Had SSI appointment today - little bit of a rant

[Guest guest]

My son, Owen, was diagnosed with Autism Spectrum Disorder, as well as

Communication Disorder, last month. I had my appointment today at the

Social Security office to apply for SSI. I was kind of in awe to hear

that it could take up to 6 months before I will hear anything.

I guess I should have expected that, but I had EVERYTHING possible

with me, and gave them copies. The reports from the speech therapist,

school psychologist, and the preschool teacher. I know that they have

to have someone look over all of it, but my goodness - I practically

SPELLED it out for them, and all she could tell me was " it looks like

he'll qualify. "

I should be thankful that this is all that is frustrating me right

now. LOL. He's been in pre-school for 2 weeks now, and already I'm

seeing little bits of progress here and there. But, all it's been

is " hurry up and wait " since I tried to get everything going (with

testing and such) since last Spring.

[Guest guest]

>

> My son, Owen, was diagnosed with Autism Spectrum Disorder, as well as

> Communication Disorder, last month. I had my appointment today at the

> Social Security office to apply for SSI. I was kind of in awe to hear

> that it could take up to 6 months before I will hear anything.

>

> I guess I should have expected that, but I had EVERYTHING possible

> with me, and gave them copies. The reports from the speech therapist,

> school psychologist, and the preschool teacher. I know that they have

> to have someone look over all of it, but my goodness - I practically

> SPELLED it out for them, and all she could tell me was " it looks like

> he'll qualify. "

>

> I should be thankful that this is all that is frustrating me right

> now. LOL. He's been in pre-school for 2 weeks now, and already I'm

> seeing little bits of progress here and there. But, all it's been

> is " hurry up and wait " since I tried to get everything going (with

> testing and such) since last Spring.

>

When I applied for my sons SSI they also told me that it could take that long,

but in most

cases it does not. I applied on Sept 4, 2005 and I got my first check even

before I got my

approval letter on Oct. 20. The intake worker isnt the one who makes the

decision they

just take your info, I had the same questions, Also don't let people tell you

these

ridiculous storys about how many years they had to wait because they go by a

totally

differant criteria for children than they do with adults. I can't imagine you

wont get

approved. Good luck.

[Guest guest]

To get SS for a child, that child has to be severely disabled and the disability has to severely impact that child's life.

Also, that child has to have less than 2000$ in their name for accounts and money. The parents can not have a very high income at all either.

My son is 17. He has had ADHD and Aspergers diagnosises a long time. I never went to SS, but called once and asked many people as well as I belong to a few SS D lists online and found out he probably will not be able to get it. He might when he turns 18.

I am still not sure though.

in IL

[Guest guest]

To get SS for a child, that child has to be severely disabled and the disability has to severely impact that child's life.

Also, that child has to have less than 2000$ in their name for accounts and money. The parents can not have a very high income at all either.

My son is 17. He has had ADHD and Aspergers diagnosises a long time. I never went to SS, but called once and asked many people as well as I belong to a few SS D lists online and found out he probably will not be able to get it. He might when he turns 18.

I am still not sure though.

in IL

[Guest guest]

I was told our kids would not qualifiy for SSI. My daughter has

Aspergers, ADHD, and Anxiety. Is SSI income based? I am really unsure

of this. I am so worried about losing my job because of all the days I

must take off for her. I even have a hard time making phone calls at

work and all of the phone calls I make are for my daughter. At lease

my daughter was approved for medical. I will see how long that lasts.

Please keep be updated on this and let me know what they decide.

Good Luck,

[Guest guest]

Good Luck with SSI. is 18 and we're on our 6th ReApplication and Appeal! SSI keeps telling us that AS IS NOT a disability!

K

My Size Barbie Fashions by Rainysnana can be found at my store at The Doll Pagehttp://www.rainysnana.com

[Guest guest]

You are lucky, it might seem. I’ve

tried to get SSI for my autistic son with all the paperwork and they did not

even look at his charts and tests they just plain denied me and I’m a

single mom. Did not EVEN consider his medical expenses. If you know a way

around that I’d be grateful to hear it!

