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Re: late update from

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Thats really great news . On all fronts...s great progress,

the hospitals willingness to order shirts and family cohesiveness..

Amazing how something that causes so much anxiety actually brings most

families together a bit.

Thanks for sharing.

HRH

> We have been back two weeks and is doing great in cast #8. The doc

> got him down to 25* in this cast! YEA!!!! I even got them to place an

> order for knit rite shirts while I was there. they are going to order the

> grey w/o the neck or arms. (when we were at Duke wore a white one

> like that) So far so good as far as comfort in the cast. We had a scare

> in the cast room when we went to have the cast trimmed and moleskin

> applied. started screaming and crying with pain in his back. He

> had not ever complained of out right pain under the cast before. Other

> than that he has done great!

>

> I can truly say that we live a normal life even having a child in a cast.

> I try everyday to focus on his good health rather than focus on his

> scoliosis! We are usually all very teary eyed when time rolls around to

> remove the cast and then when it goes back on. Other than that we do our

> best to count our blessings which are far too many to count! Thanks for

> all the support each of you give and taking time to show concern and

> answer questions. I look back now and remember how truly scared to death

> I was going into his first cast and now it's been 15 months since the

> first one was applied. Our family has a new way of life now and a much

> stronger faith.

>

>

>

>

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