Introduction

[Guest guest]

Hello,

I am going to attach the letter I sent to to make it a bit eaiser for

me:) Sorry for the long intro but looking for others in my area who are going

through the same thing I am, and to see if they have used the same doctors.

This is a great site and I would like to thank , and everyone who made it

possible.

Our journey has just begun. I am new and fresh at terms and such so please

excuse me if I don't make sense:) Reid is our second child and the poor kid has

been through the ringer even before he was born.

My 11 month old (today) son was just diagnosed with infantile scoliosis, which I

guess we will see if it is congenital after the MRI. ???? Not sure if that is

how it works. I had polyhydramnios (which is too much amniotic fluid) during my

pregnancy, so he had little or no room to move around in utero. About two

months after he was born I noticed that his head was ALWAYS tilted to one side

and when we went to the doctor she told us that it was most likely torticollis.

We took him to a orthopedic and she confirmed that it was indeed torticollis.

We had him in PT two times a week for the first couple of months, and then he is

still being treated once a month since he has improved so much. He had RSV

which caused phenomia and was hospitalize for a week, and has asthma. He was

" colicly " , had acid reflux and we found out that all his issues were due to a

milk allergy. Once we changed his formula (for the 11th time) he was a new and

enjoyable little guy. We later found out that he is also highly allergic to

peanuts and that was from just skin contact. We go to a top allergist next

month to get a better idea what is going on with him in the allergy department,

and I am looking forward to that.

Back in June our PT noticed that he had a " rib hump " on his back and thought it

was something we should look into, and so we did. The radiologist diagnosed him

with scoliosis and so we took him back to his orthopedist which (in my opinion)

brushed us off, and told us not to worry that it was because he can't stand yet

and to come back when he turned a year. He has also been under the care of a

neurosurgeon since he has such a big noggin, and I showed him his back and he

told me that I needed to get a second opinion and referred us to a Dr. at

Hopkins, in Baltimore. We are very lucky in the sense that we

live in land and Hopkins is only a hour drive for us. So we took him there

and he said that his curve was 35 degrees and we really need to look into

casting or a brace and we were devastated to say the least.....pretty much

speechless. I know it's not something terminal, and I am over the moon

regarding that, but the thought of my baby being put under anesthesia and being

in cast for months is terrifying. He also told us that his curve back in June

(after looking at the x-ray) was 25 degrees and anything over 10 degrees was

considered scoliosis.

So needless to say my husband and I have decided to go ahead with the

casting.....