Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 In a message dated 3/24/2006 8:35:32 P.M. Eastern Standard Time, catholicmomof3@... writes: He has OCD tendencies and he counts everything. Pattie, I had to laugh when I read this part because my middle child has mild Tourette's syndrome with mild OCD. This brought back so many memories! He was a constant worrier when he was younger (he is 20 now) He would ask us the same questions over and over, you have to repeat them you know? lol...lol. He probably will do this for a LONG time. My advise is just keep reassuring him! BTW, if it's mild OCD, it does get better with age:-) Janet mom to Brittany CVID age 15 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 In a message dated 3/24/2006 9:41:40 P.M. Eastern Standard Time, catholicmomof3@... writes: he functions and learns.and does well. He is an amazing kid-he just counts everything, figures out tax on items as we shop...... LOL, is right. was a straight A student in school. Always worried about being late, never was. Today he is in college and has a B average. Never misses a day and is NEVER late. LOL. He still has very mild Tourette's and OCD. The Tourette's usually acts up when he is under stress now. He will clear his throat over and over or blink his eyes. It has gotten better with age. OCD, he smells everything....LOL.....repeats silly things to the little ones, over and over again! But if you didn't know he had Tourette's with OCD you would never know! Even his teachers never noticed! I better get to bed, it's 2:08 am and Brittany has IVIG in the morning, and hers takes 7 hours. Janet mom to Brittany CVID age 15 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 In a message dated 3/24/2006 9:54:15 P.M. Eastern Standard Time, jmfritze@... writes: It sounds weird, but when I am nervous, I will type in the air whatever is being said, as though I was on a keyboard. I have a friend that does this, only she does it with her toes! Janet mom to Brittany CVID age 15 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Thanks, Janet. As far as we know it is mild. We brought him to OT and a psychologist and they would only say that he has " OCD tendencies " .when he was younger we brought him to a developmental ped who said it could be OCD tendencies or autistic tendencies (they can appear to be the same when they are younger) anyway, he functions and learns.and does well. He is an amazing kid-he just counts everything, figures out tax on items as we shop...... LOL, is right. Pattie, I had to laugh when I read this part because my middle child has mild Tourette's syndrome with mild OCD. This brought back so many memories! He was a constant worrier when he was younger (he is 20 now) He would ask us the same questions over and over, you have to repeat them you know? lol...lol. He probably will do this for a LONG time. My advise is just keep reassuring him! BTW, if it's mild OCD, it does get better with age:-) Janet mom to Brittany CVID age 15 _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Patti, I had mild OCD tendencies when I was a kid, used to drive my mom nuts making her turn the light on and off a zillion times a night. It still comes 0ut when I am stressed. But I did mostly grow out of it. I was a counter too! I would suggest helping him talk through it. I would acknowledge that, while not likely, blood in his line is possible, as it is with any poke. And tell him what would happen if it did happen. Reassure him it is not likely. Then maybe give him something else to OCD on, as weird as that sounds. Is there something he likes to count? I know it seems counterintuitive to encourage the behavior, but is a coping mechanism for stress. Acknowledging his fears will help him out. I don't remember how old he is, but maybe write out the answers, or use pictures to remind him he has never had blood in his line. Something concrete may help. It just sounds to me like he needs to have his anxiety redirected to another coping outlet, rather than asking a zillion questions. When I got older and realized people noticed when I did repeatative things, I began typing when I was anxious. It sounds weird, but when I am nervous, I will type in the air whatever is being said, as though I was on a keyboard. The finger movements are so minor nobody notices, and it was enough to calm my nerves. Weird what the brain/body will do to cope, isn't it? Ana 14 mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Patty, Katy was probably 15 or so when the nurse did something funny with her IVIG and blood shot up the tubing and all the way up into the bottle. Katy was totally freaking out. Afterward we talked about it and she said that it just really scared her -- she was afraid she would bleed to death! I assured her that she had more blood in her than that and assured her that it was only a tiny amount of blood -- but because the tubing is so tiny -- it just looked like a lot -- but agreed that it was GROSS. We hung a sheet over the pole so none of us had to see the blood tinged IVIG going back into her. That said: make sure that he knows that it doesn't hurt when that happens and that he won't lose all his blood! Kids have funny thoughts in their heads sometime and need us to see inside their heads! Best