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of

Sent: Friday, September 29, 2006

3:53 PM

Autism and Aspergers Treatment

Subject: Had

SSI appointment today - little bit of a rant

My son, Owen, was diagnosed with Autism Spectrum

Disorder, as well as

Communication Disorder, last month. I had my appointment today at the

Social Security office to apply for SSI. I was kind of in awe to hear

that it could take up to 6 months before I will hear anything.

I guess I should have expected that, but I had EVERYTHING possible

with me, and gave them copies. The reports from the speech therapist,

school psychologist, and the preschool teacher. I know that they have

to have someone look over all of it, but my goodness - I practically

SPELLED it out for them, and all she could tell me was " it looks like

he'll qualify. "

I should be thankful that this is all that is frustrating me right

now. LOL. He's been in pre-school for 2 weeks now, and already I'm

seeing little bits of progress here and there. But, all it's been

is " hurry up and wait " since I tried to get everything going (with

testing and such) since last Spring.

[Guest guest]

In a message dated 9/30/2006 8:18:23 P.M. Eastern Daylight Time, Laha1960@... writes:

He might when he turns 18.

Dear ,

Social security loves to give SSD when the diagnoses is before 22. I never got it till my daughter was 34 and they were so happy and helpful. I think if the SSD isn't too high, he'd get SSI too.

Francine

[Guest guest]

try any way my kids both get it and they are adhd pdd and mr .make sure you have all the documentation from the drs that is always helpful and they give checklists on what they can and cant do and how it affects his life he may be able to get it but it will go throuh you as a designee payee and then when he is 18 it will go to him they cant have any type of income /assets over 2100 a month (i am in pa) as long as it is under that they willl get the full amount over that he will get an adjusted payment .b4 18 they go by parents income.for the most part they always refuse the first time but if all is documented you can get it .it just may take a fight ..my kids got it on the first try and at the time my one son got it he was developmentally delayed and adhd and that was all .it is a great asset to have so if denied fight for it and maybe even get an advocate to help you get what your child needs . good luck Laha1960@... wrote: To get SS for a child, that child has to be severely disabled and the disability has to severely impact that child's life. Also, that child has to have less than 2000$ in their name for accounts and money. The parents can not have a very high income at all either. My son is 17. He has had ADHD and Aspergers diagnosises a long time. I never went to SS, but called once and asked many people as well as I belong to a few SS D lists online and found out he

probably will not be able to get it. He might when he turns 18. I am still not sure though. in IL Hosted by Sparkle Tags vickie

Stay in the know. Pulse on the new .com. Check it out.

[Guest guest]

Don't be too discouraged, as if your son does wind up gettingSSI, you should get the moneys from the date you applied.They will send a check retroactive to the application date.But, remember, too, that they have you report each yearon how you spent all of the money. --- I think they mustbe trained on making applicants and/or their parentsfeel like crap when they come in. --- Hang in there!Blessings,Lee

>> My son, Owen, was diagnosed with Autism Spectrum Disorder, as well as > Communication Disorder, last month. I had my appointment today at the > Social Security office to apply for SSI. I was kind of in awe to hear > that it could take up to 6 months before I will hear anything.> > I guess I should have expected that, but I had EVERYTHING possible > with me, and gave them copies. The reports from the speech therapist, > school psychologist, and the preschool teacher. I know that they have > to have someone look over all of it, but my goodness - I practically > SPELLED it out for them, and all she could tell me was "it looks like > he'll qualify." > > I should be thankful that this is all that is frustrating me right > now. LOL. He's been in pre-school for 2 weeks now, and already I'm > seeing little bits of progress here and there. But, all it's been > is "hurry up and wait" since I tried to get everything going (with > testing and such) since last Spring.>

[Guest guest]

