Guest guest Posted November 18, 2011 Report Share Posted November 18, 2011 This is what its all about! Great news Heidi...Ide love to see pics of Iz and Bex holding hands! How beautiful is that!! HRH > Thanks, . Bex was 3 degrees up in his 2nd brace this visit- from > about 11 > degrees to about 14 degrees in brace. Unlike I would've been in the past, > I'm > not upset about the few degrees backwards- I know it's within the margin > of > error and basically about the same number. But overall, his alignment > looked > better than ever. > > To our naked eyes, the X-ray looked better and so does his back without > brace. > His doctor said we can be cautiously optimistic that Bex may have 1 more > brace > in 4 months and then possibly switch to a night time only brace in July or > August. > > This is news we could scarcely have dreamed of, with starting at 63 > degrees. We > are so happy with where Bex is now and so very grateful. > > Bex and Olivia's Isabella (Izzy) got to hang out in SLC- it was wonderful > to > have them there as cast/brace buddies! She held his hand without prompting > when > his brace was being tried on in the playroom. It was so precious. His > normal > life and future is a gift we can never thank you enough for. Never. > > Love, > > Heidi, Bexon's Mommy, (4 years old, 10 casts from Salt Lake City > Shriners, > currently down from 63 degrees to 14 degrees in brace. You can read > Bexon's > Story on www.GirltoMom.com) > > > > > ________________________________ > From: " heather@... " <heather@...> > infantile scoliosis treatment > Sent: Fri, November 11, 2011 8:30:31 AM > Subject: Re: Fw: Bexon's First Brace Check > > > Thanks for hopping on CAST to share this FABULOUS Bex update! His journey > is inspiring to many and so is your dedication to spreading the ET > message! We love you guys and please always keep us posted. ~And, great > news about the book agent! > Fingers and toes crossed. > HRH > >> Not sure if this went through...see below : ) >> >> >> ----- Forwarded Message ---- >> >> From: NIck Guthe <nickguthe@...> >> infantile scoliosis treatment >> Cc: Montoya <isop06@...> >> Sent: Thu, November 10, 2011 5:34:24 PM >> Subject: Bexon's First Brace Check >> >> >> Hey C.A.S.T. family and ! >> >> I am totally not caught up on posts, have been busy with life, getting >> my >> health >> on track (gave up drinking), career (I got a New York book agent 2 weeks >> ago and >> hope to someday publish my novel about Infantile Scoliosis), etc. >> >> But I wanted to post an encouraging message about Bex's first brace >> experience: >> It is SO EASY!!! >> >> We LOVE the brace. Bex has never complained about it. His back looks >> gorgeous. >> We go for his first brace check and new X-rays next week and will get a >> new >> number, but I'm not scared this time. His back looks better to me than >> when we >> got the brace. This would never, ever have been possible without >> Mehta/EDF >> casting first, of course. >> >> I just wanted to say for any families going through or considering >> casting, >> there IS a light at the end of the tunnel and it can be very bright! 10 >> casts >> was very difficult: sometimes just normal life, sometimes painful and >> scary, but >> it was all worth it. Life is very beautiful right now and we have Mehta >> casting, >> ISOP and Shriners to thank. >> >> And of course you Heath and Liv! >> >> Love, >> >> Heidi, Bexon's Mommy, (4 years old, in 10 casts from Salt Lake City >> Shriners, >> currently down from 63 degrees to 10.9 in first brace. You can read >> Bexon's >> Story on Girl to Mom.com) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2011 Report Share Posted November 18, 2011 I'm gonna try to attach the cell phone pic of Izzy holding Bex's hand while he gets his brace on : ) So sweet. Heidi, Bexon's Mommy, (4 years old, 10 casts from Salt Lake City Shriners, currently down from 63 degrees to 14 in brace. You can read Bexon's Story on Girl to Mom.com)From: "heather@..." <heather@...>To: infantile scoliosis treatment Sent: Fri, November 18, 2011 9:16:26 AMSubject: Re: Bex New Brace #2 This is what its all about! Great news Heidi...Ide love to see pics of Iz and Bex holding hands! How beautiful is that!! HRH > Thanks, . Bex was 3 degrees up in his 2nd brace this visit- from > about 11 > degrees to about 14 degrees in brace. Unlike I would've been in the past, > I'm > not upset about the few degrees backwards- I know it's within the margin > of > error and basically about the same number. But overall, his alignment > looked > better than ever. > > To our naked eyes, the X-ray looked better and so does his back without > brace. > His doctor said we can be cautiously optimistic that Bex may have 1 more > brace > in 4 months and then possibly switch to a night time only brace in July or > August. > > This is news we could scarcely have dreamed of, with starting at 63 > degrees. We > are so happy with where Bex is now and so very grateful. > > Bex and Olivia's Isabella (Izzy) got to hang out in SLC- it was wonderful > to > have them there as cast/brace buddies! She held his hand without prompting > when > his brace was being tried on in the playroom. It was so precious. His > normal > life and future is a gift we can never thank you enough for. Never. > > Love, > > Heidi, Bexon's Mommy, (4 years old, 10 casts from Salt Lake City > Shriners, > currently down from 63 degrees to 14 degrees in brace. You can read > Bexon's > Story on www.GirltoMom.com) > > > > > ________________________________ > From: "heather@..." <heather@...> > infantile scoliosis treatment > Sent: Fri, November 11, 2011 8:30:31 AM > Subject: Re: Fw: Bexon's First Brace Check > > > Thanks for hopping on CAST to share this FABULOUS Bex update! His journey > is inspiring to many and so is your dedication to spreading the ET > message! We love you guys and please always keep us posted. ~And, great > news about the book agent! > Fingers and toes crossed. > HRH > >> Not sure if this went through...see below : ) >> >> >> ----- Forwarded Message ---- >> >> From: NIck Guthe <nickguthe@...> >> infantile scoliosis treatment >> Cc: Montoya <isop06@...> >> Sent: Thu, November 10, 2011 5:34:24 PM >> Subject: Bexon's First Brace Check >> >> >> Hey C.A.S.T. family and ! >> >> I am totally not caught up on posts, have been busy with life, getting >> my >> health >> on track (gave up drinking), career (I got a New York book agent 2 weeks >> ago and >> hope to someday publish my novel about Infantile Scoliosis), etc. >> >> But I wanted to post an encouraging message about Bex's first brace >> experience: >> It is SO EASY!!! >> >> We LOVE the brace. Bex has never complained about it. His back looks >> gorgeous. >> We go for his first brace check and new X-rays next week and will get a >> new >> number, but I'm not scared this time. His back looks better to me than >> when we >> got the brace. This would never, ever have been possible without >> Mehta/EDF >> casting first, of course. >> >> I just wanted to say for any families going through or considering >> casting, >> there IS a light at the end of the tunnel and it can be very bright! 10 >> casts >> was very difficult: sometimes just normal life, sometimes painful and >> scary, but >> it was all worth it. Life is very beautiful right now and we have Mehta >> casting, >> ISOP and Shriners to thank. >> >> And of course you Heath and Liv! >> >> Love, >> >> Heidi, Bexon's Mommy, (4 years old, in 10 casts from Salt Lake City >> Shriners, >> currently down from 63 degrees to 10.9 in first brace. You can read >> Bexon's >> Story on Girl to Mom.com) > > > 2 of 2 Photo(s) Bex Izzy brace 2.JPG Quote Link to comment Share on other sites More sharing options...
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