RE: Re: Introduction - Kenley 4 months old

[Guest guest]

Hey!Logan was diagnoses at 5 months old. After being diagnosed we were sent to 4 seperate specialist, Duke, UNC, ped ortho from Harvard and a locan ped ortho, none of which ever heard or offered casting. So bouncing between specialist, we did get an MRI. I scowered the internet for another answer, which is when I found ISOP and then found Shrinners in SC. We were seen at shrinners when Logan was 8 months old, and he was casted at 9 months old. Logan's mama (45 down to 9 out of cast, 2 years old)

From: cynsereno <cynsereno@...> infantile scoliosis treatment Sent: Saturday, January 28, 2012 9:27 PM Subject: Re: Introduction - Kenley 4 months old

Thanks for the quick reply, . I am glad to hear that Logan is doing so well. If you don't mind my asking, at what age was Logan diagnosed and what were the steps from initial diagnosis to casting treatment?

>

> Hey!

> Welcome! We live in northern NC and travel to greenville SC, shriners hospital for Logan's casting. There are no docs in NC that do casting. Wait, I think Duke just started this past November, but the do not have a lot of experience with the procedure. I think if you go north, Erie PA has a hospital and there seems to be another hospital in the DC area....I think. We started casting Logan at 9 months old. His curve was 45 degrees. He is now just out of his #11 and as of out of cast xray post #9 he was 9 degrees out of cast. It has been a LONG journey and we are still not through, but has been the best decision that we made for our lil boy.

> This group is full of wonderful people with wonderful advice! Good luck with you and your lil boy!

> Â

> Attached pics:

> first two and 45 degrees and a lot of rotation.

> last 2 are where we are now and we keep praying its our final cast. =)

> Â

>

> Logan's mama (45 down to 9 out of cast, 2 years old)

>

>

> ________________________________

> From: cynsereno <cynsereno@...>

> infantile scoliosis treatment

> Sent: Saturday, January 28, 2012 8:29 PM

> Subject: Introduction - Kenley 4 months old

>

>

>

> Â

>

> Hello,

>

> I am new to the group from the Northern Virginia area. My daughter Kenley has been diagnosed with Scoliosis with a 23 degree curve. We have an appointment with Children's National in Fairfax, VA on Monday. Does anyone have experience with the Dr's in this area? I have been doing as much research as I can online regarding this diagnosis and the resources available in the Washington, D.C. area, but am getting overwhelmed...any information is appreciated.

>

> Thank you

>

[Guest guest]

Hey!Logan was diagnoses at 5 months old. After being diagnosed we were sent to 4 seperate specialist, Duke, UNC, ped ortho from Harvard and a locan ped ortho, none of which ever heard or offered casting. So bouncing between specialist, we did get an MRI. I scowered the internet for another answer, which is when I found ISOP and then found Shrinners in SC. We were seen at shrinners when Logan was 8 months old, and he was casted at 9 months old. Logan's mama (45 down to 9 out of cast, 2 years old)

From: cynsereno <cynsereno@...> infantile scoliosis treatment Sent: Saturday, January 28, 2012 9:27 PM Subject: Re: Introduction - Kenley 4 months old

Thanks for the quick reply, . I am glad to hear that Logan is doing so well. If you don't mind my asking, at what age was Logan diagnosed and what were the steps from initial diagnosis to casting treatment?

>

> Hey!

> Welcome! We live in northern NC and travel to greenville SC, shriners hospital for Logan's casting. There are no docs in NC that do casting. Wait, I think Duke just started this past November, but the do not have a lot of experience with the procedure. I think if you go north, Erie PA has a hospital and there seems to be another hospital in the DC area....I think. We started casting Logan at 9 months old. His curve was 45 degrees. He is now just out of his #11 and as of out of cast xray post #9 he was 9 degrees out of cast. It has been a LONG journey and we are still not through, but has been the best decision that we made for our lil boy.