I think you are brave to do this without an attorney. The person you saw

is not the real evaluator, this person takes in the information. We have

an autism diagnosis along with PDDNOS and severe communication problems

AND an attorney. We were turned down the first time (which is typical of

SSI and disability issues), the attorney took most of the pressure off of

me and shepherded us through the process. After an eval at the disability

office by social security disability paid expert, the claim went through

on speech/lang. disability and PDD. My guess is that social security

disability is hoping to avoid the dreaded " autism " label because that is

life-long. By admitting speech/lang and PDD, their hope is that he will

outgrow his disability and they will not have to spend fed. funds for more

years. It is not in the fed. gov.'s best interest to admit the extent of

autism (labels on disability) as this hinders the cover-up re possible

causes.

It might be more helpful and less stressful to deal through an attorney.

An experienced disability attorney works on contingency that the claim

will go through. An experienced disability attorney won't take a case if

he/she thinks there is not enough evidence of actual disability. His/her

fee is approx. 30% of the amount your child would have gotten from the

first request for disability to the time the disability is approved. This

fee is taken out of the lump sum of " back pay " which is the amount of

money that would have been awarded if the claim had been approved at the

date of first filing to the date of actual approval. You will need to set

up a separate bank account for the child and not co-mingle your funds in

that account. This will be explained by the social security person when

your claim is approved. The process from first filing, to first denial to

final approval can take 8 + months. The hope is that you will go away and

a lot of people do go away... especially if they have no advocate and are

too disabled to fight for themselves.

Good luck. We are so grateful that we had an attorney who took the time to

meet our child and see for himself how our little person's autism has

affected his life and will affect his future without an immense amount of

time and effort and therapy.

Priscilla in Kansas

__________________________________________________

[Guest guest]

I think you are brave to do this without an attorney. The person you saw

is not the real evaluator, this person takes in the information. We have

an autism diagnosis along with PDDNOS and severe communication problems

AND an attorney. We were turned down the first time (which is typical of

SSI and disability issues), the attorney took most of the pressure off of

me and shepherded us through the process. After an eval at the disability

office by social security disability paid expert, the claim went through

on speech/lang. disability and PDD. My guess is that social security

disability is hoping to avoid the dreaded " autism " label because that is

life-long. By admitting speech/lang and PDD, their hope is that he will

outgrow his disability and they will not have to spend fed. funds for more

years. It is not in the fed. gov.'s best interest to admit the extent of

autism (labels on disability) as this hinders the cover-up re possible

causes.

It might be more helpful and less stressful to deal through an attorney.

An experienced disability attorney works on contingency that the claim

will go through. An experienced disability attorney won't take a case if

he/she thinks there is not enough evidence of actual disability. His/her

fee is approx. 30% of the amount your child would have gotten from the

first request for disability to the time the disability is approved. This

fee is taken out of the lump sum of " back pay " which is the amount of

money that would have been awarded if the claim had been approved at the

date of first filing to the date of actual approval. You will need to set

up a separate bank account for the child and not co-mingle your funds in

that account. This will be explained by the social security person when

your claim is approved. The process from first filing, to first denial to

final approval can take 8 + months. The hope is that you will go away and

a lot of people do go away... especially if they have no advocate and are

too disabled to fight for themselves.

Good luck. We are so grateful that we had an attorney who took the time to

meet our child and see for himself how our little person's autism has

affected his life and will affect his future without an immense amount of

time and effort and therapy.