wishes, In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Thanks, Dale! I never thought of that! I should have because when (our oldest) had blood drawn for HLA typing (in case we go to transplant-done after they had increased blasts)- thought that he was going to die when they drew his blood by taking all of his blood. Peace Be With You, Pattie Don't let your past dictate who you are now, but let it be a part of who you will become. _____ From: [mailto: ] On Behalf Of Dale Weatherford Sent: Friday, March 24, 2006 11:06 PM Subject: Re: kid coping question Patty, Katy was probably 15 or so when the nurse did something funny with her IVIG and blood shot up the tubing and all the way up into the bottle. Katy was totally freaking out. Afterward we talked about it and she said that it just really scared her -- she was afraid she would bleed to death! I assured her that she had more blood in her than that and assured her that it was only a tiny amount of blood -- but because the tubing is so tiny -- it just looked like a lot -- but agreed that it was GROSS. We hung a sheet over the pole so none of us had to see the blood tinged IVIG going back into her. That said: make sure that he knows that it doesn't hurt when that happens and that he won't lose all his blood! Kids have funny thoughts in their heads sometime and need us to see inside their heads! Best wishes, In His service, dale _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 , it definitely comes out when he is stressed. When he fell down the stairs (he was okay) we all came running to him and all he kept repeating over and over was, " Our last house had 15 stairs and this one has 14, of course the basement here has 15 if you count the landing. " Just over and over and over and over.. we just go with it and hug him. He is a special kid and we were so glad he wasn't hurt. He is 8 BTW. Yes-he is 8 and figures out the tax as we shop.if he sees items out of place as we shop he straightens them. His bed has to be JUST so.sheets folded back a certain way and pants can only go in one drawer, shirts in another and socks in one and underwear in one.the rest of the room? Total mess.as long as those things are in order he is fine. He counts more when he is nervous and is very repetitive. When he had his spinal MRI to r/o tethered cord he had a wrist band with a patient number on it and the nurse was about to loose it because he kept repeating the number over and over and over and then saying, " that is NOT our phone number, " and would read the number all over again. He has to know the number of pages there are in a book before he reads it. the list goes on. At church he counts the people and goes crazy when they move..he counts lights, ceiling tiles..cars that pass us, baskets that pass us in a store. For a long time he counted the number of fire hydrants between here and the YMCA-did this for months until he was sure he had the correct number and had not missed one. He rode with my parents in their car once and my mom called me on my cell phone to ask if he always counted the cars that passed because it was driving her crazy as he was on 500 and something. Peace Be With You, Pattie Don't let your past dictate who you are now, but let it be a part of who you will become. _____ From: [mailto: ] On Behalf Of jmfritze Sent: Friday, March 24, 2006 9:54 PM Subject: Re: kid coping question Patti, I had mild OCD tendencies when I was a kid, used to drive my mom nuts making her turn the light on and off a zillion times a night. It still comes 0ut when I am stressed. But I did mostly grow out of it. I was a counter too! I would suggest helping him talk through it. I would acknowledge that, while not likely, blood in his line is possible, as it is with any poke. And tell him what would happen if it did happen. Reassure him it is not likely. Then maybe give him something else to OCD on, as weird as that sounds. Is there something he likes to count? I know it seems counterintuitive to encourage the behavior, but is a coping mechanism for stress. Acknowledging his fears will help him out. I don't remember how old he is, but maybe write out the answers, or use pictures to remind him he has never had blood in his line. Something concrete may help. It just sounds to me like he needs to have his anxiety redirected to another coping outlet, rather than asking a zillion questions. When I got older and realized people noticed when I did repeatative things, I began typing when I was anxious. It sounds weird, but when I am nervous, I will type in the air whatever is being said, as though I was on a keyboard. The finger movements are so minor nobody notices, and it was enough to calm my nerves. Weird what the brain/body will do to cope, isn't it? Ana 14 mo _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 Glad I'm not the only one! THanks! > > > In a message dated 3/24/2006 9:54:15 P.M. Eastern Standard Time, > jmfritze@... writes: > > It sounds > weird, but when I am nervous, I will type in the air whatever is > being said, as though I was on a keyboard. > > > I have a friend that does this, only she does it with her toes! > > > > Janet mom to Brittany CVID age 15 > > > > > Quote Link to comment Share on other sites More sharing options...
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