Re: sinus CT/heart damage

[Guest guest]

Dearest ,

I am just stunned, I am so sorry to hear about your new heart problem on

top of everything else. I am at a loss for words. You will be in my prayers

every night. If you ever need someone to talk to, feel free to e-mail me or

call (see Stills site), I live in Seattle and almost feel like we are

neighbors ( I am from Spokane originally). Remember we only have today,

tomorrow will be our treasure and our future is our ultimate gift. Live for

the moment, please try not to be so hard on yourself with all the emotional

stress. All of us here are here for you, when you need us, just call, write

whatever it takes. Speaking for myself, I have pretty broad shoulders for

you to lay your head on for awhile and just vent, cry or just rest for

awhile. Please keep us all posted on how you're doing.

Hugs, Lorie

[Guest guest]

Dear ,

Just a hint: Use sea salt in place of table salt. A couple of years

ago I had one sinus infection after another, and I found that the

" sea salt " works better. You can find it at a nutrtion center, and

it isn't expensive. Also, ask your doc for a prescription for

" Rhinocort. " Since using that my sinus problems have improved

a whole lot. It's a nasal spray.

I'm feeling like you in the way that if one thing don't get me,

the other one will. My problem is that I am beginning to wonder

if my body is going to say " no " to the MTX injections just like

it does to almost any other meds I have taken.. it's almost like

the " crap " being piled on, is by big shovel fulls., and it takes

a lot to keep " trying " to dig out with a teaspoon.

So, my friend, I love you, and somehow you will handle this

sinus thing just as you handled every other mountain you have

climbed. A sense of humor, your family, and time. You live

in Idaho don't you?? Look up Marty's ex, give me a call...

somehow I'll get there, and we can slap her up for what she

did to Marty. Who knows...maybe we'd feel better!

Love & hugs sweety,

~~tricia~~

-- sinus CT/heart damage

I wanted to let you all know what I found out about my CT. Everything is

fine. Nothing to worry about. Meaning, there is no reason for me to keep

getting sinus infections except, and these are the word of the doc, because

I am on Remicade and they do increase my risk of infection and also because

the Remicade lowers my bodies immune system. So after a long phone

conversation what I am left with is: 1. deal with the sinus infections so

long as treatments keep working and get off the Remicade when I stop

responding to antibiotics or get a bigger infection or 2. get of Remicade.

Well you can guess which one I took. So what he wants me to do it limit the

amount of dust in my house, replace any old carpets, get an air purifier,

and rinse out my sinuses everyday with a salt water/baking soda rinse. So it

is the classic " live with it " kinda thing. Ok I can do that. Just a big mug

of tea and a box a tissues is all I need.

I got a call from the law firm that is handling my part of the fen-phen case

for me. my test results came back on my Echocardiogram. I have heart damage.

They want me to get the copies of my last one three years ago and then fax

it to them so they can figure out where I go in the law suit. So know I have

one more thing to add to my plate of crap. Now I am wondering I am going to

die from the heart thing first or the Still's I guess it is a race of the

disease for my soul. I am bitter if you can tell. I think I am need a break.

I break from my body. I know I know, suck it up and be a good trouper. I DON

T WANT TO!!

Love Always,

~~I HOPE YOU DANCE~~

crimsons@...

[Guest guest]

Sorry, me again ....must put in my two cents about Rhinocourt. My son has

been using it off and on and it is fab!! He is so much clearer and has had

a lot fewer infections { he is 7, and off and on prednisone and they don't

interfere..} The only thing is it can be a little drying so you have to use

a nasal spray { eeewwwwww} but it has really worked wwonders for him.

Ok, being quiet for a bit now.. Hard for me to settle down lately . My

sons both accuse me of being rather " Tiggerish " { bounce pounce bounce

pounce..}

GotFM

[Guest guest]

,

Just to put in my two cents worth...........I had the same thing with

the sinus infections all the time. Went to an allergist who

said...rip up the carpets, install air cleaner, (and I never can

remember which either) a humidifier or de-humidifier. So we did. I

have beautiful hardwood floors under all the nasty carpeting, with

the air cleaner I only have to dust every once in a while instead of

all the time and I can breathe so much better. Knock on wood, I

haven't had a sinus infection, cold, or bronchitis since the make

over.

The only thing I didn't do that he said to do was get rid of my dog

and cat. I had considered shaving them both but my Cat dared me so I

left them alone.

Jan

[Guest guest]

Dear ,

You don't have to suck it up and be a trooper -- at least not today or even

tomorrow!! This all is a totally annoying and painful and scary situation

(at least to me it would be). So I think it's right that you can scream

about it. And when you are ready, you'll get the info. you need together.

In the meantime, you have every right to scream, rant, and rave and here is a

fine place to do it (with people who love you and understand!).

Hnag tight! And stay as healthy as you can! Love you,