Re: New here. 6 month old just diagnosed. Casting questions!

[Guest guest]

Hang in there it does get better! My suggestion would be to check out the

list of docs ISOP has in the files section maybe? Also I agree with your

feeling of wanting an experienced doc. We live in NE & travel to SLC. My

feeling was with time/age being so very important & a small window for a

cure I wanted my son to have the best chance possible. Maybe if your.

Current doc is that interessed he could go to the ISOP training

conferences heather puts on?

best of luck!

Amber

Mommy to Levi

In 2nd cast SLC 31* to 16/17* in cast

> Hello everyone. My 6 month old was just diagnosed with Idiopathic

> Scoliosis. His curve is measuring 48-50 degrees. Our orthopedic Dr. said

> his recommendation is casting, but he does not have any first hand

> experience with this, nor did he know of anyone in our area that does. He

> is meeting with two co-workers next week to discuss my son's case and is

> then getting back to us. He said he'd like us to have him casted locally

> so that he can monitor, but this doesn't exactly appeal to me if there

> aren't any Dr's in the area with a lot of experience casting young babies.

>

> I, personally, have been doing as much research online as I can regarding

> where he can be casted. It's extremely overhwelming (as I'm sure everyone

> says when they are first faced with this!) I'm so glad that I found this

> site because there seems to be an abundance of information here.

>

> My question is this: Does anyone know of any Doctors that are known for

> casting in my area? We live in , MS. I searched this site and found

> that someone had said awhile back that the only Dr. in the south/southeast

> that was trained in casting was in Birmingham, AL. We are definitely

> willing to travel if it means getting the best possible treatment.

>

> I also have family in PA, so traveling to PA is also a possibility. (I've

> heard Shriners in PA casts?)I would really just like some information

> from someone that has been down this road...first hand. Any and all

> information is greatly appreciated! Thank you,

>

>

>

>

[Guest guest]

I agree with the suggestion of checking the list of docs ISOP has. We live in Uruguay (South America) and our daughter fina of 18 months is being treated in Shriners Salt Lake City. We are traveling there in two weeks to have her 3rd cast on. In spite of the long trip (almost 20 hours) we know that this is the best chance possible and are really happy with the way they are treating our daughter!! It´s is important to find doctors that have been trainned in Mehta Cast and have the proper table to do the procedure.

 

Best of luck!!!

na

Mom fina 2nd cast in SLC 90º to 50º in cast

On Thu, Feb 9, 2012 at 1:26 PM, Amber Scholl <amber@...> wrote:

 

Hang in there it does get better! My suggestion would be to check out thelist of docs ISOP has in the files section maybe? Also I agree with yourfeeling of wanting an experienced doc. We live in NE & travel to SLC. My

feeling was with time/age being so very important & a small window for acure I wanted my son to have the best chance possible. Maybe if your.Current doc is that interessed he could go to the ISOP trainingconferences heather puts on?

best of luck!AmberMommy to LeviIn 2nd cast SLC 31* to 16/17* in cast

> Hello everyone. My 6 month old was just diagnosed with Idiopathic> Scoliosis. His curve is measuring 48-50 degrees. Our orthopedic Dr. said> his recommendation is casting, but he does not have any first hand

> experience with this, nor did he know of anyone in our area that does. He> is meeting with two co-workers next week to discuss my son's case and is> then getting back to us. He said he'd like us to have him casted locally

> so that he can monitor, but this doesn't exactly appeal to me if there> aren't any Dr's in the area with a lot of experience casting young babies.>> I, personally, have been doing as much research online as I can regarding

> where he can be casted. It's extremely overhwelming (as I'm sure everyone> says when they are first faced with this!) I'm so glad that I found this> site because there seems to be an abundance of information here.

>> My question is this: Does anyone know of any Doctors that are known for> casting in my area? We live in , MS. I searched this site and found> that someone had said awhile back that the only Dr. in the south/southeast

> that was trained in casting was in Birmingham, AL. We are definitely> willing to travel if it means getting the best possible treatment.>> I also have family in PA, so traveling to PA is also a possibility. (I've

> heard Shriners in PA casts?)I would really just like some information> from someone that has been down this road...first hand. Any and all> information is greatly appreciated! Thank you,>>

>>

[Guest guest]

Hi ,

Welcome to the group. Despite your

son’s diagnosis and your worry, I am happy that you see an orthopedic

doctor that knows about casting and recommends it.

