Re: Bex New Brace #2 [2 Attachments]

[Guest guest]

Didnt come through on the junk lap top Im using...

HRH

> I'm gonna try to attach the cell phone pic of Izzy holding Bex's hand

> while he

> gets his brace on : ) So sweet.

>

> Heidi, Bexon's Mommy, (4 years old, 10 casts from Salt Lake City

> Shriners,

> currently down from 63 degrees to 14 in brace. You can read Bexon's Story

> on

> Girl to Mom.com)

>

>

>

>

> ________________________________

> From: " heather@... " <heather@...>

> infantile scoliosis treatment

> Sent: Fri, November 18, 2011 9:16:26 AM

> Subject: Re: Bex New Brace #2

>

>

> This is what its all about! Great news Heidi...Ide love to see pics of Iz

> and Bex holding hands! How beautiful is that!!

> HRH

>

>> Thanks, . Bex was 3 degrees up in his 2nd brace this visit- from

>> about 11

>> degrees to about 14 degrees in brace. Unlike I would've been in the

>> past,

>> I'm

>> not upset about the few degrees backwards- I know it's within the margin

>> of

>> error and basically about the same number. But overall, his alignment

>> looked

>> better than ever.

>>

>> To our naked eyes, the X-ray looked better and so does his back without

>> brace.

>> His doctor said we can be cautiously optimistic that Bex may have 1 more

>> brace

>> in 4 months and then possibly switch to a night time only brace in July

>> or

>> August.

>>

>> This is news we could scarcely have dreamed of, with starting at 63

>> degrees. We

>> are so happy with where Bex is now and so very grateful.

>>

>> Bex and Olivia's Isabella (Izzy) got to hang out in SLC- it was

>> wonderful

>> to

>> have them there as cast/brace buddies! She held his hand without

>> prompting

>> when

>> his brace was being tried on in the playroom. It was so precious. His

>> normal

>> life and future is a gift we can never thank you enough for. Never.

>>

>> Love,

>>

>> Heidi, Bexon's Mommy, (4 years old, 10 casts from Salt Lake City

>> Shriners,

>> currently down from 63 degrees to 14 degrees in brace. You can read

>> Bexon's

>> Story on www.GirltoMom.com)

>>

>>

>>

>>

>> ________________________________

>> From: " heather@... " <heather@...>

>> infantile scoliosis treatment

>> Sent: Fri, November 11, 2011 8:30:31 AM

>> Subject: Re: Fw: Bexon's First Brace Check

>>

>>

>> Thanks for hopping on CAST to share this FABULOUS Bex update! His

>> journey

>> is inspiring to many and so is your dedication to spreading the ET

>> message! We love you guys and please always keep us posted. ~And, great

>> news about the book agent!

>> Fingers and toes crossed.

>> HRH

>>

>>> Not sure if this went through...see below : )

>>>

>>>

>>> ----- Forwarded Message ----

>>>

>>> From: NIck Guthe <nickguthe@...>

>>> infantile scoliosis treatment

>>> Cc: Montoya <isop06@...>

>>> Sent: Thu, November 10, 2011 5:34:24 PM

>>> Subject: Bexon's First Brace Check

>>>

>>>

>>> Hey C.A.S.T. family and !

>>>

>>> I am totally not caught up on posts, have been busy with life, getting

>>> my

>>> health

>>> on track (gave up drinking), career (I got a New York book agent 2

>>> weeks

>>> ago and

>>> hope to someday publish my novel about Infantile Scoliosis), etc.

>>>

>>> But I wanted to post an encouraging message about Bex's first brace

>>> experience:

>>> It is SO EASY!!!

>>>

>>> We LOVE the brace. Bex has never complained about it. His back looks

>>> gorgeous.

>>> We go for his first brace check and new X-rays next week and will get a

>>> new

>>> number, but I'm not scared this time. His back looks better to me than

>>> when we

>>> got the brace. This would never, ever have been possible without

>>> Mehta/EDF

>>> casting first, of course.

>>>

>>> I just wanted to say for any families going through or considering

>>> casting,

>>> there IS a light at the end of the tunnel and it can be very bright!

>>> 10

>>> casts

>>> was very difficult: sometimes just normal life, sometimes painful and

>>> scary, but

>>> it was all worth it. Life is very beautiful right now and we have Mehta

>>> casting,

>>> ISOP and Shriners to thank.

>>>

>>> And of course you Heath and Liv!

>>>

>>> Love,

>>>

>>> Heidi, Bexon's Mommy, (4 years old, in 10 casts from Salt Lake City

>>> Shriners,

>>> currently down from 63 degrees to 10.9 in first brace. You can read

>>> Bexon's

>>> Story on Girl to Mom.com)

>>

>>

>>

>

>

>