Re: a's intro

[Guest guest]

Becky,

I will be sure to check out your post regarding Kylie's update. Your post just

gave me some great ideas that I didn't know:) Thank you so much for the warm

welcome. This is very overwhelming and I am consuming so much information

already. Thank you so much and I can't wait to read about your daughter.

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> > Hello,

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> > I am going to attach the letter I sent to to make it a bit eaiser

for me:) Sorry for the long intro but looking for others in my area who are

going through the same thing I am, and to see if they have used the same

doctors. This is a great site and I would like to thank , and everyone

who made it possible.

> >

> > Our journey has just begun. I am new and fresh at terms and such so please

excuse me if I don't make sense:) Reid is our second child and the poor kid has

been through the ringer even before he was born.

> >

> > My 11 month old (today) son was just diagnosed with infantile scoliosis,

which I guess we will see if it is congenital after the MRI. ???? Not sure if

that is how it works. I had polyhydramnios (which is too much amniotic fluid)

during my pregnancy, so he had little or no room to move around in utero. About

two months after he was born I noticed that his head was ALWAYS tilted to one

side and when we went to the doctor she told us that it was most likely

torticollis. We took him to a orthopedic and she co nfirmed that it was indeed

torticollis. We had him in PT two times a week for the first couple of months,

and then he is still being treated once a month since he has improved so much.

He had RSV which caused phenomia and was hospitalize for a week, and has asthma.

He was " colicly " , had acid reflux and we found out that all his issues were due

to a milk allergy. Once we changed his formula (for the 11th time) he was a new

and enjoyable little guy. We later found out that he is also highly alle rgic to

peanuts and that was from just skin contact. We go to a top allergist next month

to get a better idea what is going on with him in the allergy department, and I

am looking forward to that.

> >

> > Back in June our PT noticed that he had a " rib hump " on his back and thought

it was something we should look into, and so we did. The radiologist diagnosed

him with scoliosis and so we took him back to his orthopedist which (in my

opinion) brushed us off, and told us not to worry that it was because he can't

stand yet and to come back when he turned a year. He has also been under the

care of a neurosurgeon since he has such a big noggin, and I showed him his back

and he told me that I needed to get a second opinion and referred us to Dr.

Sponseller at Hopkins, in Baltimore. We are very lucky in the sense that we live

in land and Hopkins is only a hour drive for us. So we took him there and he

said that his curve was 35 degrees and we really need to look into casting or a

brace and we were devastated to say the least.....pretty much speechless. I know

it's not something terminal, and I am over the moon regarding that, but the

thought of my baby being put under anesthesia and being in ca st for months is

terrifying. He also told us that his curve back in June (after looking at the

x-ray) was 25 degrees and anything over 10 degrees was considered scoliosis.

> >

> > So needless to say my husband and I have decided to go ahead with the

casting.....

> >

> >

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