Guest guest Posted January 13, 2012 Report Share Posted January 13, 2012 a, I know I already wrote to you on FB but thought I'd check in with you again. They can trim it or flare it out on the bottom around the tail bone. That being said I felt very much the same way that first night. Levi didn't want to get up or move. He just laid next to me and watched cartoons at the hotel. I thought for sure the next day they would trim the cast but they told me it was perfect....to give him time. Honestly it was just that first night/next morning that were that bad. I thought he can't sit, roll over, get up, pick things up off the floor/play on the floor....how are we going to do this? That didn't last but 3 days. By two weeks he could do all but get up from a laying down position & by three weeks it was full on back to " normal " . Don't get me wrong there are little things that are hard now....like watching him struggle in the ball pit at a birthday party or that he can't go to the bottom floor of the children's museum because of the water tables...but nothing like that first night. Remember he has to " relearn " how to do things again using his leg muscles instead of the lower back. Try to hang in & remember that even if things aren't perfect right now its better then the alternatives. Hugs, Amber mommy to Levi ps. use the moleskin " petals " to cover any of the rough areas esp by the face. Levi now uses his cast to " scratch " his chin & the back of his head...he's a funny kid. > My 13 month old son got his first cast applied today and it's not > going so well. I know he will take some time to adjust but he is a mess > (and so am I). I feel like its too long and he can't sit down. He cant sit > in his highchair. It is so low and it resting on his pelvic area and so > far up to his chin. Is there anything we can do?! I feel desperate. > > Thank you, > > a > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2012 Report Share Posted January 13, 2012 Hi a,I'm on facebook as well (Becky Stuckless) and I've put up albums of Kylie's 1st, 2nd and 4th cast. I was just looking at the pictures from her first cast (last May) which was VERY hard the first almost 24 hours. I was overwhelmed at how big the cast looked on that first day but the pictures of day 2, the neck doesn't seem as high etc, I'm not sure if it's just the fact that she was up and moving as opposed to just lying or how much swelling there might have been (it didn't look like she was swollen the first day, but I did notice that she looked more "comfortable" on day 2.I think for them, it is very overwhelming to wake up with this big thing on (Kylie was 21.5 lbs before the first cast and woke up over 26 lbs, so that thing was HEAVY!). I couldn't believe how different she was when she woke up the next morning (we slept in hospital that first night). It took her another day or two to really figure out how to get around in the cast, but she figured out strategies (mind you she was 26 months old for her first cast) so she was an expert at getting around before the cast. I will also tell you that cast #2 was COMPLETELY different for us. She was up and walking with an hour of being in recovery and ready to go home within about 2 hours. (What a RELIEF!)My only suggestion is to cuddle him as much as you can, just letting him be reassured, and hopefully he will feel up to drinking/eating which will help with the recovery. We have only had to trim cast #1. (at the thighs because it was definitely just a bit low). Casts 2 - 4 we have just walked out of the hospital with no adjustments.BeckyOn 2012-01-13, at 5:36 PM, a wrote: My 13 month old son got his first cast applied today and it's not going so well. I know he will take some time to adjust but he is a mess (and so am I). I feel like its too long and he can't sit down. He cant sit in his highchair. It is so low and it resting on his pelvic area and so far up to his chin. Is there anything we can do?! I feel desperate. Thank you, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 What are the " moleskin petals " ? Are we talking about just regular moleskin that you get at the drug store and just wrapping it over the edge of the cast? We get our first casting experience next Fri it looks like, and looking to make sure we make things as comfortable for Brayden as possible. We are on Facebook if anyone wants to connect with us there... Curt Dennis Thanks! > > a, > I know I already wrote to you on FB but thought I'd check in with you > again. They can trim it or flare it out on the bottom around the tail > bone. That being said I felt very much the same way that first night. > Levi didn't want to get up or move. He just laid next to me and watched > cartoons at the hotel. I thought for sure the next day they would trim > the cast but they told me it was perfect....to give him time. Honestly it > was just that first night/next morning that were that bad. I