RE: Ella's 1st Appointment

[Guest guest]

!

That´s great news. We live in Uruguay and my daughter fina was also diagnosed when she was 4 months old and her curve was also 30 degrees. In our country there is little experience, so at that moment we got the answer " let´s wait and see " ...we knew nothing about scoliosis and thought that was OK. two months later her condition got worse and we had to travel to Argentina where she was put in a brace. In spite of that, her curve continued progressing. Luckily we searched the internet and found ISOP and mehta Cast came as an alternative to surgery! We are so thankfull for that!! Now fina is 17 months and she is in her second cast in Shriners SLC! She is doing really fine and is completely adapted to cast life !. Tomorrow we are taking off her cast and on Sunday 19 we are travelling again to SLC because on Thursday 23rd we have an appointment in SLC to have her 3rd cast on.

 

Wish you all the best! and you are in the right path!!

 

na

Mom of fina and a

On Thu, Feb 16, 2012 at 11:18 AM, rachelmjacobs <rachelmjacobs@...> wrote:

 

I just wanted to share what my husband and I were told at Ella's first appointment on Tuesday at Cincinnati Children's (maybe what we were told will help someone else).Bit of background, since we're new here: Ella just turned 5 months old on the day of her appointment. She was diagnosed with IS at 4 1/2 months old, with a curve of 31.

When preparing for her appointment I was fully prepared to push for her to be casted soon. I had all my research and facts lined up, ready to argue if necessary. None of that turned out to be needed. After examining her the doctor said he felt she was a good candidate for casting. Now. I was so surprised. I expected him to say " let's wait and see. " I actually said this to him and he said no, because he's seen so many cases not get any better, but instead get much worse. He also read her curve at a 40, not a 31 (that's why I love someone who specializes in this!).

I'm very pleased with the advice we got and are currently scheduled to have her first cast put on on March 5th. I'm hopeful. I'm anxious about what " cast life " is going to be like, but that's the best option I see and I pray it'll work for her!

Momma to Ella

[Guest guest]

Yay! This is great news, ! Glad you made in to Cincinnati for a very experienced consult on ET and PIS….We’ll be thinking of you girls on the 5th, so please keep us posted and let us know if you think of any more questions in the meantime. You are on the right track! Way to advocate for lil Ella!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of rachelmjacobsSent: Thursday, February 16, 2012 6:18 AMinfantile scoliosis treatment Subject: Ella's 1st Appointment I just wanted to share what my husband and I were told at Ella's first appointment on Tuesday at Cincinnati Children's (maybe what we were told will help someone else).Bit of background, since we're new here: Ella just turned 5 months old on the day of her appointment. She was diagnosed with IS at 4 1/2 months old, with a curve of 31.When preparing for her appointment I was fully prepared to push for her to be casted soon. I had all my research and facts lined up, ready to argue if necessary. None of that turned out to be needed. After examining her the doctor said he felt she was a good candidate for casting. Now. I was so surprised. I expected him to say " let's wait and see. " I actually said this to him and he said no, because he's seen so many cases not get any better, but instead get much worse. He also read her curve at a 40, not a 31 (that's why I love someone who specializes in this!).I'm very pleased with the advice we got and are currently scheduled to have her first cast put on on March 5th. I'm hopeful. I'm anxious about what " cast life " is going to be like, but that's the best option I see and I pray it'll work for her!Momma to Ella

[Guest guest]

Always good to hear from you and lil Josy.  We will be thinking of you girls on the 23rd, so please keep us posted.Sincerely,HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of na MarturetSent: Thursday, February 16, 2012 6:51 AMinfantile scoliosis treatment Subject: Re: Ella's 1st Appointment !That´s great news. We live in Uruguay and my daughter fina was also diagnosed when she was 4 months old and her curve was also 30 degrees. In our country there is little experience, so at that moment we got the answer " let´s wait and see " ...we knew nothing about scoliosis and thought that was OK. two months later her condition got worse and we had to travel to Argentina where she was put in a brace. In spite of that, her curve continued progressing. Luckily we searched the internet and found ISOP and mehta Cast came as an alternative to surgery! We are so thankfull for that!! Now fina is 17 months and she is in her second cast in Shriners SLC! She is doing really fine and is completely adapted to cast life !. Tomorrow we are taking off her cast and on Sunday 19 we are travelling again to SLC because on Thursday 23rd we have an appointment in SLC to have her 3rd cast on. Wish you all the best! and you are in the right path!! naMom of fina and aOn Thu, Feb 16, 2012 at 11:18 AM, rachelmjacobs <rachelmjacobs@...> wrote: I just wanted to share what my husband and I were told at Ella's first appointment on Tuesday at Cincinnati Children's (maybe what we were told will help someone else).Bit of background, since we're new here: Ella just turned 5 months old on the day of her appointment. She was diagnosed with IS at 4 1/2 months old, with a curve of 31.When preparing for her appointment I was fully prepared to push for her to be casted soon. I had all my research and facts lined up, ready to argue if necessary. None of that turned out to be needed. After examining her the doctor said he felt she was a good candidate for casting. Now. I was so surprised. I expected him to say " let's wait and see. " I actually said this to him and he said no, because he's seen so many cases not get any better, but instead get much worse. He also read her curve at a 40, not a 31 (that's why I love someone who specializes in this!).I'm very pleased with the advice we got and are currently scheduled to have her first cast put on on March 5th. I'm hopeful. I'm anxious about what " cast life " is going to be like, but that's the best option I see and I pray it'll work for her!Momma to Ella