Re: Re: disappointed going into cast #8

[Guest guest]

,

No, it doesn’t go over the

shoulder. That choice depends on the location of the curve (higher up). I

conclude my daughter’s curve is stiff and responds slowly. But this is a

guess. We really don’t have a clue.

Sherry

disappointed going into cast #8

>

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>

>

> Hello,

> We are making plans to head to Greenville SC for 's #8 cast! I can

> hardly believe we have been doing this so long. I have a concern about my

> being sooo skinny!!! Every time he comes out of another cast his

> little body seems to get thinner and thinner. Does this seem to be the

case

> with any of your children? is 2 1/2 and is very active for a child

in

> a cast ( in my opinion) You can see every rib and I worry that he doesn't

> have enough fat or muscle to keep him safe from falls when he is out of

his

> cast. I'm having a really hard time dealing when he gets these casts off

> because all I see is a really bad curve and a skinny little boy. We

started

> all of this when he was 17 months old and he was chubby and still a baby

> really! I just need to know that we are doing to right thing!!! I feel so

> helpless as I sit here and sob.

>

> This last cast was a little different from the others in that when the doc

> cut the D hole in the back he cut it directly over his curve not on the

> opposite side like he had always done in the past. I questioned the nurse

> about it and spoke to the doc on the phone about it ( he was still in the

> casting room with other patients) he told me that he thought it was fine

and

> that it just allowed us to get back there and do something for him if we

> needed to. I know that the D is to de-rotate the spine but I just thought

> that maybe the doc should know a little more about it than me!

>

> So in a nut shell I'm concerned that I don't see improvement in 's

> spine and that he is so stinking skinny! Help!

>

>

>

[Guest guest]

,

My sons cast goes over the shoulder. From what I've read that is

important for higher curves. I do not know the exact vertebrae involved

but his curve is between/right below his shoulder blades. He is in cast 2

right now & oh he looked so skinny when we took off that first one! I

actually didn't like it as much as I thought I would as I thought I was

going to break him when I picked him up My son before casting was

skinny (as his dad was as a boy) & was a picky eater. We were pleased to

find out he had actually gained 4 lbs while wearing that first cast. I

believe that forcing his spine to straighten out took pressure of his

stomach somehow because my baby is now an eater! He eats everything in

sight & actually asks for food now. However he still looks skinny. The

dietitian at SLC suggested adding powdered milk to his chocolate whole

vit. D milk or yogurt & putting cheese on anything. I think I saw once

something in the resources section of ISOP website with calorie booster

ideas. I make sure that Levi gets a healthy variety of foods but I'm not

afraid once he's ate those to dish out the high calorie goodies to make

sure he's getting enough.

Amber

ps. Levi is also very active...so active that when we asked about PT while

in cast to maintain muscles & activity level the PA laughed & said that he

strongly believes in PT but in our case it would be a waist of our time &

money... so I hear you!

> Sherry,

> has an older sister who has always been plump and just recently

> turned 6 and is now starting to slim down some. I guess it may just have

> something to do with him being a little active boy in a cast? Does your

> daughter's cast go over her shoulders? 's doesn't and I wonder if

> that has something to do with the lact of results? Thanks-

>

>

>>

>> ,

>>

>> My older daughter is almost 6, and I can't believe how skinny she is.

>> She's

>> a good eater and used to be a very roly poly baby. Does have an

>> older

>> sibling you can compare his changes to? My younger daughter who is

>> casted

>> is also getting skinny (but she has more leg muscle than the older one).

>> She just turned 4.

>>

>>

>>

>> My younger one hasn't seen much correction in the last few casts (she's

>> in

>> #8). I think Dr. C is trying different things to manipulate her spine

>> each

>> time.

>>

>>

>>

>> Sherry

>>

>>

>>

>> disappointed going into cast #8

>>

>>

>>

>>

>>

>> Hello,

>> We are making plans to head to Greenville SC for 's #8 cast! I can

>> hardly believe we have been doing this so long. I have a concern about

>> my

>> being sooo skinny!!! Every time he comes out of another cast his

>> little body seems to get thinner and thinner. Does this seem to be the

>> case

>> with any of your children? is 2 1/2 and is very active for a child

>> in

>> a cast ( in my opinion) You can see every rib and I worry that he

>> doesn't

>> have enough fat or muscle to keep him safe from falls when he is out of

>> his

>> cast. I'm having a really hard time dealing when he gets these casts off

>> because all I see is a really bad curve and a skinny little boy. We

>> started

>> all of this when he was 17 months old and he was chubby and still a baby

>> really! I just need to know that we are doing to right thing!!! I feel

>> so

>> helpless as I sit here and sob.

