotten in touch with a Parent Advocate that is going to go and

support us in our efforts. Anyway, I wanted to clarify that in my previous

message I didn't want people to think that we had not seen results with

Corey on ProEFA. We have seen remarkable results. Not only with Corey's

speech but also with his behavior. He was having the most horrible tantrums

that I had ever seen. Very uncontrollable and almost to the point of

violence before ProEFA. He still has a few tantrums but nothing like they

used to be. And yes, we may switch him back to ProEFA eventually.

But, we wanted to give this a try for a little while. Corey's vocabulary is

probably several hundred words now. The problem is articulation. The more

words he tries to put in a sentence the more jumbled the words become.

That's when the frustration really sets in. Anyway, I really appreciate all

the work you do for us and for providing all the information that you do.

It's so wonderful having so many people that understand what we're going

through and others that have already gone through it. I really enjoy and

look forward to reading every message from Mustafa as well as

yourself. It's never easy to blaze the trail but we are thankful that

others are doing it for us!

Pam, mother to Corey 4 yrs.

>Pam, Wow! So you are saying Corey went from nonverbal to talking in

>3 to 5 word sentences and 100s of words in just 5 months on

>ProEFA?!! (I'm not that good at math-but if he reached a plateau 2

>to 3 months ago and you started him in March -and it's only

>November/December)

>For real, after a month on this other product Heritage -just try

>switching him back to ProEFA and see if you see another surge. I

>know someone else who switched after blood analysis (Suzanne

>Smolyar's daughter ) and she did well-but just recently Suzanne

>put back on ProEFA again in spite of what the blood analysis

>said she needed and had another surge.

>Boy, I thought I was spoiled wanting more-Pam, Corey's is an AWESOME

>success story!!!

>Just to know-what do Corey's private and school SLPs think of this

>almost instant change? I remember the one moved-boy she would have

>flipped out-right?!!

>When you hear Tanner on the " Talking Page " for the first time that

>was after NINE months of Efalex supplementation and I thought he was

>doing good! (ProEFA wasn't around then)

>I thought when all you guys were talking about plateaus it was

>something different. I guess we all want it to happen as fast as it

>does in the beginning all the time-I don't know if that is always

>possible. (but we can dream can't we?!)

>=====

>

[Guest guest]

>Hi.....

> I got a message to the gropu but what was the reference to progress.....

> it makes no sence? I tried to send you the message and it always sends it

>to the group. I hate to waist space on everyones computer when i have a

>one on one question?

> What about progress?

>

> Pray For Spring!!!

> Marguerite

>Status: U

>Date: Fri, 10 Jan 2003 15:49:36 -0500

>From: " UCP Notification System " <notify@...>

>Subject: A new document has been added to UCP

>

>

>

>A new document, UCP Seeks new CEO/Executive Director, has been added to

>the UCP site.

>You may review this document at http://www.ucp.org/document.cfm/4266.

>

>Thank you.

>----------------------------

Marguerite,

The progress is that UCP is seeking a new CEO/Executive Director. Hopefully

this will lead to a change in direction for UCP.

[Guest guest]

>

> The front 1/2 of my tongue is now free of the whitish coating. 

> Does that indicate progress? 

> And if so, is it also indicating that I'm about " 1/2 way " there?

+++Hi there. Is your name ? Are you new?

It means you are having a little bit of progress, but having your tongue free of

yeast does not mean you are " 1/2 way " there, since that is only one symptom.

It takes 1 month of natural healing for every year you've been unhealthy, and

for most people today that is since before they were born.

During your healing your body will be " retracing " each and every time you've

been unhealthy, which includes every symptom, illness, disease, organ

malfunction, injury, etc. - to understand retracing see " Understanding Retracing

& Healing Reactions " http://www.arltma.com/RetracingDoc.htm

Also see these articles about Natural Healing:

http://www.healingnaturallybybee.com/articles/menu1_2.php

The best in health, Bee