Re: Going for cast #4 on Monday Randi

[Guest guest]

Hi Randi,

Attitude is everything when going through rough stuff, isnt it! You are so

ahead of the game when you have a good attitude...I have to admit my

attitude was horrible in the beginning...But, Liv didnt have access to

Early Treatment and I didnt know about it yet, so I was scared. My

defense mechanism for fear has always been anger and am glad that I

finally figured out how to properly channel my anger and go into full on

action mode for Liv and others. I cant believe you found that article!

I'm curious to read it again as it was written so long ago and we've all

learned so much more about Early Treatment w/ Mehta casting since then....

I think Liv was only 7 or 8 when I wrote that and now she is almost 14!

I can really relate to how family members/friends react....I remember an

Uncle of mine stating quite sternly to me " why dont you just do what the

docs say and quit being a rebel!!!! " The docs were then saying to fuse the

majority of Livs spine as an infant w/ a 90 degree cobb, severe rotation

in her thoracic area!! Yikes, no way...I went with my intuition and am so

glad I did!

You keep up the good work momma! Your darling is lucky to have you.

HRH

> Thanks ! She is doing great and I love hugging her skinny little

> butt. I can't believe how skinny she is without her cast on. I tried to

> put her in some 2t pants today and they fell off

>  

> I was really happy today to find an article you wrote in 2007. I was

> looking for something that stated the complications that infantile

> scoliosis causes if left untreated.

> I am having some slight issues with some of my husbands family, so I

> wanted to give it to them. I don't think that they fully understand the

> severity of infantile scoliosis.

> So, I get asked frequently how many more casts and every time that I tell

> them, I get a " uh..really? Poor Avery " . It is done so that they get the

> point accross that they think I am overreacting and that we need to give

> her a break. It is partly my fault because I am an optimistic person and

> am not all down on Avery's condition.

> My thoughts are that we can't change it and it could be worse, so lets

> roll with it. It does nothing for me to be all down about it. Does it

> suck? yep...but, the only thing that I can change about the situation is

> my attitude. My attitude about it will also reflect how Avery views it as

> she gets older.

>  

> When the comment about her casting was brought up again last night, I just

> said " it's better than a wheelchair, right? " .

>  

> Even though Avery has been dealt a sucky hand, it could be worse. I am

> reminded of that every time I walk through the Children's hospital.

>  

> I am going to show your article to my husbands family, so they can see how

> severe it can turn if we don't cast. She can live the first few years of

> her life without swimming, but the fact is that she will be able to enjoy

> the rest of her life without limitations, thanks to casting.

>  

> Well, thanks for listening,

> Randi

>  

>  

>

> From: Hyatt <heather@...>

> infantile scoliosis treatment

> Sent: Wednesday, November 9, 2011 2:04 PM

> Subject: RE: Going for cast #4 on Monday

>

>

>  

> Thanks for the update on Avery, Randi.  Sounds like she is doing well. 

> Slow and steady wins the race and she seems to be on track.  Good job

> momma!  Enjoy your squishy time.

> HRH

>  

> From:infantile scoliosis treatment

> [mailto:infantile scoliosis treatment ] On Behalf Of

> mommyloveshertwins24

> Sent: Tuesday, November 08, 2011 3:37 PM

> infantile scoliosis treatment

> Subject: Going for cast #4 on Monday

>  

>  

> We had Avery's 3rd cast removed today and the x-rays showed her at 22*.

> She was 24* out of cast 3 months ago. Started at 39*. The rotation gets

> better every time and it is pretty much non-existent.

>

> We go for cast #4 on Monday and are hoping for great numbers . The last

> two casts, we have been at 9* in cast.

>

> The plan is to cast Monday and probably February and then a brace for the

> summer, depending on her numbers in February.

>

> I am amazed at how tiny she is without her cast.

>

> Thank you all for the continued support.

