Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 , I have often wondered if what Reagon has mimics XLA ( but she is a girl). She currently has been off of IVIG for 5 months and is doing fine so far, but has an IgG of 61, IgA of 4, and IgM <1 right now. They have also told us that she has tons of immature B cells, but no mature ones (hence the low Ig's). All other aspects of her immune system are fine and her CD4 is actually high (not typical for CVID, which is her diagnosis,I have been told). Does your son tolerate IVIG well? We have taken Reagon off due to severe side effects and I am currently pushing to start Sub Q. I am looking for a dr. in Texas that is familiar with it and hoping to do it at home. Becki Reagon 4yr. CVID, asthma, allergies, reflux Quote Link to comment Share on other sites More sharing options...
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