I live in PA. Casting is done at Philadelphia and Erie Shriners by the

same doctors. My daughter is treated by one of them, and I’m very

satisfied. However, she was 29 months when first casted so I have no

experience with treating a 6 mo old.

Best wishes! You have found a

supportive group!

Sherry

New

here. 6 month old just diagnosed. Casting questions!

Hello everyone. My 6 month old was just diagnosed with

Idiopathic Scoliosis. His curve is measuring 48-50 degrees. Our orthopedic Dr.

said his recommendation is casting, but he does not have any first hand

experience with this, nor did he know of anyone in our area that does. He is

meeting with two co-workers next week to discuss my son's case and is then

getting back to us. He said he'd like us to have him casted locally so that he

can monitor, but this doesn't exactly appeal to me if there aren't any Dr's in

the area with a lot of experience casting young babies.

I, personally, have been doing as much research online as I can regarding where

he can be casted. It's extremely overhwelming (as I'm sure everyone says when

they are first faced with this!) I'm so glad that I found this site because

there seems to be an abundance of information here.

My question is this: Does anyone know of any Doctors that are known for casting

in my area? We live in , MS. I searched this site and found that someone

had said awhile back that the only Dr. in the south/southeast that was trained

in casting was in Birmingham, AL. We are definitely willing to travel if it

means getting the best possible treatment.

I also have family in PA, so traveling to PA is also a possibility. (I've heard

Shriners in PA casts?)I would really just like some information from someone

that has been down this road...first hand. Any and all information is greatly

appreciated! Thank you,

[Guest guest]

Welcome to the group and this place is a wealth of information. We are in our

first cast, so we are realitively new as well. Personally I would only get

casted by someone that does Mehta casting and while the current dr would like to

follow progress, I would worry more about finding a properly trained dr.

Curt

>

> Hello everyone. My 6 month old was just diagnosed with Idiopathic Scoliosis.

His curve is measuring 48-50 degrees. Our orthopedic Dr. said his recommendation

is casting, but he does not have any first hand experience with this, nor did he

know of anyone in our area that does. He is meeting with two co-workers next

week to discuss my son's case and is then getting back to us. He said he'd like

us to have him casted locally so that he can monitor, but this doesn't exactly

appeal to me if there aren't any Dr's in the area with a lot of experience

casting young babies.

>

> I, personally, have been doing as much research online as I can regarding

where he can be casted. It's extremely overhwelming (as I'm sure everyone says

when they are first faced with this!) I'm so glad that I found this site because

there seems to be an abundance of information here.

>

> My question is this: Does anyone know of any Doctors that are known for

casting in my area? We live in , MS. I searched this site and found that

someone had said awhile back that the only Dr. in the south/southeast that was

trained in casting was in Birmingham, AL. We are definitely willing to travel if

it means getting the best possible treatment.

>

> I also have family in PA, so traveling to PA is also a possibility. (I've

heard Shriners in PA casts?)I would really just like some information from

someone that has been down this road...first hand. Any and all information is

greatly appreciated! Thank you,

>

>

>

[Guest guest]

Hey !

We live in NC but travel to greenville, SC to be casted at the shrinners hospital. We started casting Logan at 9 months old with a 45 degree curve. We are still casting right now. As of the last out of cast exray back in september, Logan was 9 degrees. He just had cast #12 applied on Tuesday. He is 2 yrs old and they are very hopeful that he will be cured. He has about 6-8 more months-ish....maybe =)

Logan's mama (45 down to 9 out of cast, 12th cast, 2 years old)

From: lindsayrineer <lindsayrineer@...>infantile scoliosis treatment Sent: Thursday, February 9, 2012 10:09 AMSubject: New here. 6 month old just diagnosed. Casting questions!

