another one

[Guest guest]

well, the crankiness never lies, Savannah is now offically coughing

with a low peak flow. this is so frustrating. I wouldnt worry so much

if she didnt have the PID problem, plus she cant take prednisone

anymore, so once her asthma gets going, there is no stopping it, and

generally ends up with SAPS in the low 30% or lower. So we JUST got

the lung percussion thing in January and I only used it at the

hospital while she was admitted and while they taught me. I am not

totally sure if I am supposed to just start using it, or wait until

she is full of mucous in her lungs to do it. I am sick to death of

these kinds of decisions.

And, Pattie, was it, who asked why people still come to church sick? I

can tell you. They think it makes them extra holy. I know this b/c I

have been told by several very extra holy people, they have never

missed a sunday, not even when they had pnuemonia, etc. Its something

to be proud of, dont you know that? As for us, I beleive we will be

attending Bedside Baptist tomorrow morning. I dont know what we have,

but I sure as heck dont want anything else.

Dale, thanks for the further explanations. I get it!!thanks. I will do

that........ I know what you mean. Nothing seems so important until

your kid cant have it, then its a MUST. My kids have never believed in

the Easter Bunny, they know its us that sets out the baskets, but I

want that darn bunny!! I think though, they will be happy with the

home made ones. Something different, anyhow. After EAster, they would

probably like to make them with me.

Yesterday, the kdg thru 3rd grade got a surprise of Cupcakes and a

visit from the Cat in the Hat--- I had no idea this was happening and

they are usually so good about telling me about it and making

allowances for savannah, apparantly some well intentioned staff

brought the cupcakes for the kids, and after 1 hr speech therapy, 2

drs appts for the boys, and suddenly in the middle of that remembering

I was supposed to pick up my great niece from school at 1120, I raced

back to the school, only to rush past the small office door and spy

those cupcakes.........I stopped and asked which grades they were for

and WAS I ever irritated and told the vice prinicipal so. They were

rummaging around in their own desks trying to suddenly come up with a

treat for savannah, well, with an appt with my accountant at 1200, I

flew over the the gas station and found some oreos and junior mints

she could have and FLEW back to the school and dumped them in the

staff members lap, hollered savannahs name and room number at her and

FLEW back into the car and onto the expressway(again!). Its just

things like that, I know she is still getting a treat, but I want her

to have similar treats to the other kids, even for bake sales, I stay

up all night baking new treats she hasnt seen, sneak them to school

with a little dairy free sign, all so my kid can take MY quarter and

buy back what I just spent all night baking. makes no sense, I know.

But I cant seem to stop myself.

On the lines of dairy free, Brennan was a major lover of mac and

cheese. I have waited a long while to re-introduce " fake " cheese so he

might forget what the real thing was like, and he LOVES it. So I found

the type of non dairy cheese that is like velveeta, the kind you can

melt and make a sort of mac and cheese with, but I am not sure how to

go about that. Would you add rice milk to that and then stir it into

the noodles? Anyone tried this before? I have to admit, I have never

made the real stuff, just the pasta and powder cheese and I dont know

how to do it this way.

Thanks for all the support andinfo today. It really does help.

Back to nebbing away!!valarie