thought he > can't sit, roll over, get up, pick things up off the floor/play on the > floor....how are we going to do this? That didn't last but 3 days. By > two weeks he could do all but get up from a laying down position & by > three weeks it was full on back to " normal " . Don't get me wrong there are > little things that are hard now....like watching him struggle in the ball > pit at a birthday party or that he can't go to the bottom floor of the > children's museum because of the water tables...but nothing like that > first night. Remember he has to " relearn " how to do things again using > his leg muscles instead of the lower back. Try to hang in & remember that > even if things aren't perfect right now its better then the alternatives. > > Hugs, > > Amber > mommy to Levi > > ps. use the moleskin " petals " to cover any of the rough areas esp by the > face. Levi now uses his cast to " scratch " his chin & the back of his > head...he's a funny kid. > > > > My 13 month old son got his first cast applied today and it's not > > going so well. I know he will take some time to adjust but he is a mess > > (and so am I). I feel like its too long and he can't sit down. He cant sit > > in his highchair. It is so low and it resting on his pelvic area and so > > far up to his chin. Is there anything we can do?! I feel desperate. > > > > Thank you, > > > > a > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 Yes the hospital have it to us & showed us how > What are the " moleskin petals " ? Are we talking about just regular > moleskin that you get at the drug store and just wrapping it over the edge > of the cast? We get our first casting experience next Fri it looks like, > and looking to make sure we make things as comfortable for Brayden as > possible. > > We are on Facebook if anyone wants to connect with us there... Curt Dennis > > > Thanks! > > >> >> a, >> I know I already wrote to you on FB but thought I'd check in with you >> again. They can trim it or flare it out on the bottom around the tail >> bone. That being said I felt very much the same way that first night. >> Levi didn't want to get up or move. He just laid next to me and watched >> cartoons at the hotel. I thought for sure the next day they would trim >> the cast but they told me it was perfect....to give him time. Honestly >> it >> was just that first night/next morning that were that bad. I thought he >> can't sit, roll over, get up, pick things up off the floor/play on the >> floor....how are we going to do this? That didn't last but 3 days. By >> two weeks he could do all but get up from a laying down position & by >> three weeks it was full on back to " normal " . Don't get me wrong there >> are >> little things that are hard now....like watching him struggle in the >> ball >> pit at a birthday party or that he can't go to the bottom floor of the >> children's museum because of the water tables...but nothing like that >> first night. Remember he has to " relearn " how to do things again using >> his leg muscles instead of the lower back. Try to hang in & remember >> that >> even if things aren't perfect right now its better then the >> alternatives. >> >> Hugs, >> >> Amber >> mommy to Levi >> >> ps. use the moleskin " petals " to cover any of the rough areas esp by the >> face. Levi now uses his cast to " scratch " his chin & the back of his >> head...he's a funny kid. >> >> >> > My 13 month old son got his first cast applied today and it's not >> > going so well. I know he will take some time to adjust but he is a >> mess >> > (and so am I). I feel like its too long and he can't sit down. He cant >> sit >> > in his highchair. It is so low and it resting on his pelvic area and >> so >> > far up to his chin. Is there anything we can do?! I feel desperate. >> > >> > Thank you, >> > >> > a >> > >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 Hi a,My son Jaylin turns 5 in February and he had his 1st cast dec. 23,2011 and I agree, it is so hard for everyone when they wake up from the casting. Jaylin just laid there in the bed with a scared look and couldn't move and all swollen from everything he just went through, the hardest thing for us was not to cry in front of him. We was up a lot that night and he was still laying around for most of the next day. We had to help him potty and we got a hold of Riley hospital and they told us after a few days to come up so they could look at him, they ended up trimmed the cast and jaylin could pee by himself again. We will have to take him again because he still can't wipe himself yet, his preschool teachers are helping him so jaylin can stay in school. Everything will get much better,It just takes time. It almost felt like we had a new born again probably about the first 3 days was the worst. Live, laugh, and loveJoyOn Jan 13, 2012, at 6:25 PM, Doug & Becky Reimneitz <dougandbecky@...