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Glad to hear he is doing better and taking full breaths...A must for

healing. Hang in there momma.

HRH

> So the doctor removed 's cast today. It was an emotional thing to

> do!

> It was crazy how as soon as the cast came off he was taking regular deep

> breaths. But his skin is a mess. He has a few pressure sores that I

> would never have known that they were there. One was really bad.

> It was nice to hold his squishy body again. I will need to hive him an

> oatmeal bath tonight.

> The hardest part was seeing him bend again! Not being straight up like in

> the cast. Not being able to sit up straight in his car seat or in the

> stroller.

> Seeing his back with my naked eye, I would say that it looks the same as

> it did in March. I did send the chest xrays to our doctor. I also told

> them that I would make the 12hr drive to see them next week.

>

> Thanks for listening:(

>

> Keeley

> Sent from my BlackBerry® wireless handheld

>

> ------------------------------------

>

>

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  • 3 months later...

Hi All!

We have moved to Delaware this summer so I haven't been able to post or write

much lately! I think we are finally feeling settled in. Anyway, at the emd of

this month n goes in for his 6th cast. I know I saw it on here a while

back about how some can remove the cast at home, how do you do that? The past 5

removals have been sooooo traumatic, not only for n but for me. :( Just

wondering if there was a more gentle way to remove these. Thank you all so

much!

Mommy of n, 5th cast

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After dealing with the traumatic saw 5 times. We opted to use tin snips at home

and do it ourselves. We have now done it twice at home with no drama! We lay

Jonas on his back on a bean bag. Then remove all tape/moleskin. We start at

the bottom and cut straight up the middle. Then cut each shoulder strap.

Hollie

Mama of Jonas 3 years old in cast #7 SLC. 25.7* down from 73*

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HEY SHANNON! MY HUSBUND JUST CUT SIERRA’S 7TH CAST OFF AT HOME BEFORE WE WENT IN FOR HER 8TH! IT TOOK ABOUT 1 MIN. & SHE DID NOT MAKE A PEEP!!! HE JUST TOOK SOME TIN SNIPS HE BOUGHT AT HOME DEPOT AND WE PUT SOME HAND SANDITIZER ON THEM & PUT HIS LEATHER BELT BETWEEN HER SKIN AND SNIPPED THE FRONT PART THAT GOES ACROSS HER BREAST & THE BOTTOM PART THAT GOES ACROSS HER BELLY BUTTON & IT WILL JUST POP OFF & WE JUST LIFTED HER UP..IT WAS A BREEZE!!!!

KRISTI MOMMY TO SIERRA..2 1/2 YRS. 34 DEGREE CURVE IN APRIL 2010 ON 8TH CAST...X-RAYING 16 DEGREES OUT OF CAST AND ZERO IN CAST!!!!

From: shannonclune

Sent: Tuesday, September 13, 2011 9:27 AM

infantile scoliosis treatment

Subject: cast removal

Hi All!We have moved to Delaware this summer so I haven't been able to post or write much lately! I think we are finally feeling settled in. Anyway, at the emd of this month n goes in for his 6th cast. I know I saw it on here a while back about how some can remove the cast at home, how do you do that? The past 5 removals have been sooooo traumatic, not only for n but for me. :( Just wondering if there was a more gentle way to remove these. Thank you all so much! Mommy of n, 5th cast

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  • 3 months later...

I agree. We need an instructional video on easy cast removal with the

ocillating (sp?) saw and the tin snips. Any volunteers?

HRH

> I don't know... But I propose we have a cast cutting commercial if that's

> the case....... Just kidding. I bet it is the same! Wow! Go figure.

>

> Sent from my iPhone

>

> On Jan 4, 2012, at 9:09 PM, " hoagie914 " <lennyzr2@...> wrote:

>

> So has anyone noticed that the saw used to trim and remove the cast looks

> identical to the infomercial for the multi-tool? I saw that Sears is

> selling them too now for around $80. This works essentially the same way

> as the cast saw and uses rapid vibration. The multi-tool can cut through

> wood and metal, but not cut your finger if you touch it. Curious to know

> if anyone has tried using one to remove or trim the cast? Please note that

> I wouldn't recommend trimming the cast for comfort, but may be neccessary

> for the Lymphedma. Might save a long trip back to the hospital for a few

> minutes of trimming...

>

>

>

> At what location is the apex of her highest curve? Ive yet to see

> lymphedema from a cast, but that doesnt mean its not a possibility. If

> the cast is the cause of the lymphadema, adjustments must be made. Please

> keep us posted on this.

> HRH

>

> Has anyone had lymphedema from the cast? Abigail has this and it's causing

> her arms to swell. This cast is very high up on her armpits, I think she

> needs an over the shoulder but her dr. doesn't do them. I am hoping they

> can just trim the armpits a little bit and won't need to change the whole

> thing, she just got this one Nov. 21st..wondering if anyone else has

> experienced this?

>

> -Ami

>

>

>

>

>

>

>

> ------------------------------------

>

>

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Hi !

Sorry for the late reply..we did go down to Boston to get the cast trimmed under

the arms and she is SO much happier. She did advocate for us to do it ourselves

at the house but we didn't have the right equipment! She wanted the tin-snips.

Her arms are still swollen but I do see some positive difference. The doctor

said it might take a few more days for the swelling to go down, and if not then

call him on Monday.

As for the apex of her curve we did discuss that she's right on the border for

an over-the-shoulder and the docs don't feel it is necessary..but her curve is

being stubborn.

I think a video for taking off casts would be great! We were so nervous our

first time..just a tip, at the hospital for some reason they make the cut on the

side of the body?..we find it much easier to go up the front or the back, less

plaster to get through!. Also one for the best techniques to pad the cast, how

to get in the tight spaces and best methods for applying moleskin?

I'd volunteer us but Abigail is usually a reluctant participant..lol

Thanks : )

-Ami

> >

> > At what location is the apex of her highest curve? Ive yet to see

> > lymphedema from a cast, but that doesnt mean its not a possibility. If

> > the cast is the cause of the lymphadema, adjustments must be made. Please

> > keep us posted on this.

> > HRH

> >

> > Has anyone had lymphedema from the cast? Abigail has this and it's causing

> > her arms to swell. This cast is very high up on her armpits, I think she

> > needs an over the shoulder but her dr. doesn't do them. I am hoping they

> > can just trim the armpits a little bit and won't need to change the whole

> > thing, she just got this one Nov. 21st..wondering if anyone else has

> > experienced this?

> >

> > -Ami

> >

> >

> >

> >

> >

> >

> >

> > ------------------------------------

> >

> >

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