Chiapetta

[Guest guest]

,

Lino Lakes is close! We have had bad luck with GI docs too, they

did a work up, found some problems and said, we don't know. Who do

you see at the U of MN? We are going to the immunology clinic at

Children's- St. . The main doc is Hoyt, but we see one of

the CPN under her. We are waiting on the recheck of her vaccine

responses too, get them back on the 15th. I'm thinking of getting a

second opinion but not sure where. Is your daughter on Ig therapy?

I'll drop you an email too. Nice to talk to someone in the area, if

you want to give me a call my number is 651-731-2032.

Fritze

Hello all,

>

> Thank you for letting me join this community. Dayna directed me

to

> it and I can already see it will be very helpful. I live in

> Woodbury, MN and am mother to a one year old little joy named

Ana.

> She was born in Waconia, MN 10 days early, I had toxemia. She

was

> healthy until around 11 weeks. Started then with croup. At 3

> months hospitilized with RSV for a week. That was followed by 2

> pneumonia's. I started asking questions about this being normal

and

> was told it was just bad luck. Luckily had a very good peds doc

who

> humored me by checking Ana's immune system at six months. She

came

> back with very low IgG levels. She refered us to an allergist

who

> said it was normal at six months. We went to a different

> immunologist at nine months and they rechecked, her levels had

> dropped further. Since six months she has had ongoing sinus and

ear

> infections. Off of the antibiotics for less then 3-4 days before

it

> comes back every time. We are now waiting for 12 month recheck

> results then I will push for them to do more for her. She is not

> growing. Has dropped from the 75% at six months for weight to

below

> the 10% at 12 months. Less then a pounds in the last six

months.

> They say she has dairy allergy, though it doesn't seem like a

true

> allergy to me, and all the allergy tests were negative. But she

and

> I (she is still nursed at night) are off dairy. She loves to

read

> books and cuddle. Very lovey little girl, my joy. I look

forward

> to swapping ideas with everyone and can not express how thankful

I

> am going to be for the support from people who understand. What

a

> Godsend! Hope to talk to each of you soon.

>

> Fritze

> mom to Ana Marie, my angel

>

>

>

>

>

>

> This forum is open to parents and caregivers of children

diagnosed with a Primary Immune Deficiency. Opinions or medical

advice stated here are the sole responsibility of the poster and

should not be taken as professional advice.

>

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