> wrote: Hi a,I'm on facebook as well (Becky Stuckless) and I've put up albums of Kylie's 1st, 2nd and 4th cast. I was just looking at the pictures from her first cast (last May) which was VERY hard the first almost 24 hours. I was overwhelmed at how big the cast looked on that first day but the pictures of day 2, the neck doesn't seem as high etc, I'm not sure if it's just the fact that she was up and moving as opposed to just lying or how much swelling there might have been (it didn't look like she was swollen the first day, but I did notice that she looked more "comfortable" on day 2.I think for them, it is very overwhelming to wake up with this big thing on (Kylie was 21.5 lbs before the first cast and woke up over 26 lbs, so that thing was HEAVY!). I couldn't believe how different she was when she woke up the next morning (we slept in hospital that first night). It took her another day or two to really figure out how to get around in the cast, but she figured out strategies (mind you she was 26 months old for her first cast) so she was an expert at getting around before the cast. I will also tell you that cast #2 was COMPLETELY different for us. She was up and walking with an hour of being in recovery and ready to go home within about 2 hours. (What a RELIEF!)My only suggestion is to cuddle him as much as you can, just letting him be reassured, and hopefully he will feel up to drinking/eating which will help with the recovery. We have only had to trim cast #1. (at the thighs because it was definitely just a bit low). Casts 2 - 4 we have just walked out of the hospital with no adjustments.BeckyOn 2012-01-13, at 5:36 PM, a wrote: My 13 month old son got his first cast applied today and it's not going so well. I know he will take some time to adjust but he is a mess (and so am I). I feel like its too long and he can't sit down. He cant sit in his highchair. It is so low and it resting on his pelvic area and so far up to his chin. Is there anything we can do?! I feel desperate. Thank you, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 Hey a! Just read your post! Sierra was 12 mo. on her 1st cast! Sierra has a short torso! The cast was way too long and was diging into her thighs, way too high under her arm pits and under her chin and we also had a bad pressure point digging into her stomach on one side! We were scared to death to and did not know what to do! The cast can be TRIMMED without affecting the integrity of the cast and what the Dr. is trying to do with the manipulation of your Son’s spine. We are on cast #9 and pretty much been through it all! The cast Tech.’s are very important. I know all of their names and always talk to them and bring in a prev. cast for them to go by before the next cast is applied. We DO NOT leave the Hospital until I am comfortable with all aspects of the cast. We live on the Gulf Coast of Alabama and travel up to Birmingham Alabama..about 4 1/2 hrs. to see Dr. K at Children’s Hospital (which is great) that we do not have to travel far! Dr. K was trained by Dr. Mehta..he is originally from Philadelphia. Anyway, No one down in this area has even heard of Infantile Scoliosis or Mehta casting so they will NOT trim or do anything with Sierra’s cast. My Husband can flare it out on the stomach area if it is putting to much pressure! Only Dr. K and his staff know how to trim properly! We do have the grey torso shirt under the cast and have never had any skin issues! They wrap her cast in a peach color water proof tape..and I always check for ruff edges....they send a roll home with us also! We do not use mole skin...we use Duct Tape all around the bottom edges to protect against accidents! We also tape around the area under her chin for food spills. I always keep a shirt on Sierra and sometime a plastic bib if it is something messy she is eating. Sierra does so well....she will be up running around by the afternoon after the cast is applied. We use the Pampers Cruisers thin max..they slide easier under the cast...we have used Velcro strips also to hold her pants up..but now the cast Tech.’s do a bell shape for us so Sierra has kinda some hips to hold them up! My husband with Dr. K’s permission cuts Sierra’s cast off the day before we go up and have next cast applied...stay away from that saw...he just cuts her cast off with tin snips in about 2 min. Your Son will get used to cast life and so will you...it is doable and worth every min. of it. The cast can be trimmed....We have to live with our cast at 3 mo. at a time! Hope this helps....If you want to contact me my cell is 251-228-0431 and I am on FB...Kristi Strickland ...Hang in there. Sierra does everything that her 4 year old Sister Summer does. She takes dance also! Kristi Mommy to Sierra 34 degrees. 