> This group is full of wonderful people with wonderful advice! Good luck with you and your lil boy!

> Â

> Attached pics:

> first two and 45 degrees and a lot of rotation.

> last 2 are where we are now and we keep praying its our final cast. =)

> Â

>

> Logan's mama (45 down to 9 out of cast, 2 years old)

>

>

> ________________________________

> From: cynsereno <cynsereno@...>

> infantile scoliosis treatment

> Sent: Saturday, January 28, 2012 8:29 PM

> Subject: Introduction - Kenley 4 months old

>

>

>

> Â

>

> Hello,

>

> I am new to the group from the Northern Virginia area. My daughter Kenley has been diagnosed with Scoliosis with a 23 degree curve. We have an appointment with Children's National in Fairfax, VA on Monday. Does anyone have experience with the Dr's in this area? I have been doing as much research as I can online regarding this diagnosis and the resources available in the Washington, D.C. area, but am getting overwhelmed...any information is appreciated.

>

> Thank you

>

[Guest guest]

Lots of luck tomorrow!!! Sent from my iPodOn Jan 29, 2012, at 11:08 AM, "cynsereno" <cynsereno@...> wrote:

Thank you Shana!

I appreciate the information. This is easing my mind a bit. We are seeing another Dr. in the same practice as Dr. Blakemore.

I am glad to hear that your daughter is doing well with her cast.....I would love the opportunity to meet with you and really appreciate the offer.

I will keep you posted on the outcome of the appt tomorrow.

>

> > Hello,

> >

> > I am new to the group from the Northern Virginia area. My daughter Kenley has been diagnosed with Scoliosis with a 23 degree curve. We have an appointment with Children's National in Fairfax, VA on Monday. Does anyone have experience with the Dr's in this area? I have been doing as much research as I can online regarding this diagnosis and the resources available in the Washington, D.C. area, but am getting overwhelmed...any information is appreciated.

> >

> > Thank you

> >

> >

> >

> >

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[Guest guest]

Please keep us posted on the status of Early Treatment w Mehta casting at JH.Thanks a bunch.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of lmsanders37Sent: Saturday, January 28, 2012 7:14 PMinfantile scoliosis treatment Subject: Re: Introduction - Kenley 4 months old We are going to Hopkins but he hasn't made any indication of whether he does the casting or not. I'll keep you posted.>> Hello,> > I am new to the group from the Northern Virginia area. My daughter Kenley has been diagnosed with Scoliosis with a 23 degree curve. We have an appointment with Children's National in Fairfax, VA on Monday. Does anyone have experience with the Dr's in this area? I have been doing as much research as I can online regarding this diagnosis and the resources available in the Washington, D.C. area, but am getting overwhelmed...any information is appreciated.> > Thank you>

[Guest guest]

Please go to the Files section of CAST when you get a chance to read CAST Support Group Netiquette.  Thanks a lot.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of cynserenoSent: Sunday, January 29, 2012 9:09 AMinfantile scoliosis treatment Subject: Re: Introduction - Kenley 4 months old Thank you Shana!I appreciate the information. This is easing my mind a bit. We are seeing another Dr. in the same practice as Dr. Blakemore. I am glad to hear that your daughter is doing well with her cast.....I would love the opportunity to meet with you and really appreciate the offer.I will keep you posted on the outcome of the appt tomorrow.> > > Hello,> > > > I am new to the group from the Northern Virginia area. My daughter Kenley has been diagnosed with Scoliosis with a 23 degree curve. We have an appointment with Children's National in Fairfax, VA on Monday. Does anyone have experience with the Dr's in this area? I have been doing as much research as I can online regarding this diagnosis and the resources available in the Washington, D.C. area, but am getting overwhelmed...any information is appreciated.> > > > Thank you> > > > > > > > > > TODAY(Beta) • Powered by > > 'Tom Terrific' hasn't been of late> > A strange thing has happened to star quarterback Tom Brady in the Patriots' biggest games.> > Privacy Policy>