Bloodwork Confusion

[Guest guest]

I just called Cole's immuno this morning to see if he should have

another round of bloodwork before his appointment April 11. At our

appt. in October (when Cole was diagnosed), the immuno put him on

the profalactic antibiotic an said we would keep him on it until the

April appt. at which time we would check to see if his levels of IgA

had improved on their own. Well, now I am a bit confused.

The nurse said she would be happy to check with the Dr. to

see if he wanted a repeat blood draw similar to the one in October.

Evidently he hadn't requested it in his notes. She told me that at

Cole's age (3 yr.) the bloodtests for titers and antibody

deficiencies are extremely innaccurate and unreliable and perhaps

that is why Dr. wants to " wait and see " how Cole does. HUH???? It

looks like a majority of you guys have PID pumpkins who have been

tested, diagnosed and properly treated at the tender age of 3 or

younger. Am I wrong???

The immuno nurse will be talking to Dr. today and calling

me back. I told her that Cole continued to have breakthrough

infections from December until just a couple of weeks ago.

Obviously something isn't quite right with him. There is also the

issue of chronic loss/lack of energy and appetite that seem to

plague him.

How accurate is the testing they do on children? What tests should

I be looking for for my son? Thanks for any input you might have!

-Rogena (Mom to 4 boys, including Cole -IgA & IgG Subclass Def,

GERD, possible Celiac)