9th cast down to 9 degrees OUT of cast and –6 degrees IN cast. May go to 10th cast in March 2012 or Brace...depending on #’s! From: a Sent: Friday, January 13, 2012 4:36 PM infantile scoliosis treatment Subject: 1st Cast Questions My 13 month old son got his first cast applied today and it's notgoing so well. I know he will take some time to adjust but he is a mess (and so am I). I feel like its too long and he can't sit down. He cant sit in his highchair. It is so low and it resting on his pelvic area and so far up to his chin. Is there anything we can do?! I feel desperate. Thank you,a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2012 Report Share Posted January 15, 2012 a, The first cast is the hardest. It will get better very soon. Your son will adjust quickly. I know the cast seems to fit low and rise up high. I was so concerned the first time, I took our sons to our local Ortho Dr. for a 2nd opinion, but it was normal. Put his toys on a table to play or sometimes a bean bag chair can help with sitting. They do adjust faster than the parents, just give a few more days. You are giving your child an amazing gift. EDF Casting cured my child and he now has no memory of any casts or bracing, just a straight back:) Barb Mom to Evan > > My 13 month old son got his first cast applied today and it's not > going so well. I know he will take some time to adjust but he is a mess (and so am I). I feel like its too long and he can't sit down. He cant sit in his highchair. It is so low and it resting on his pelvic area and so far up to his chin. Is there anything we can do?! I feel desperate. > > Thank you, > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2012 Report Share Posted January 15, 2012 HI a Although our son was casted at 23months old ( almost two months ago at Phili with Dr. C) Ihave a bit of hopefully helpful advice for you ( and others) both from a parent and Occupatioal Therapy professional backround- We used a husband cushion ( the kind people use to sit up in bed- a back and armrest attached) and lean it against the wall. Since it is soft, it has give and the child will be semi-upright which is good for eating ( a bit modified on the floor) and hopefully a bit more comfortable with the cast issue. With that, my creative husband, took a plastic storage container and cut out a U shape ( to make a "desk") so you can put toys, etc on it. We did a container before anything too permanent which was good because our son has been up and about and improving each day- We wish the same fore you!!! We took pictures and wanted to post anyway for the group but I am happy to send to you .... Zehava Mom to Binyamin -1st cast to be removed in two weeks and weill keep everyone posted with progress ( hopefully) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 Great ideas..Please keep us posted! HRH > HI a > Although our son was casted at 23months old ( almost two months ago at > Phili with Dr. C) Ihave a bit of hopefully helpful advice for you ( and > others) both from a parent and Occupatioal Therapy professional backround- > We used a husband cushion ( the kind people use to sit up in bed- a back > and armrest attached) and lean it against the wall. Since it is soft, it > has give and the child will be semi-upright which is good for eating ( a > bit modified on the floor) and hopefully a bit more comfortable with the > cast issue. With that, my creative husband, took a plastic storage > container and cut out a U shape ( to make a " desk " ) so you can put toys, > etc on it. We did a container before anything too permanent which was > good because our son has been up and about and improving each day- We wish > the same fore you!!! > We took pictures and wanted to post anyway for the group but I am happy to > send to you .... > Zehava > Mom to Binyamin -1st cast to be removed in two weeks and weill keep > everyone posted with progress ( hopefully) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Thank you Kristi for taking the time to write me:) The first couple days really do suck! It's sad but it was kind of a releif to come back to work today. He is doing better but still can't sit and play or bend down to pick up things. Thankfully we are only a hour or so from the hospital so we are going Friday morning to get it " trimmed " . I couldn't be more happy. I just wish they would have told me that we could have gotten this done before we left to come home. I might just take you up on your offer and give you a call. Its nice to hear that there really is light after this LONG tunnel. I will try the duct tape too sounds like a good idea. They put the moleskin directly on his skin and it looks like its starting to break out. Thanks agian for taking the time to write me. a > > Hey a! Just read your post! Sierra was 12 mo. on her 1st cast! Sierra has a short torso! The cast was way too long and was diging into her thighs, way too high under her arm pits and under her chin and we also had a bad pressure point digging into her stomach on one side! We were scared to death to and did not know what to do! The cast can be TRIMMED without