Tee

[Guest guest]

Hi Tee- My name is Keri. Ask your Doc about a Durgensic Patch or Oxycodone,

those work for my pain. I am so sorry that you are in so much pain. I think

we all feel your pain and understand what you are going through.

Don't give up on finding the right cocktail for you. Keep asking your Docs

to try something else if your current drugs aren't working.

My thoughts and prayers are with you.

Take Care.

Love & Support,

Keri

[Guest guest]

Hi Carmen ,

I'm sorry it took me so long to respond to your post. Looong week

But mostly a good one! I got approved by Social Security! Well at

least I think I have lol. They sent me a check but I have not

received an official letter saying I am approved. But who cares, I

got the check lol! Too bad it's all going to that huge pile of pink

and yellow late notices that have been collecting dust for the past 7

months . Oh btw, I turned out to be a very good " Enbrel poker "

I did it in less than 5 minutes! I am sooo proud of me because I am

usually such a chicken lol. I think it was my pride. My doctor kept

saying she was sure I would not have a problem doing it because I

have piercings and tattoos. Well, I sure could not wuss out after

that vote of confidence lol. To anwser some of your questions.....I

did'nt have a problem with mixing the solution, but I did have

problem getting that air out. I think I pushed too much of the

solution out of the needle trying to get the air out. Not too much

though. My age is 29 and I live in Philadelphia. As far as the

corelation between race and Still's, I was curious about this too. I

think I read somewhere that this is not a rare disease in Japan? It

was a while ago, I have to look it up again. If that is true, I

wonder why?

I was diagnosed pretty quickly at the Philadelphia Veterans Hospital,

by a mixture of Rheumies, Infectious disease docs and many other docs

who were curious about my " strange " symptoms. Luckily I don't have

to pay for anything because I am a Veteran with low income because I

had to stop working. I have read on AOL about people who are in

serious pain because they cannot afford the more expensive drugs that

work. Something has GOT to be done about that! You know, I really

don't think people who don't have arthritis really understand the

significant amount of pain we go through. I have to admit, before I

got it, I thought arthritis was just some " minor " aching in the

joints and muscles that you could just take some tylenol for. Boy do

I know now how WRONG I was! The public AND doctors need to be

educated on the seriousness of this. Oh, your last question...I

found this group through a google search. Here's wishing everyone a

pain-free weekend.

Tee

> Hi Tee,

> My name is Carmen and I've been on Enbrel for one year this month.

It was

> probably one of the most scariest things I ever had to

do...... " poke " myself

> twice a week.

I have a hard time mixing the solution, do you? Takes me ages until

I feel that it is

> thoroughly mixed and then there's that foam that bothers me also.

> I don't think you mentioned how old you are or where you live. I'm

in So.

> California right now and enjoying the nice weather. In the summer

I'm in

> Michigan. You also said you were African American and that's

interesting to

> me as I often wondered what other races were attacked by this

disease. No

> one ever says what race they are here. How were you diagnosed? By

a regular

> doctor or a Rheumatologist? I went through a ton of doctors before

I was finally diagnosed by Mayo Clinic. Do you have insurance from

your

> work or do you not work? These medicines can get VERY expensive.

> I enjoyed reading your letter.....you have a good sense of humor!

Keep in

> touch with us as we are a good group and very knowledgeable. What

one

> doesn't know, the other does. I think we give more information to

our

> doctors on Stills than they have available to them.

> How did you find us? I'm always interested in that.

> xxoo

> California Carmen

>

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[Guest guest]

Wow Tee, It sounds like you have a really good attitude. Very good

about your success with the shot. Also congrats on Soc Sec. I think

they may be starting to get it, which is very encouraging! I just

wanted to say hi back. Melt in So.Ca.

> But mostly a good one! I got approved by Social Security! Well at

> least I think I have lol. They sent me a check but I have not

> received an official letter saying I am approved. Oh btw, I turned

out to be a very good " Enbrel poker "

> I did it in less than 5 minutes!