Re: Is this good news or false hope? - Thanks,

September 18, 2005

Hi, :

I just posted another question to Ursula about what we should ask for

in regards to antibody testing. If you have any suggestions after

seeing ours son's modified vaccination schedule, please let me know.

We aren't sure what to ask for. Yes, I had thought low IGE was good,

but from talking to another mom, it sounds like >2 could mean my son

can't react to things he's allergic to, but I don't know if I

understood it correctly. Goodness, I really wish I had taken more

science classes in school and paid attention more when I was in

class. This stuff is really complicated. I commend you and the

other parents for being so incredibly knowledgeable in order to do

the best advocacy for your treasured children. Thank you so much.

> I agree with the others, get antibody testing done. I wouldn't

hesitate to

> see a specialist either, what would it hurt? We don't rely on our

> pediatrician for anything other than dealing with very minor

issues,

> anything that could potentially be more complicated we self-refer.

>

> And from what we were told, an IgE of <2 is great, that's one of

those

> levels that you want to be on the low side. Conner's IgE was over

2,419 the

> first time we tested him! His docs couldn't believe it and told us

it was

> not a good thing!

>

> Keep us posted!

>

> Mom to Conner (11, Asperger's, mild CP, partial seizures, asthma,

GERD,

> immunodeficiency and resolved adrenal insufficiency),

> Hayden (11, PDD-NOS, IBS and moderate hearing loss/aided),

> Evan (11, asthma and mild hearing loss/unaided),

> and Kelsey - (9 going on 19!)

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