Re: Re: 1st surgery Questions

[Guest guest]

Hi ,

Please go to the Resource page on www.infantilescoliosis.org to dwld/read

a booklet titled VEPTR Patient Handbook. This booklet is not for VEPTR

patients only. It has many valuable tips on managing spine surgery pre

and post procedure. Please read and let us know if you have questions.

Good luck on the 21st. Please keep us posted.

HRH

> hello!!!my daughther Stefany is 11 year old she is schedule for cirjury

> next march 21, now she is on brace for about 2 year but her scoliosis

> continue growing nothing stop her back. I'am verry concernd. Iam happy to

> now that i'm not alone in this trip....nancy

>

>

> From: a <minbrock13@...>

> infantile scoliosis treatment

> Sent: Tuesday, January 17, 2012 11:36 AM

> Subject: Re: 1st Cast Questions

>

>

>  

> Thanks again Amber and thank you for you FB reply as well. We are going to

> get it trimmed, thank goodness there are boards like this to know that was

> a option. Thank you, a

>

>

>>

>> a,

>> I know I already wrote to you on FB but thought I'd check in with you

>> again. They can trim it or flare it out on the bottom around the tail

>> bone. That being said I felt very much the same way that first night.

>> Levi didn't want to get up or move. He just laid next to me and watched

>> cartoons at the hotel. I thought for sure the next day they would trim

>> the cast but they told me it was perfect....to give him time. Honestly

>> it

>> was just that first night/next morning that were that bad. I thought he

>> can't sit, roll over, get up, pick things up off the floor/play on the

>> floor....how are we going to do this? That didn't last but 3 days. By

>> two weeks he could do all but get up from a laying down position & by

>> three weeks it was full on back to " normal " . Don't get me wrong there

>> are

>> little things that are hard now....like watching him struggle in the

>> ball

>> pit at a birthday party or that he can't go to the bottom floor of the

>> children's museum because of the water tables...but nothing like that

>> first night. Remember he has to " relearn " how to do things again using

>> his leg muscles instead of the lower back. Try to hang in & remember

>> that

>> even if things aren't perfect right now its better then the

>> alternatives.

>>

>> Hugs,

>>

>> Amber

>> mommy to Levi

>>

>> ps. use the moleskin " petals " to cover any of the rough areas esp by the

>> face. Levi now uses his cast to " scratch " his chin & the back of his

>> head...he's a funny kid.

>>

>>

>> > My 13 month old son got his first cast applied today and it's not

>> > going so well. I know he will take some time to adjust but he is a

>> mess

>> > (and so am I). I feel like its too long and he can't sit down. He cant

>> sit

>> > in his highchair. It is so low and it resting on his pelvic area and

>> so

>> > far up to his chin. Is there anything we can do?! I feel desperate.

>> >

>> > Thank you,

>> >

>> > a

>> >

>> >

>>

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