Guest guest Posted May 3, 2011 Report Share Posted May 3, 2011 Reading about Jonas, I'm wondering how common it is to have this set of conditions. Nadia (7) has these three - chiari, infantile scoliosis, and tether (detethered at 20 mos), as well as a few other structural abnormalities. Now we're looking at some questions about teeth, palate, jaw and eyes. She's having an MRI this month to check on the chiari. Someone mentioned a tendency for there to be abnormalities with kidneys or bladder, too. Anyone know about that? Wondering what else I should be proactive in asking about... thanks a Quote Link to comment Share on other sites More sharing options...
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