Re: /question/Dale

[Guest guest]

Pattie,

Calvin does not have OCD issues. Initially, I did plan a special activity for

his SubQ time when we first switched over. I made sure that it was something

that he would look forward to. The nurses at our IV site used to treat him like

a prince....so I wanted to make sure that he still felt special enough to look

forward to infusions. Eventually we have gotten so that we often just did our

usual stuff during infusion and he is cool with that now.

Also, I use a tootsie pop for the actual poke. I have continued this until

the present. Any treat that would last a little while would work for that. I

also emphasized that, since they wouldn't have to search for a vein that the

injections are a lot quicker and fool-proof. The biggest ouch is really when

the meds are first going in and the skin has to stretch a little to accomodate.

This is what I did to make the change a little smoother. Hope all goes well

as you start out SubQ. WE have loved it and wouldn't go back....it has been a

blessing.

My .02

Fisher

mom of Calvin, almost 5, XLA

Pattie Curran <catholicmomof3@...> wrote:

those of you who have switched to subQ-- how did your kids do during

transition? Anyone with kids that have OCD tendencies try this? It'll take me

forever and a HUGE bribe to get him to go for it. is already sold on the

idea-- all I had to tell him was that we'd be at home and he'd likely have less

headaches and vomiting! ph doesn;t care about ANY of that-- he cares about

routine. I have to talk to him about it to get him used to the idea otherwise

it will be a nightmare to switch. Tonight he asked, " Why can't the doctor come

here and do it? I really only want you to poke me in my hand or arm. " He feels

less awful than post-infusion, but still has enough pain to require Motrin.

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