affecting the integrity of the cast and what the Dr. is trying to do with the manipulation of your Son’s spine. We are on cast #9 and pretty much been through it all! The cast Tech.’s are very important. I know all of their names and always talk to them and bring in a prev. cast for them to go by before the next cast is applied. We DO NOT leave the Hospital until I am comfortable with all aspects of the cast. We live on the Gulf Coast of Alabama and travel up to Birmingham Alabama..about 4 1/2 hrs. to see Dr. K at Children’s Hospital (which is great) that we do not have to travel far! Dr. K was trained by Dr. Mehta..he is originally from Philadelphia. Anyway, No one down in this area has even heard of Infantile Scoliosis or Mehta casting so they will NOT trim or do anything with Sierra’s cast. My Husband can flare it out on the stomach area if it is putting to much pressure! Only Dr. K and his staff know how to trim properly! We do have the grey torso shirt under the cast and have never had any skin issues! They wrap her cast in a peach color water proof tape..and I always check for ruff edges....they send a roll home with us also! We do not use mole skin...we use Duct Tape all around the bottom edges to protect against accidents! We also tape around the area under her chin for food spills. I always keep a shirt on Sierra and sometime a plastic bib if it is something messy she is eating. Sierra does so well....she will be up running around by the afternoon after the cast is applied. We use the Pampers Cruisers thin max..they slide easier under the cast...we have used Velcro strips also to hold her pants up..but now the cast Tech.’s do a bell shape for us so Sierra has kinda some hips to hold them up! My husband with Dr. K’s permission cuts Sierra’s cast off the day before we go up and have next cast applied...stay away from that saw...he just cuts her cast off with tin snips in about 2 min. Your Son will get used to cast life and so will you...it is doable and worth every min. of it. The cast can be trimmed....We have to live with our cast at 3 mo. at a time! Hope this helps....If you want to contact me my cell is 251-228-0431 and I am on FB...Kristi Strickland ...Hang in there. Sierra does everything that her 4 year old Sister Summer does. She takes dance also! > Kristi Mommy to Sierra 34 degrees. 9th cast down to 9 degrees OUT of cast and †" 6 degrees IN cast. May go to 10th cast in March 2012 or Brace...depending on #’s! > > From: a > Sent: Friday, January 13, 2012 4:36 PM > infantile scoliosis treatment > Subject: 1st Cast Questions > > > My 13 month old son got his first cast applied today and it's not > going so well. I know he will take some time to adjust but he is a mess (and so am I). I feel like its too long and he can't sit down. He cant sit in his highchair. It is so low and it resting on his pelvic area and so far up to his chin. Is there anything we can do?! I feel desperate. > > Thank you, > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Thank you Barb!! I did the toys up high and we just got a bean bag chair:) I hope we reach his goal and he has no memory of all of this as well. Thank you for the tips and taking the time to respond. a > > > > My 13 month old son got his first cast applied today and it's not > > going so well. I know he will take some time to adjust but he is a mess (and so am I). I feel like its too long and he can't sit down. He cant sit in his highchair. It is so low and it resting on his pelvic area and so far up to his chin. Is there anything we can do?! I feel desperate. > > > > Thank you, > > > > a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Thank you Zehava, I would love to see pictures and hear the out come of the cast removal. I will have to try on of those pillows, that is something I never thought of....great idea. If you get a chance I would love to see the pictures. pmindte@... is my email. Thank you for taking the time reponding to me and for your suggestions. > > HI a > Although our son was casted at 23months old ( almost two months ago at Phili with Dr. C) Ihave a bit of hopefully helpful advice for you ( and others) both from a parent and Occupatioal Therapy professional backround- We used a husband cushion ( the kind people use to sit up in bed- a back and armrest attached) and lean it against the wall. Since it is soft, it has give and the child will be semi-upright which is good for eating ( a bit modified on the floor) and hopefully a bit more comfortable with the cast issue. With that, my creative husband, took a plastic storage container and cut out a U shape ( to make a " desk " ) so you can put toys, etc on it. We did a container before anything too permanent which was good because our son has been up and about and improving each day- We wish the same fore you!!! > We took pictures and wanted to post anyway for the group but I am happy to send to you .... > Zehava > Mom to Binyamin -1st cast to be removed in two weeks and weill keep everyone posted with progress ( hopefully) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Thank you !! You are right the days are getting better as time goes on. I wish he could sit already but we are going to try are get it trimmed just a tad and see if that helps. Your post made me feel like I was not alone:) Thank you for your response....it means a lot. > > > > My 13 month old son got his first cast applied today and it's not > > going so well. I know he will take some time to adjust but he is a mess (and so am I). I feel like its too long and he can't sit down. He cant sit in his highchair. It is so low and it resting on his pelvic area and so far up to his chin. Is there anything we can do?! I feel desperate. > > > > Thank you, > > > > a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Thank you! I think we are going to get it trimmed. I hope it helps but so far his is still not able to sit. Thank you for your response. > > a - My daughter couldn't sit up straight. She had to lean back/recline > on everything - carseat, high chair, and chair/sofa in living room. That > will probably be normal. But if the cast is pressing into his legs and neck > and underarms leaving red marks and he has to hold his head up unnaturally, > they probably need to trim more off. We always try and try to get more cut > off until they say " no more " . With more casts, you'll know what is needed. > > > > My daughter was not happy with her first cast. She slept in our bed for > much of the first weeks. And I was a mess that whole summer. It gets so > much better and easier. Hang in there, take one day and one problem at a > time. Hugs!!!!!!!! > > > > 1st Cast Questions > > > > > > My 13 month old son got his first cast applied today and it's not > going so well. I know he will take some time to adjust but he is a mess (and > so am I). I feel like its too long and he can't sit down. He cant sit in his > highchair. It is so low and it resting on his pelvic area and so far up to > his chin. Is there anything we can do?! I feel desperate. > > Thank you, > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Joy, Being 5 I am sure it was a lot harder. My little one can't talk yet so he really is not sure what it going on. Sounds like Jaylin is getting used to things and I hope he continues to do so. We are going to go this Friday and get it trimmed which is such a releif for me. Thank you for your response. > > > >> > >> My 13 month old son got his first cast applied today and it's not > >> going so well. I know he will take some time to adjust but he is a mess (and so am I). I feel like its too long and he can't sit down. He cant sit in his highchair. It is so low and it resting on his pelvic area and so far up to his chin. Is there anything we can do?! I feel desperate. > >> > >> Thank you, > >> > >> a > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Thank you Becky! I will check out her pictures on FB. He was not walking yet but I am sure he will be soon. I hope so becuase you are right, that thing weights a ton!! I would say his is def. a couple of pounds heavier and it awkward to hold him. I must say I can't wait for cast #2. Thanks for taking the time to write me.....it means a lot to have such a nice support group. Thank you, a > > > My 13 month old son got his first cast applied today and it's not > > going so well. I know he will take some time to adjust but he is a mess (and so am I). I feel like its too long and he can't sit down. He cant sit in his highchair. It is so low and it resting on his pelvic area and so far up to his chin. Is there anything we can do?! I feel desperate. > > > > Thank you, > > > > a > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Thanks again Amber and thank you for you FB reply as well. We are going to get it trimmed, thank goodness there are boards like this to know that was a option. Thank you, a > > a, > I know I already wrote to you on FB but thought I'd check in with you > again. They can trim it or flare it out on the bottom around the tail > bone. That being said I felt very much the same way that first night. > Levi didn't want to get up or move. He just laid next to me and watched > cartoons at the hotel. I thought for sure the next day they would trim > the cast but they told me it was perfect....to give him time. Honestly it > was just that first night/next morning that were that bad. I thought he > can't sit, roll over, get up, pick things up off the floor/play on the > floor....how are we going to do this? That didn't last but 3 days. By > two weeks he could do all but get up from a laying down position & by > three weeks it was full on back to " normal " . Don't get me wrong there are > little things that are hard now....like watching him struggle in the ball > pit at a birthday party or that he can't go to the bottom floor