Priscilla in Kansas

__________________________________________________

[Guest guest]

Most kids are not eligible for SSI until they are 18. I started the process with her the month before she turned 18 at the advice of her special education teacher. It was a good suggestion, because when she finally qualified they paid her retroactive from the 18th birthday. Before kids are 18 qualification goes on parent income and significant need. After they are 18, parent income no longer is a consideration...only doctor diagnosis, mental assessments, and the child's assetts. I am a single mom and it has been a long road for us both, but she is living on her own now. While she still depends on me to make sure that her bills are paid (SSI only gives her $402 a month), she is able to get herself up, get ready for school, and goes to college part time with passing grades now. Keep the faith!anna90981978 <anna90981978@...> wrote: I was told our kids would not qualifiy for SSI. My daughter has Aspergers, ADHD, and Anxiety. Is SSI income based? I am really unsure of this. I am so worried about losing my job because of all the days I must take off for her. I even have a hard time making phone calls at work and all of the phone calls I make are for my daughter. At lease my daughter was approved for medical. I will see how long that lasts. Please keep be updated on this and let me know what they decide. Good Luck,

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Most kids are not eligible for SSI until they are 18. I started the process with her the month before she turned 18 at the advice of her special education teacher. It was a good suggestion, because when she finally qualified they paid her retroactive from the 18th birthday. Before kids are 18 qualification goes on parent income and significant need. After they are 18, parent income no longer is a consideration...only doctor diagnosis, mental assessments, and the child's assetts. I am a single mom and it has been a long road for us both, but she is living on her own now. While she still depends on me to make sure that her bills are paid (SSI only gives her $402 a month), she is able to get herself up, get ready for school, and goes to college part time with passing grades now. Keep the faith!anna90981978 <anna90981978@...> wrote: I was told our kids would not qualifiy for SSI. My daughter has Aspergers, ADHD, and Anxiety. Is SSI income based? I am really unsure of this. I am so worried about losing my job because of all the days I must take off for her. I even have a hard time making phone calls at work and all of the phone calls I make are for my daughter. At lease my daughter was approved for medical. I will see how long that lasts. Please keep be updated on this and let me know what they decide. Good Luck,

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

In a message dated 9/30/2006 11:23:04 P.M. Eastern Daylight Time, LeeMail4@... writes:

But, remember, too, that they have you report each yearon how you spent all of the money.

This is a very simple process, the representative payee form for the year. And they don't scrutinize it.

[Guest guest]

In a message dated 9/30/2006 11:23:04 P.M. Eastern Daylight Time, LeeMail4@... writes:

But, remember, too, that they have you report each yearon how you spent all of the money.

This is a very simple process, the representative payee form for the year. And they don't scrutinize it.

[Guest guest]

I'd reapply persistently. Do you get medicaid?

You might also ask to speak to a supervisor, and if that doesn't work, your congressperson.

In a message dated 9/30/2006 11:25:28 P.M. Eastern Daylight Time, joycrosby@... writes:

they did not even look at his charts and tests they just plain denied me and I’m a single mom. Did not EVEN consider his medical expenses. If you know a way around that I’d be grateful to hear it!

[Guest guest]

My daughter already gets SSI of some type because her

father passed away. Then i work a full-time job so i

would think my income was too high. During the year I

would say her income is over 10,000 because of the SSI

from her father. I did make the phone call to them

and they said our income is too high. Should i apply

anyway. Most of the time she is ok. We have learned

ways to cope over the years. She is now 9 year old.

We acually just found out her diagnosis of

Aspergers,ADHD, and anxiety. Until then i just

thought she was just different. We did apply for

medical assistance from welfare and she was approved

temp. until social security approves her for sure.

Will social security review her then to see if she

qualifies for anything else when they look over the

medical assitance paper work? My medical pays for

almost none of her treatment so that is why i tried

medical assistance. It really stinks. I was paying

for it all myself untill one of her docs told me to

try medical assistance. And also the school is no

help. My daughter is really smart gets 100's on all

her tests so i would think they may say no. Her

problems did esculate last year and her grades did

drop but since the new school year started she has got

nothing but 100's on everything. The school should be

able to offer a lot of the services I am now paying

for but they are just so hard to deal with. They keep

saying she is too smart. We spend a lot of time going

over what she learns in school at home because she

wants those 100's. I should also add she is now on

medication and they have already helped. I think they

have made her even more of a perfectionist. I know

she will have these things forever but with want she

wants to do with her future, deal with animals, I

think she would one day be able to have a career.

