Will anyone be in Rochester next week?

[Guest guest]

Hi All,

We'll be in Rochester next week and I'm nervous about this one.... Hoping that Noelle's numbers are holding and still improving. We'll be there most of the week as we are definitely getting a new brace and taking a side trip to see Niagara Falls if all goes well and we don't regress back into a cast. So please keep Noelle in your prayers/thoughts for a successful visit and let me know if any of you will be there on the 25th-29th. I'll post when we return! - Noelle's mommy, 4 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and went into cast 9Back in brace at 8 degrees supine, 13 standing! reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III