>>

>> This last cast was a little different from the others in that when the

>> doc

>> cut the D hole in the back he cut it directly over his curve not on the

>> opposite side like he had always done in the past. I questioned the

>> nurse

>> about it and spoke to the doc on the phone about it ( he was still in

>> the

>> casting room with other patients) he told me that he thought it was fine

>> and

>> that it just allowed us to get back there and do something for him if we

>> needed to. I know that the D is to de-rotate the spine but I just

>> thought

>> that maybe the doc should know a little more about it than me!

>>

>> So in a nut shell I'm concerned that I don't see improvement in 's

>> spine and that he is so stinking skinny! Help!

>>

>>

>>

>

>

>

[Guest guest]

Hi ,

At what age was first treated w/ a properly applied series of Mehta

casts?

Even if Mehtas specialized edf casting does not completely cure ,

correction and maintenance via this method is a superior plan. I know

from first hand experience with my own daughter that even children with

severe curves treated late, the benefits are GREAT. Try and think of how

far he would have progressed without it, to try and help keep things in

perspective. Its helping his alignment, its reducing the cosmetic

deformity (which will be very important to him in a few years) and its

buying growth time.

Please keep us posted upon your return and continue knowing that you are

doing the right thing. And~ are in great hands.

HRH

> ,

> When we first went to Greenville Shriners in 6/11, was in his 4th

> cast from Duke and we decided to go under the docs care @ Shriners at that

> time. has just come out of cast #7 ( 3rd from Shriners doc) we have

> not taken an out of cast xray since 6/11. It is my feeling that we are

> not getting the results that we want... in saying that we have still been

> given a little hope that casting can cure him. When started at

> Shriners his curve was at 78* out of cast and in cast the last two times

> he has measured around 34-35* in cast. I know this is a LONG process but

> it's all we can do for right now. is in God's hands and all I

> can do is pray pray pray that He will use these casts to cure him!

>

> Thanks for the responses. We leave dark and early in the morning to head

> to SC!

>

>

>

>

>>

>> The D shaped hole is to be applied on the concavity side of the curve,

>> not

>> past the midline to help address rotation. Some docs are believers in

>> the

>> back window, some are not.

>>

>> Do you know yet if s curve(s) are decreasing in the series of EDF

>> casts? Or, is casting just an avenue to maintain and buy growth time?

>>

>> HRH

>>

>>

>>

>> From: infantile scoliosis treatment

>> [mailto:infantile scoliosis treatment ] On Behalf Of Richmondgirl

>> Sent: Sunday, January 29, 2012 9:28 AM

>> infantile scoliosis treatment

>> Subject: disappointed going into cast #8

>>

>>

>>

>>

>>

>> Hello,

>> We are making plans to head to Greenville SC for 's #8 cast! I can

>> hardly believe we have been doing this so long. I have a concern about

>> my

>> being sooo skinny!!! Every time he comes out of another cast his

>> little body seems to get thinner and thinner. Does this seem to be the

>> case

>> with any of your children? is 2 1/2 and is very active for a child

>> in

>> a cast ( in my opinion) You can see every rib and I worry that he

>> doesn't

>> have enough fat or muscle to keep him safe from falls when he is out of

>> his

>> cast. I'm having a really hard time dealing when he gets these casts off

>> because all I see is a really bad curve and a skinny little boy. We

>> started

>> all of this when he was 17 months old and he was chubby and still a baby

>> really! I just need to know that we are doing to right thing!!! I feel

>> so

>> helpless as I sit here and sob.

>>

>> This last cast was a little different from the others in that when the

>> doc

>> cut the D hole in the back he cut it directly over his curve not on the

>> opposite side like he had always done in the past. I questioned the

>> nurse

>> about it and spoke to the doc on the phone about it ( he was still in

>> the

>> casting room with other patients) he told me that he thought it was fine

>> and

>> that it just allowed us to get back there and do something for him if we

>> needed to. I know that the D is to de-rotate the spine but I just

>> thought

>> that maybe the doc should know a little more about it than me!

>>

>> So in a nut shell I'm concerned that I don't see improvement in 's

>> spine and that he is so stinking skinny! Help!

>>

>>

>>

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