Hello everyone. My 6 month old was just diagnosed with Idiopathic Scoliosis. His curve is measuring 48-50 degrees. Our orthopedic Dr. said his recommendation is casting, but he does not have any first hand experience with this, nor did he know of anyone in our area that does. He is meeting with two co-workers next week to discuss my son's case and is then getting back to us. He said he'd like us to have him casted locally so that he can monitor, but this doesn't exactly appeal to me if there aren't any Dr's in the area with a lot of experience casting young babies.I, personally, have been doing as much research online as I can regarding where he can be casted. It's extremely overhwelming (as I'm sure everyone says when they are first faced with this!) I'm so glad that I found this site because there seems to be an abundance of information here.My question is this: Does anyone know of any Doctors that are known for casting in my area?

We live in , MS. I searched this site and found that someone had said awhile back that the only Dr. in the south/southeast that was trained in casting was in Birmingham, AL. We are definitely willing to travel if it means getting the best possible treatment.I also have family in PA, so traveling to PA is also a possibility. (I've heard Shriners in PA casts?)I would really just like some information from someone that has been down this road...first hand. Any and all information is greatly appreciated! Thank you,

[Guest guest]

Thanks everyone! I checked out the list and found that Birmingham is the closest

to us. I plan to contact Both Birmingham and Shriners in Philly.

Also...I know that all insurance companies are different, but is there such a

thing as them helping with travel costs? I ask bc traveling to pa every 6-8

weeks could get expensive!

Thanks again...we are just ready to get him in his first cast.

[Guest guest]

If you are going to a Shriners hospital most likely your local shrine will help you with travel expenses. Amy JConnected by DROID on Verizon Wireless Re: New here. 6 month old just diagnosed. Casting questions! Thanks everyone! I checked out the list and found that Birmingham is the closest to us. I plan to contact Both Birmingham and Shriners in Philly. Also...I know that all insurance companies are different, but is there such a thing as them helping with travel costs? I ask bc traveling to pa every 6-8 weeks could get expensive!Thanks again...we are just ready to get him in his first cast.

[Guest guest]

Hi ,Welcome to CAST. It sounds like you’re headed in the right direction, so far. May I recommend a couple of things to help get you started? Please go to the Resource page of www.infantilescoliosis.org to dwnld/read a published, medical journal titled “Growth as a corrective force in the Early Treatment of progressive infantile scoliosis,”by Mehta, MD, FRCS. Also, view A New Direction DVD, which can be found in the Youtube portion of the site (in 3 parts). These 2 items along with the support and firsthand experience you receive from parents here on CAST will help you immensely on your scoli & ET journey. Please keep the questions coming. We are here to help!Sincerely,HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of lindsayrineerSent: Thursday, February 09, 2012 8:10 AMinfantile scoliosis treatment Subject: New here. 6 month old just diagnosed. Casting questions! Hello everyone. My 6 month old was just diagnosed with Idiopathic Scoliosis. His curve is measuring 48-50 degrees. Our orthopedic Dr. said his recommendation is casting, but he does not have any first hand experience with this, nor did he know of anyone in our area that does. He is meeting with two co-workers next week to discuss my son's case and is then getting back to us. He said he'd like us to have him casted locally so that he can monitor, but this doesn't exactly appeal to me if there aren't any Dr's in the area with a lot of experience casting young babies.I, personally, have been doing as much research online as I can regarding where he can be casted. It's extremely overhwelming (as I'm sure everyone says when they are first faced with this!) I'm so glad that I found this site because there seems to be an abundance of information here.My question is this: Does anyone know of any Doctors that are known for casting in my area? We live in , MS. I searched this site and found that someone had said awhile back that the only Dr. in the south/southeast that was trained in casting was in Birmingham, AL. We are definitely willing to travel if it means getting the best possible treatment.I also have family in PA, so traveling to PA is also a possibility. (I've heard Shriners in PA casts?)I would really just like some information from someone that has been down this road...first hand. Any and all information is greatly appreciated! Thank you,

[Guest guest]

