RE: Going for cast #4 on Monday Randi-

[Guest guest]

, We are all so fortunate that you are a rebel!

Ann Boros

www.curvybaby.comjayann_24@... To: infantile scoliosis treatment From: heather@...Date: Fri, 11 Nov 2011 10:57:27 -0500Subject: Re: Going for cast #4 on Monday Randi

Hi Randi,

Attitude is everything when going through rough stuff, isnt it! You are so

ahead of the game when you have a good attitude...I have to admit my

attitude was horrible in the beginning...But, Liv didnt have access to

Early Treatment and I didnt know about it yet, so I was scared. My

defense mechanism for fear has always been anger and am glad that I

finally figured out how to properly channel my anger and go into full on

action mode for Liv and others. I cant believe you found that article!

I'm curious to read it again as it was written so long ago and we've all

learned so much more about Early Treatment w/ Mehta casting since then....

I think Liv was only 7 or 8 when I wrote that and now she is almost 14!

I can really relate to how family members/friends react....I remember an

Uncle of mine stating quite sternly to me "why dont you just do what the

docs say and quit being a rebel!!!!" The docs were then saying to fuse the

majority of Livs spine as an infant w/ a 90 degree cobb, severe rotation

in her thoracic area!! Yikes, no way...I went with my intuition and am so

glad I did!

You keep up the good work momma! Your darling is lucky to have you.

HRH

> Thanks ! She is doing great and I love hugging her skinny little

> butt. I can't believe how skinny she is without her cast on. I tried to

> put her in some 2t pants today and they fell off

> Â

> I was really happy today to find an article you wrote in 2007. I was

> looking for something that stated the complications that infantile

> scoliosis causes if left untreated.

> I am having some slight issues with some of my husbands family, so I

> wanted to give it to them. I don't think that they fully understand the

> severity of infantile scoliosis.

> So, I get asked frequently how many more casts and every time that I tell

> them, I get a "uh..really? Poor Avery". It is done so that they get the

> point accross that they think I am overreacting and that we need to give

> her a break. It is partly my fault because I am an optimistic person and

> am not all down on Avery's condition.

> My thoughts are that we can't change it and it could be worse, so lets

> roll with it. It does nothing for me to be all down about it. Does it

> suck? yep...but, the only thing that I can change about the situation is

> my attitude. My attitude about it will also reflect how Avery views it as

> she gets older.

> Â

> When the comment about her casting was brought up again last night, I just

> said "it's better than a wheelchair, right?".

> Â

> Even though Avery has been dealt a sucky hand, it could be worse. I am

> reminded of that every time I walk through the Children's hospital.

> Â

> I am going to show your article to my husbands family, so they can see how

> severe it can turn if we don't cast. She can live the first few years of

> her life without swimming, but the fact is that she will be able to enjoy

> the rest of her life without limitations, thanks to casting.

> Â

> Well, thanks for listening,

> Randi

> Â

> Â

>

> From: Hyatt <heather@...>

> infantile scoliosis treatment

> Sent: Wednesday, November 9, 2011 2:04 PM

> Subject: RE: Going for cast #4 on Monday

>

>

> Â

> Thanks for the update on Avery, Randi. Sounds like she is doing well.Â

> Slow and steady wins the race and she seems to be on track. Good job

> momma! Enjoy your squishy time.

> HRH

> Â

> From:infantile scoliosis treatment

> [mailto:infantile scoliosis treatment ] On Behalf Of

> mommyloveshertwins24

> Sent: Tuesday, November 08, 2011 3:37 PM

> infantile scoliosis treatment

> Subject: Going for cast #4 on Monday

> Â

> Â

> We had Avery's 3rd cast removed today and the x-rays showed her at 22*.

> She was 24* out of cast 3 months ago. Started at 39*. The rotation gets

> better every time and it is pretty much non-existent.

>

> We go for cast #4 on Monday and are hoping for great numbers . The last

> two casts, we have been at 9* in cast.

>

> The plan is to cast Monday and probably February and then a brace for the

> summer, depending on her numbers in February.

>

> I am amazed at how tiny she is without her cast.

>

> Thank you all for the continued support.

>

> Randi

> Mom to Avery and 2yrs. Avery torticollis resolved and scoliosis

> started at 39* down to 22*.

>