>

> Randi

> Mom to Avery and 2yrs. Avery torticollis resolved and scoliosis

> started at 39* down to 22*.

>

[Guest guest]

Thank you ! I was mainly just looking for something...anything that stated what would happen if infantile scoliosis was left untreated.

I wanted them to understand that it would progress to something worse than 22 degrees. I don't think they understood. Not that they should have to understand, to trust my decision. I have always been a information seeker..,...so they should know that I was doing what I thought was right.

Your article just gave some very grim, but true outcomes and it helped tremendously. I actually got a chance to talk about it without the article in front of me, so it caused less friction. But the minute I used the word "ventilator"...they got pretty wide eyed. Hopefully, this has it set in their minds that I am doing what is right.

Even if they don't, I am confident and that is all that matters

From: "heather@..." <heather@...>infantile scoliosis treatment Sent: Friday, November 11, 2011 9:57 AMSubject: Re: Going for cast #4 on Monday Randi

Hi Randi,Attitude is everything when going through rough stuff, isnt it! You are soahead of the game when you have a good attitude...I have to admit myattitude was horrible in the beginning...But, Liv didnt have access toEarly Treatment and I didnt know about it yet, so I was scared. Mydefense mechanism for fear has always been anger and am glad that Ifinally figured out how to properly channel my anger and go into full onaction mode for Liv and others. I cant believe you found that article! I'm curious to read it again as it was written so long ago and we've alllearned so much more about Early Treatment w/ Mehta casting since then....I think Liv was only 7 or 8 when I wrote that and now she is almost 14!I can really relate to how family members/friends react....I remember anUncle of mine stating quite sternly to me "why dont you just do what thedocs say and quit being a rebel!!!!" The docs were

then saying to fuse themajority of Livs spine as an infant w/ a 90 degree cobb, severe rotationin her thoracic area!! Yikes, no way...I went with my intuition and am soglad I did!You keep up the good work momma! Your darling is lucky to have you.HRH> Thanks ! She is doing great and I love hugging her skinny little> butt. I can't believe how skinny she is without her cast on. I tried to> put her in some 2t pants today and they fell off > Â > I was really happy today to find an article you wrote in 2007. I was> looking for something that stated the complications that infantile> scoliosis causes if left untreated.> I am having some slight issues with some of my husbands family, so I> wanted to give it to them. I don't think that they fully understand the> severity of infantile scoliosis.> So, I get asked frequently how many more casts and

every time that I tell> them, I get a "uh..really? Poor Avery". It is done so that they get the> point accross that they think I am overreacting and that we need to give> her a break. It is partly my fault because I am an optimistic person and> am not all down on Avery's condition.> My thoughts are that we can't change it and it could be worse, so lets> roll with it. It does nothing for me to be all down about it. Does it> suck? yep...but, the only thing that I can change about the situation is> my attitude. My attitude about it will also reflect how Avery views it as> she gets older.> Â > When the comment about her casting was brought up again last night, I just> said "it's better than a wheelchair, right?".> Â > Even though Avery has been dealt a sucky hand, it could be worse. I am> reminded of that every time I walk through the

Children's hospital.> Â > I am going to show your article to my husbands family, so they can see how> severe it can turn if we don't cast. She can live the first few years of> her life without swimming, but the fact is that she will be able to enjoy> the rest of her life without limitations, thanks to casting.> Â > Well, thanks for listening,> Randi> Â > Â >> From: Hyatt <heather@...>> infantile scoliosis treatment > Sent: Wednesday, November 9, 2011 2:04 PM> Subject: RE: Going for cast #4 on

Monday>>>  > Thanks for the update on Avery, Randi. Sounds like she is doing well. > Slow and steady wins the race and she seems to be on track. Good job> momma! Enjoy your squishy time.> HRH>  > From:infantile scoliosis treatment > [mailto:infantile scoliosis treatment ] On Behalf Of> mommyloveshertwins24> Sent: Tuesday, November 08, 2011 3:37 PM> infantile scoliosis treatment >