Just wondering and a little confused. I would be

grateful for any help.

Thanks,

--- vickie <blackfoot124@...> wrote:

> try any way my kids both get it and they are adhd

> pdd and mr .make sure you have all the documentation

> from the drs that is always helpful and they give

> checklists on what they can and cant do and how it

> affects his life he may be able to get it but it

> will go throuh you as a designee payee and then when

> he is 18 it will go to him they cant have any type

> of income /assets over 2100 a month (i am in pa) as

> long as it is under that they willl get the full

> amount over that he will get an adjusted payment .b4

> 18 they go by parents income.for the most part they

> always refuse the first time but if all is

> documented you can get it .it just may take a fight

> ..my kids got it on the first try and at the time my

> one son got it he was developmentally delayed and

> adhd and that was all .it is a great asset to have

> so if denied fight for it and maybe even get an

> advocate to help you get what your child needs .

> good luck

>

> Laha1960@... wrote: To get SS for a

> child, that child has to be severely disabled and

> the disability has to severely impact that child's

> life.

> Also, that child has to have less than 2000$ in

> their name for accounts and money. The parents can

> not have a very high income at all either.

> My son is 17. He has had ADHD and Aspergers

> diagnosises a long time. I never went to SS, but

> called once and asked many people as well as I

> belong to a few SS D lists online and found out he

> probably will not be able to get it. He might when

> he turns 18.

> I am still not sure though.

> in IL

>

>

>

>

>

>

> Hosted by Sparkle Tags vickie

>

> ---------------------------------

> Stay in the know. Pulse on the new .com. Check

> it out.

__________________________________________________

[Guest guest]

i would like to meet with and my son another aspergers child between the ages of 5-7 in the overland park . or shawnee kansas area .. could you pass this on .. and email me if u know of a child in that age rage for alex to meet ..it would be nice for alex to get with a child his age and be accepted since he isnt at school thanks .. tammy and duane davis .. reguarding alex who has aspergers

[Guest guest]

Hi,SSI and SSDI can be confusing. But, simply put SSDI is a disability insuranceprogram, and you must have worked, gainfully employed, for a certain length oftime to even qualify for it. --- SSI IS for people with disabilities that have neverworked. They can get it under the age of 18 only if the parent/s income doesn'texceed their guidelines and they meet the diagnosis criteria. After 18, they are adult, and only their own assets count.

Here is a list of links that explains both, including a screening tool. Lots of info!Hope this helps:

http://www.ssa.gov/disability/

http://www.ssa.gov/notices/supplemental-security-income/

(screening tool)

http://www.ssa.gov/pubs/11000.html

http://www.ssa.gov/dibplan/index.htm

http://www.ssa.gov/planners/index.htm social security benefits planner

>> > In a message dated 9/30/2006 8:18:23 P.M. Eastern Daylight Time, > Laha1960@... writes:> > He might when he turns 18.> > > Dear ,> > Social security loves to give SSD when the diagnoses is before 22. I never > got it till my daughter was 34 and they were so happy and helpful. I think > if the SSD isn't too high, he'd get SSI too.> > Francine>

[Guest guest]

Hi,SSI and SSDI can be confusing. But, simply put SSDI is a disability insuranceprogram, and you must have worked, gainfully employed, for a certain length oftime to even qualify for it. --- SSI IS for people with disabilities that have neverworked. They can get it under the age of 18 only if the parent/s income doesn'texceed their guidelines and they meet the diagnosis criteria. After 18, they are adult, and only their own assets count.