Welcome to CAST Leanne! Please take a look at the Growth as a corrective force article and A New Direction DVD and let us know if you have any questions.Sincerely,HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of lmsanders37Sent: Thursday, February 09, 2012 8:15 AMinfantile scoliosis treatment Subject: Re: New here. 6 month old just diagnosed. Casting questions! We are relatively new as well, so when we figure out where we are going, I will keep you posted. We live just south of Gettysburg, PA.~Leeann>> Hello everyone. My 6 month old was just diagnosed with Idiopathic Scoliosis. His curve is measuring 48-50 degrees. Our orthopedic Dr. said his recommendation is casting, but he does not have any first hand experience with this, nor did he know of anyone in our area that does. He is meeting with two co-workers next week to discuss my son's case and is then getting back to us. He said he'd like us to have him casted locally so that he can monitor, but this doesn't exactly appeal to me if there aren't any Dr's in the area with a lot of experience casting young babies.> > I, personally, have been doing as much research online as I can regarding where he can be casted. It's extremely overhwelming (as I'm sure everyone says when they are first faced with this!) I'm so glad that I found this site because there seems to be an abundance of information here.> > My question is this: Does anyone know of any Doctors that are known for casting in my area? We live in , MS. I searched this site and found that someone had said awhile back that the only Dr. in the south/southeast that was trained in casting was in Birmingham, AL. We are definitely willing to travel if it means getting the best possible treatment.> > I also have family in PA, so traveling to PA is also a possibility. (I've heard Shriners in PA casts?)I would really just like some information from someone that has been down this road...first hand. Any and all information is greatly appreciated! Thank you,> > >

[Guest guest]

Great suggestion! If anyone out there has a local ortho that wants to learn the necessary principles of ET and how to properly apply a series of Mehta specialized EDF casts, please email me their contact details at isop06@... and I’ll add them to the invitee list. Or, recommend to them that they sign up for our free hands-on tutorials on the homepage of www.infantilescoliosis.orgThanks!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Amber SchollSent: Thursday, February 09, 2012 8:26 AMinfantile scoliosis treatment Subject: Re: New here. 6 month old just diagnosed. Casting questions! Hang in there it does get better! My suggestion would be to check out thelist of docs ISOP has in the files section maybe? Also I agree with yourfeeling of wanting an experienced doc. We live in NE & travel to SLC. Myfeeling was with time/age being so very important & a small window for acure I wanted my son to have the best chance possible. Maybe if your.Current doc is that interessed he could go to the ISOP trainingconferences heather puts on?best of luck!AmberMommy to LeviIn 2nd cast SLC 31* to 16/17* in cast> Hello everyone. My 6 month old was just diagnosed with Idiopathic> Scoliosis. His curve is measuring 48-50 degrees. Our orthopedic Dr. said> his recommendation is casting, but he does not have any first hand> experience with this, nor did he know of anyone in our area that does. He> is meeting with two co-workers next week to discuss my son's case and is> then getting back to us. He said he'd like us to have him casted locally> so that he can monitor, but this doesn't exactly appeal to me if there> aren't any Dr's in the area with a lot of experience casting young babies.>> I, personally, have been doing as much research online as I can regarding> where he can be casted. It's extremely overhwelming (as I'm sure everyone> says when they are first faced with this!) I'm so glad that I found this> site because there seems to be an abundance of information here.>> My question is this: Does anyone know of any Doctors that are known for> casting in my area? We live in , MS. I searched this site and found> that someone had said awhile back that the only Dr. in the south/southeast> that was trained in casting was in Birmingham, AL. We are definitely> willing to travel if it means getting the best possible treatment.>> I also have family in PA, so traveling to PA is also a possibility. (I've> heard Shriners in PA casts?)I would really just like some information> from someone that has been down this road...first hand. Any and all> information is greatly appreciated! Thank you,>> >>

[Guest guest]