Subject: Going for cast #4 on Monday> Â > Â > We had Avery's 3rd cast removed today and the x-rays showed her at 22*.> She was 24* out of cast 3 months ago. Started at 39*. The rotation gets> better every time and it is pretty much non-existent.>> We go for cast #4 on Monday and are hoping for great numbers . The last> two casts, we have been at 9* in cast.>> The plan is to cast Monday and probably February and then a brace for the> summer, depending on her numbers in February.>> I am amazed at how tiny she is without her cast.>> Thank you all for the continued support.>> Randi> Mom to Avery and 2yrs. Avery torticollis resolved and scoliosis> started at 39* down to 22*.>

[Guest guest]

Good deal...Glad it helped.

How did Monday go?

HRH

> Thank you ! I was mainly just looking for something...anything that

> stated what would happen if infantile scoliosis was left untreated.

> I wanted them to understand that it would progress to something worse than

> 22 degrees. I don't think they understood. Not that they should have to

> understand, to trust my decision. I have always been a information

> seeker..,...so they should know that I was doing what I thought was right.

>  

> Your article just gave some very grim, but true outcomes and it helped

> tremendously. I actually got a chance to talk about it without the article

> in front of me, so it caused less friction. But the minute I used the

> word " ventilator " ...they got pretty wide eyed. Hopefully, this has it set

> in their minds that I am doing what is right.

> Even if they don't, I am confident and that is all that matters

>

> From: " heather@... " <heather@...>

> infantile scoliosis treatment

> Sent: Friday, November 11, 2011 9:57 AM

> Subject: Re: Going for cast #4 on Monday Randi

>

>

>  

> Hi Randi,

> Attitude is everything when going through rough stuff, isnt it! You are so

> ahead of the game when you have a good attitude...I have to admit my

> attitude was horrible in the beginning...But, Liv didnt have access to

> Early Treatment and I didnt know about it yet, so I was scared. My

> defense mechanism for fear has always been anger and am glad that I

> finally figured out how to properly channel my anger and go into full on

> action mode for Liv and others. I cant believe you found that article!

> I'm curious to read it again as it was written so long ago and we've all

> learned so much more about Early Treatment w/ Mehta casting since then....

> I think Liv was only 7 or 8 when I wrote that and now she is almost 14!

> I can really relate to how family members/friends react....I remember an

> Uncle of mine stating quite sternly to me " why dont you just do what the

> docs say and quit being a rebel!!!! " The docs were then saying to fuse the

> majority of Livs spine as an infant w/ a 90 degree cobb, severe rotation

> in her thoracic area!! Yikes, no way...I went with my intuition and am so

> glad I did!

> You keep up the good work momma! Your darling is lucky to have you.

> HRH

>

>> Thanks ! She is doing great and I love hugging her skinny little

>> butt. I can't believe how skinny she is without her cast on. I tried to

>> put her in some 2t pants today and they fell off

>>  

>> I was really happy today to find an article you wrote in 2007. I was

>> looking for something that stated the complications that infantile

>> scoliosis causes if left untreated.

>> I am having some slight issues with some of my husbands family, so I

>> wanted to give it to them. I don't think that they fully understand the

>> severity of infantile scoliosis.

>> So, I get asked frequently how many more casts and every time that I

>> tell

>> them, I get a " uh..really? Poor Avery " . It is done so that they get the

>> point accross that they think I am overreacting and that we need to give

>> her a break. It is partly my fault because I am an optimistic person and

>> am not all down on Avery's condition.

>> My thoughts are that we can't change it and it could be worse, so lets

>> roll with it. It does nothing for me to be all down about it. Does it

>> suck? yep...but, the only thing that I can change about the situation is

>> my attitude. My attitude about it will also reflect how Avery views it

>> as

>> she gets older.

>>  

>> When the comment about her casting was brought up again last night, I

>> just

>> said " it's better than a wheelchair, right? " .

