I don't think I can do this anymore...

[Guest guest]

Hello everyone,

I need some thoughts on what you would do. Back last May, as some of you may remember, Shane got a bad pressure sore on his tummy. Initially, I was told that it would heal and all scars left from it would be gone it a few weeks. Well, we are in February and a scar is still there. (Albeit, smaller than it was but still noticeable).

Now, for the new information. Shane got his 6th cast on February 2. On February 4th (yes, 2 days later) he started to complain of pain. I gave him Tylenol at bedtime to help him sleep. Then at bedtime, the next night is had gotten worse.

By the 6th, (4 days after the new cast was applied) I could've taken him back to the hospital to have it looked at but feared I didn't want to be a hypochondriac or feel like I was crying wolf. So, I decided to stick it out until yesterday. Yes, I said yesterday. I let a whole week go by (mostly because the doctor was away at a conference and wasn't going to be there). Turns, out they had to cut off his cast (that he only had on for 11 days) because of a very, very, very bad pressure sore.

It was so bad, that the nurse gasped when she saw it and told me, "you don't want to see this. It's worse than the last one". Of course I had to look and broke down when I saw. His sore was completely open (I thought he might need stitches) and you could see into his back. Because of the location, they were unable to work around the cast which was why they cut it off.

Now, what would you do. Shane has very sensitive skin which is why it breaksdown quickly. I don't want my baby is any pain or discomfort. But, I don't want to have his back cut into for surgery. Do I continue with the casting route or just jump head first into VEPTR surgery? What would you do?

I need advice please. I will post the picture of the sore below, but please know that THE PICTURE IS GRAPHIC.

SUZY ºOºsuzy3333