Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010 Sorry , I already asked about this recently but I can't find the posts as the message search facility still doesn't work for any messages after March 2009. Henry's dad and I both agree (!) that there's spomething wrong and he needs investigating. It will be months before Henry's ready for the sleep study at Papworth, because he has to learn to tolerate multiple sensors, tape, elastic belts and trailing wire all over his body first amd to keep them on for asnout 10 hours, and this is taking a long time. I'm not keen on Addenbrooke's and I remember a couple of neuros were recommended to us (one by Darla?). I remember someone at the C & W and someone at Gt. Ormond St were mentioned. Please would people kindly remind me? - and if there are any other great neuros I should love to know who they are. It would be nice to speak on the phone to people with good experiences. I want Henry to be properly investigated so that if he is having seizures of some kind we find the underlying reason, perhaps metabolic, and avoid his simply being put on AEDs. Thanks, Margaret PS we are in Cambridge. London hospitals are easy for us to get to. Quote Link to comment Share on other sites More sharing options...
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