Here is a list of links that explains both, including a screening tool. Lots of info!Hope this helps:

http://www.ssa.gov/disability/

http://www.ssa.gov/notices/supplemental-security-income/

(screening tool)

http://www.ssa.gov/pubs/11000.html

http://www.ssa.gov/dibplan/index.htm

http://www.ssa.gov/planners/index.htm social security benefits planner

>> > In a message dated 9/30/2006 8:18:23 P.M. Eastern Daylight Time, > Laha1960@... writes:> > He might when he turns 18.> > > Dear ,> > Social security loves to give SSD when the diagnoses is before 22. I never > got it till my daughter was 34 and they were so happy and helpful. I think > if the SSD isn't too high, he'd get SSI too.> > Francine>

[Guest guest]

My son has been getting ssi disability since he was just over 2. He

was diagnosed on his 2nd birthday,and we've been getting SSI ever

since. I am a single mother with 2 kids and I'm a waitress. So my

income's not that great. I was approved in a couple of months. The

money really helps. I was approved in Alabama and then moved to

missouri (where I'm from), to recieve better services in school. The

schools here are great but the Dr.'s here are as bad if not worse

than they are in Alabama. I waited a year and a half on a waiting

list at the Knights of Colombus Devolopmental center at Cardnial

Glennon Children's Hospital. It's supposed to be the best in the St.

Louis area, and do you know what they told me? Of course Dr.

Ultmann, (the Dr. in charge there) told me they're was really

nothing we could do but plan to send him to a group home when he

gets older. She said to think of it like sending him to college. She

also suggested we try Adderal and risperdol. I don't think so. Dr.'s

have become a waste of my time. I wish Dr. House was real. If I

could get a Dr. to look at my and take all his symptoms into

account, they might find they cuold fix some of them. But fixing our

kids problems would result in profit loss for the drug companies,

and we can't have that. Sorry, I've ranted on a little longer than

I planned. Thanks for listening.

Chrissy

Mom of 6 autistic

and Brenden 9 adhd

[Guest guest]

My son has been getting ssi disability since he was just over 2. He

was diagnosed on his 2nd birthday,and we've been getting SSI ever

since. I am a single mother with 2 kids and I'm a waitress. So my

income's not that great. I was approved in a couple of months. The

money really helps. I was approved in Alabama and then moved to

missouri (where I'm from), to recieve better services in school. The

schools here are great but the Dr.'s here are as bad if not worse

than they are in Alabama. I waited a year and a half on a waiting

list at the Knights of Colombus Devolopmental center at Cardnial

Glennon Children's Hospital. It's supposed to be the best in the St.

Louis area, and do you know what they told me? Of course Dr.

Ultmann, (the Dr. in charge there) told me they're was really

nothing we could do but plan to send him to a group home when he

gets older. She said to think of it like sending him to college. She

also suggested we try Adderal and risperdol. I don't think so. Dr.'s

have become a waste of my time. I wish Dr. House was real. If I

could get a Dr. to look at my and take all his symptoms into

account, they might find they cuold fix some of them. But fixing our

kids problems would result in profit loss for the drug companies,

and we can't have that. Sorry, I've ranted on a little longer than

I planned. Thanks for listening.

Chrissy

Mom of 6 autistic

and Brenden 9 adhd

[Guest guest]

What is SSI? Is it something to help you pay for therapies,

treatments, and possibly school??Thanks!! in IL

>

> My son, Owen, was diagnosed with Autism Spectrum Disorder, as well

as

> Communication Disorder, last month. I had my appointment today at

the

> Social Security office to apply for SSI. I was kind of in awe to

hear

> that it could take up to 6 months before I will hear anything.

>

> I guess I should have expected that, but I had EVERYTHING possible

> with me, and gave them copies. The reports from the speech

therapist,

> school psychologist, and the preschool teacher. I know that they

have

> to have someone look over all of it, but my goodness - I

practically

> SPELLED it out for them, and all she could tell me was " it looks

like

> he'll qualify. "

>

> I should be thankful that this is all that is frustrating me right

> now. LOL. He's been in pre-school for 2 weeks now, and already

I'm

> seeing little bits of progress here and there. But, all it's been

> is " hurry up and wait " since I tried to get everything going (with

> testing and such) since last Spring.

>

[Guest guest]

god bless you anna .. and i will keep you and your family in my prayers god bless ./... from tammy with a 6 year old asperger