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Hello All,

My son was given the preliminary diagnosis of XHIGM. We see the a specialist

at children's hospital in Seattle on 12-20-05. I was hoping many of you could

chime in and tell me questions you would make sure you asked the specialist and

what labs you would ask the doctors to do. Also I have read that some of your

appointments take six hours. Do you think this appointment might be that long?

Just trying to get all our ducks in a row. We live about four hours away and

must drive over a snowy pass.

na

Crew 5 -acid reflux -failure to thrive

Brek 2 -acid reflux -attachment disorder due to hospitalization from

Salmonella

Apollos 1- acid reflux-XHIGM and cute as a bug

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