of the > children's museum because of the water tables...but nothing like that > first night. Remember he has to " relearn " how to do things again using > his leg muscles instead of the lower back. Try to hang in & remember that > even if things aren't perfect right now its better then the alternatives. > > Hugs, > > Amber > mommy to Levi > > ps. use the moleskin " petals " to cover any of the rough areas esp by the > face. Levi now uses his cast to " scratch " his chin & the back of his > head...he's a funny kid. > > > > My 13 month old son got his first cast applied today and it's not > > going so well. I know he will take some time to adjust but he is a mess > > (and so am I). I feel like its too long and he can't sit down. He cant sit > > in his highchair. It is so low and it resting on his pelvic area and so > > far up to his chin. Is there anything we can do?! I feel desperate. > > > > Thank you, > > > > a > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Welcome :)We are going on Thursday 19 for his doc at Riley to look at Jaylins cast again to see what else can trimmed up so he can clean himself after using the restroom. I so really hope that a little bit more can come off. I tell you, as soon as jaylin gets his cast set enough for him to do what he needs to do, I am taking his picture and measure the cast so the next one that is put on, I can just hand them the measurement and say do it like this :)This casting can drive a person crazy!!!!The things we do for our babies :) ok so he is 5, not so much a baby anymore!Live, laugh, and loveJoyOn Jan 17, 2012, at 2:29 PM, "a" <minbrock13@...> wrote: Joy, Being 5 I am sure it was a lot harder. My little one can't talk yet so he really is not sure what it going on. Sounds like Jaylin is getting used to things and I hope he continues to do so. We are going to go this Friday and get it trimmed which is such a releif for me. Thank you for your response. > > > >> > >> My 13 month old son got his first cast applied today and it's not > >> going so well. I know he will take some time to adjust but he is a mess (and so am I). I feel like its too long and he can't sit down. He cant sit in his highchair. It is so low and it resting on his pelvic area and so far up to his chin. Is there anything we can do?! I feel desperate. > >> > >> Thank you, > >> > >> a > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 hello!!!my daughther Stefany is 11 year old she is schedule for cirjury next march 21, now she is on brace for about 2 year but her scoliosis continue growing nothing stop her back. I'am verry concernd. Iam happy to now that i'm not alone in this trip....nancy From: a <minbrock13@...>infantile scoliosis treatment Sent: Tuesday, January 17, 2012 11:36 AMSubject: Re: 1st Cast Questions Thanks again Amber and thank you for you FB reply as well. We are going to get it trimmed, thank goodness there are boards like this to know that was a option. Thank you, a >> a,> I know I already wrote to you on FB but thought I'd check in with you> again. They can trim it or flare it out on the bottom around the tail> bone. That being said I felt very much the same way that first night. > Levi didn't want to get up or move. He just laid next to me and watched> cartoons at the hotel. I thought for sure the next day they would trim> the cast but they told me it was perfect....to give him time. Honestly it> was just that first night/next morning that were that bad. I thought he> can't sit, roll over, get up, pick things up off the floor/play on the> floor....how are we going to do this? That didn't last but 3 days. By> two weeks he could do all but get up from a laying down position & by> three weeks it was full on back to "normal". Don't get me wrong there are> little things that are hard now....like watching him struggle in the ball> pit at a birthday party or that he can't go to the bottom floor of the> children's museum because of the water tables...but nothing like that> first night. Remember he has to "relearn" how to do things again using> his leg muscles instead of the lower back. Try to hang in & remember that> even if things aren't perfect right now its better then the alternatives.> > Hugs,> > Amber> mommy to Levi> > ps. use the moleskin "petals" to cover any of the rough areas esp by the> face. Levi now uses his cast to "scratch" his chin & the back of his> head...he's a funny kid.> > > > My 13 month old son got his first cast applied today and it's not> > going so well. I know he will take some time to adjust but he is a mess> > (and so am I). I feel like its too long and he can't sit down. He cant sit> > in his highchair. It is so low and it resting on his pelvic area and so> > far up to his chin. Is there anything we can do?! I feel desperate.> >> > Thank you,> >> > a> >> >> Quote Link to comment Share on other sites More sharing options...
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