Guest guest Posted January 9, 2012 Report Share Posted January 9, 2012 My son Josiah was diagnosed with scoliosis at 4 months old in September. We saw Dr. S in Cincinnati in October. He looked at his original xray and said his curve was 22* and rvad almost 0. He was very confident he would resolve. We were to follow up mid February or sooner if any changes. I recently moved his appt up to January 23 because his head tilt seems to have gotten worse. Now for my questions - if there has been little or no change in the curve towards resolving should I push for casting? I'm not sure how fast curves typically resolve on their own? What kind of improvement would you be satisfied with seeing in a 4 month time period? Anything specific I should be looking for or asking? Thank you, & Josiah 8m 22* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2012 Report Share Posted January 9, 2012 Hi ~ I am new to this group and don’t know about the casting besides what I have read. We are currently trying to get my son into SLC Utah to be seen. I can tell you that we detected my son’s scoliosis early too and was told to monitor. We caught it around 4 months of age as well and it was at 24*. We followed up roughly 6 months later and it was at 36* and was told to think about casting and to meet again a few months later for another x-ray. We met with our local Orthopedic Surgeon this last December to find that our son is now at 40* and he doesn’t feel he can help us. We are now trying to get him admitted into the Shriners Hospital in Utah at 14 months of age, with a tethered cord and a 40* curve. My personal opinion is if your next appt you don’t see any improvement, I would start pushing for an MRI and casting. I can’t tell you how long of a process it is to outgrow scoliosis, but I can tell you that if it is getting worse it can get bad fast. And although I feel we are on the right track, trying to get in and get it corrected is also a slow process (or feels like it) when you know time is of the essence. Good luck with everything. I wish you the best! Stenger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2012 Report Share Posted January 9, 2012 If there has been no change for the better, I would ask what lil J's RVAD is and go from there. Rest assured, he is in great hands in Cincinnati and he is still so young. You're on the right track if he has a progressive case. Please keep us posted and keep the questions coming. HRH > My son Josiah was diagnosed with scoliosis at 4 months old in September. > We > saw Dr. S in Cincinnati in October. He looked at his original xray and > said > his curve was 22* and rvad almost 0. He was very confident he would > resolve. We were to follow up mid February or sooner if any changes. I > recently moved his appt up to January 23 because his head tilt seems to > have gotten worse. Now for my questions - if there has been little or no > change in the curve towards resolving should I push for casting? I'm not > sure how fast curves typically resolve on their own? What kind of > improvement would you be satisfied with seeing in a 4 month time period? > Anything specific I should be looking for or asking? > Thank you, > & Josiah 8m 22* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 So if his curve number has gone down at all would you continue to wait if his rvad is still near 0? Or would you expect to see a fairly significant decrease? I'm just not sure how fast I should expect it to resolve and don't want to miss out on the opportunity to correct it while he is young if it doesn't end up resolving on its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 ,With our son Landon they wanted to play the waiting game at first too, because his RVAD was 18*. However after we first noticed at 6 months and by the time we made an appt. at Shriners, Landon was 15 months. During that time there had been no improvement and we didn't want to waste anymore time, so we made the decision to cast. Looking back; had we known what we know now, we would've started casting right away. We trusted that his pediatrician and first doctor knew what was best, after all we didn't have a medical degree. I kept researching and it was the hope that there had to be another way that lead us to this site.Sent from my iPhoneOn Jan 10, 2012, at 2:02 PM, Hammond <tenecwalker@...> wrote: So if his curve number has gone down at all would you continue to wait if his rvad is still near 0? Or would you expect to see a fairly significant decrease? I'm just not sure how fast I should expect it to resolve and don't want to miss out on the opportunity to correct it while he is young if it doesn't end up resolving on its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2012 Report Share Posted January 13, 2012 This is still an unknown in world of IS. I would ask if he developing rotation, have him examined by an super experienced doc (in IS) and go from there...You're on the right track! HRH > So if his curve number has gone down at all would you continue to wait if > his rvad is still near 0? Or would you expect to see a fairly significant > decrease? I'm just not sure how fast I should expect it to resolve and > don't want to miss out on the opportunity to correct it while he is young > if it doesn't end up resolving on its own. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2012 Report Share Posted January 13, 2012 Thank you for the advice. Do you think Dr S is knowledgeable enough to make the best decisions? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.