Please keep us posted, na!  We’ll be thinking of you girls!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of na MarturetSent: Thursday, February 09, 2012 8:42 AMinfantile scoliosis treatment Subject: Re: New here. 6 month old just diagnosed. Casting questions! I agree with the suggestion of checking the list of docs ISOP has. We live in Uruguay (South America) and our daughter fina of 18 months is being treated in Shriners Salt Lake City. We are traveling there in two weeks to have her 3rd cast on. In spite of the long trip (almost 20 hours) we know that this is the best chance possible and are really happy with the way they are treating our daughter!! It´s is important to find doctors that have been trainned in Mehta Cast and have the proper table to do the procedure. Best of luck!!!naMom fina 2nd cast in SLC 90º to 50º in castOn Thu, Feb 9, 2012 at 1:26 PM, Amber Scholl <amber@...> wrote: Hang in there it does get better! My suggestion would be to check out thelist of docs ISOP has in the files section maybe? Also I agree with yourfeeling of wanting an experienced doc. We live in NE & travel to SLC. Myfeeling was with time/age being so very important & a small window for acure I wanted my son to have the best chance possible. Maybe if your.Current doc is that interessed he could go to the ISOP trainingconferences heather puts on?best of luck!AmberMommy to LeviIn 2nd cast SLC 31* to 16/17* in cast > Hello everyone. My 6 month old was just diagnosed with Idiopathic> Scoliosis. His curve is measuring 48-50 degrees. Our orthopedic Dr. said> his recommendation is casting, but he does not have any first hand> experience with this, nor did he know of anyone in our area that does. He> is meeting with two co-workers next week to discuss my son's case and is> then getting back to us. He said he'd like us to have him casted locally> so that he can monitor, but this doesn't exactly appeal to me if there> aren't any Dr's in the area with a lot of experience casting young babies.>> I, personally, have been doing as much research online as I can regarding> where he can be casted. It's extremely overhwelming (as I'm sure everyone> says when they are first faced with this!) I'm so glad that I found this> site because there seems to be an abundance of information here.>> My question is this: Does anyone know of any Doctors that are known for> casting in my area? We live in , MS. I searched this site and found> that someone had said awhile back that the only Dr. in the south/southeast> that was trained in casting was in Birmingham, AL. We are definitely> willing to travel if it means getting the best possible treatment.>> I also have family in PA, so traveling to PA is also a possibility. (I've> heard Shriners in PA casts?)I would really just like some information> from someone that has been down this road...first hand. Any and all> information is greatly appreciated! Thank you,>> >>

[Guest guest]

9 degrees!!! Yay!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of MedlinSent: Thursday, February 09, 2012 12:09 PMinfantile scoliosis treatment Subject: Re: New here. 6 month old just diagnosed. Casting questions! Hey !We live in NC but travel to greenville, SC to be casted at the shrinners hospital. We started casting Logan at 9 months old with a 45 degree curve. We are still casting right now. As of the last out of cast exray back in september, Logan was 9 degrees. He just had cast #12 applied on Tuesday. He is 2 yrs old and they are very hopeful that he will be cured. He has about 6-8 more months-ish....maybe =) Logan's mama (45 down to 9 out of cast, 12th cast, 2 years old) From: lindsayrineer <lindsayrineer@...>infantile scoliosis treatment Sent: Thursday, February 9, 2012 10:09 AMSubject: New here. 6 month old just diagnosed. Casting questions! Hello everyone. My 6 month old was just diagnosed with Idiopathic Scoliosis. His curve is measuring 48-50 degrees. Our orthopedic Dr. said his recommendation is casting, but he does not have any first hand experience with this, nor did he know of anyone in our area that does. He is meeting with two co-workers next week to discuss my son's case and is then getting back to us. He said he'd like us to have him casted locally so that he can monitor, but this doesn't exactly appeal to me if there aren't any Dr's in the area with a lot of experience casting young babies.I, personally, have been doing as much research online as I can regarding where he can be casted. It's extremely overhwelming (as I'm sure everyone says when they are first faced with this!) I'm so glad that I found this site because there seems to be an abundance of information here.My question is this: Does anyone know of any Doctors that are known for casting in my area? We live in , MS. I searched this site and found that someone had said awhile back that the only Dr. in the south/southeast that was trained in casting was in Birmingham, AL. We are definitely willing to travel if it means getting the best possible treatment.I also have family in PA, so traveling to PA is also a possibility. (I've heard Shriners in PA casts?)I would really just like some information from someone that has been down this road...first hand. Any and all information is greatly appreciated! Thank you,

[Guest guest]

If you want to expedite things at Shriners in Philly, contact Janet Cerrone at

janetcerrone@... or 1-800-281-4050.

Your local Shriners group might be able to assist with travel costs. If you

google them, you should be able to find a temple (that's what they are called)

in your area.

Best of luck.

>

> Thanks everyone! I checked out the list and found that Birmingham is the

closest to us. I plan to contact Both Birmingham and Shriners in Philly.

>

> Also...I know that all insurance companies are different, but is there such a

thing as them helping with travel costs? I ask bc traveling to pa every 6-8

weeks could get expensive!

>

> Thanks again...we are just ready to get him in his first cast.

>