RE: helping parents understand options Rinita

[Guest guest]

Dear Rinita,Please let me know if ISOP can help you spread the word on Mehtas lifesaving, gentle cure for PIS in Indonesia.  Feel free to use whatever you need on www.infantilescoliosis.org  and please always keep us posted. We’re here to help.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of rinita aswinSent: Monday, October 24, 2011 10:21 PMinfantile scoliosis treatment Subject: Re: helping parents understand options Dear a, I absolutely agree with you, as i know there are many other mothers who's children are also suffering from infantile scoliosis that is not aware of other alternative other than surgery , trust me.. maybe among all mothers in Indonesia, i am the only one who is noticing a casting method ( and willing to learn about this method). I had a friend in the office who's son also scoliosis and had to go trough surgery when he was 17 but the parents notice this scoliosis since he is an infant but don't understand about it or what to do with it and with a minimum information from the orthopedic which only suggest surgery. I will spread the words about this method and encourage other orthopedics in our country to learn such method hopefully i will not face a brick wall and they willing to learn and open for new information. RegardsRinita From: " mczim4@... " <mczim4@...>infantile scoliosis treatment Sent: Monday, 24 October 2011 7:59 PMSubject: helping parents understand options I had the same variety of opinions when our daughter was first diagnosed at about 18 months: nothing to do, do relatively minor surgery to detether spinal cord, watch and see, brace and do radical invasive surgery. (The last one was suggested by a surgeon who was promoting a radical new approach to spine straightening. He wanted Nadia to be one of the first to try it out -- I said no way. A few years later, he is GONE with no word about where. ) No one suggested casting. Plus, no one advised me about the benefits of having xrays done at a pediatric specialty center instead of at a regional hospital. I would like to now compile and share the resources I wish I had seen way back then. Even if there are few infantile scoli cases in our rural area, the docs should be more informed... Is there anything already prepared by this list? thanksa