>>  

>> Even though Avery has been dealt a sucky hand, it could be worse. I am

>> reminded of that every time I walk through the Children's hospital.

>>  

>> I am going to show your article to my husbands family, so they can see

>> how

>> severe it can turn if we don't cast. She can live the first few years of

>> her life without swimming, but the fact is that she will be able to

>> enjoy

>> the rest of her life without limitations, thanks to casting.

>>  

>> Well, thanks for listening,

>> Randi

>>  

>>  

>>

>> From: Hyatt <heather@...>

>> infantile scoliosis treatment

>> Sent: Wednesday, November 9, 2011 2:04 PM

>> Subject: RE: Going for cast #4 on Monday

>>

>>

>>  

>> Thanks for the update on Avery, Randi.  Sounds like she is doing

>> well. 

>> Slow and steady wins the race and she seems to be on track.  Good job

>> momma!  Enjoy your squishy time.

>> HRH

>>  

>> From:infantile scoliosis treatment

>> [mailto:infantile scoliosis treatment ] On Behalf Of

>> mommyloveshertwins24

>> Sent: Tuesday, November 08, 2011 3:37 PM

>> infantile scoliosis treatment

>> Subject: Going for cast #4 on Monday

>>  

>>  

>> We had Avery's 3rd cast removed today and the x-rays showed her at 22*.

>> She was 24* out of cast 3 months ago. Started at 39*. The rotation gets

>> better every time and it is pretty much non-existent.

>>

>> We go for cast #4 on Monday and are hoping for great numbers . The

>> last

>> two casts, we have been at 9* in cast.

>>

>> The plan is to cast Monday and probably February and then a brace for

>> the

>> summer, depending on her numbers in February.

>>

>> I am amazed at how tiny she is without her cast.

>>

>> Thank you all for the continued support.

>>

>> Randi

>> Mom to Avery and 2yrs. Avery torticollis resolved and scoliosis

>> started at 39* down to 22*.

>>

>

>

>

[Guest guest]

Well, it went pretty well for Avery. She is such a little trooper every time.

She goes back smiling and waving without any anxiety meds. She is down to 11* in

cast. Weve been around 9* on the last two, so were still looking good. The new

knit rite shirt is sleeveless and im not a big fan. The Dr said that he will

have the ones with sleeves next time. I am going to put her old one on soon. I

was going to do it the same day, but right after I got her home I headed to the

ER for myself. I had been miserable for a few days and had an abcess. It turns

out that I had MRSA most likely from a spider bite. I ended up having it lanced

in the ER and then that didnt work, so I had surgery on day 6 and just got out

yesterda. Im just getting to see her in this cast fully today and shes doing

great as usual. Shes had a cough since before her cast that has been worse at

night so well be goin to the dr soon

thanks for asking

[Guest guest]

Sorry, to hear about the spider bite resulting in mrsa, then surgery!!

Geez...Just when you think all is well and going smoothly. Glad you

noticed it quickly and dealt with it asap.

Great news about 9 degrees too!! Way to grow Avery!!

Thanks for the update.

HRH

> Well, it went pretty well for Avery. She is such a little trooper every

> time. She goes back smiling and waving without any anxiety meds. She is

> down to 11* in cast. Weve been around 9* on the last two, so were still

> looking good. The new knit rite shirt is sleeveless and im not a big fan.

> The Dr said that he will have the ones with sleeves next time. I am going

> to put her old one on soon. I was going to do it the same day, but right

> after I got her home I headed to the ER for myself. I had been miserable

> for a few days and had an abcess. It turns out that I had MRSA most likely

> from a spider bite. I ended up having it lanced in the ER and then that

> didnt work, so I had surgery on day 6 and just got out yesterda. Im just

> getting to see her in this cast fully today and shes doing great as usual.

> Shes had a cough since before her cast that has been worse at night so

> well be goin to the dr soon

>

> thanks for asking

>