RE: IG Living Magazine

[Guest guest]

Dayna,

We are doing well with sub q.....I have a special backpack with special color

books and toys that can only play with during infusion time...we also

try to rent a special movie for him.....

I haven't gotten my magazine yet...

will try to send you something about family this weekend...May finally be

getting caught up here a little..

Quoting Dayna S Fladhammer <fladfam@...>:

> -

>

> I'm so glad you liked it!!! I'm actually here, at the magazine

> headquarters today, and I've gotten a sneak peak at the next issue -

> you'll be happy to know - there is going to be a huge layout with

> pictures in the next article - hopefully your kids will love it, and

> since my kids are included in it - I happen to think the kids are pretty

> cute - wink wink, nod nod !! You'll be happy to know that the team

> here, the non-writing part of the team, has poured their heart and soul

> into this magazine, and has been just touched with the response.

>

> I've had the pleasure of meeting Connor McFalls - and let me tell you,

> not only is this young man gorgeous - but he has an amazing head on his

> shoulders and has a wonderful presences about him. An amazing guy!

>

> I'd love to have you're kids input for the article I'm working on for

> the 3rd issue - how does your family make IVIG special? Do you do

> something? Go somewhere?

>

> ANYONE??? I'd love more input!

>

> Dayna

>

> IG Living Magazine

>

> I just received the first issue of IG Living and was thrilled to see the

>

> articles by Dayna Fladhammer and the picture of her beautiful daughter

> (I

> wish there was a picture of all of your kids!). And the article about

> Kris

> McFalls's family (did you see her gorgeous boys?).

>

> Before Conner got sick I used to be the Vice-President of a national

> support

> group for families with triplets and more. I helped edit our quarterly

>

> magazine and it was a lot of work (major understatement)! Thank you to

> everyone who helped pull this off. I loved the look of IG Living, it

> feels

> very professional, unlike a newsletter. I hope that future issues have

> more

> photos, my kids loved seeing that other kids with immune disorders look

> so

> healthy and happy!

>

>

>

> Mom to Conner (11, Asperger's, mild CP, partial seizures, asthma, GERD,

> Hashimoto's disease, hypogammaglobulinemia, complement deficiency,

> antibody

> deficiency, NK cell defect, and resolved adrenal insufficiency),

> Hayden (11, PDD-NOS, IBS and moderate hearing loss/aided),

> Evan (11, asthma and mild hearing loss/unaided),

> and Kelsey - (9 going on 19!)

> Please visit us at www.caringbridge.org/in/connersmith

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed with

> a Primary Immune Deficiency. Opinions or medical advice stated here are

> the sole responsibility of the poster and should not be taken as

> professional advice.

>

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